The Light Collective

On October 22nd, we had the pleasure speaking at Rice University for the Sawyer Seminar Series! In light of October being both Breast Cancer Action and Cybersecurity Awareness Month, we spoke about the importance of patient rights in digital health technology development in the panel discussion “No Aggregation without Representation.”  💻🎙️ We discussed with medical students and faculty the unique risks of patient health data and highlighted the need for better cybersecurity in healthcare. We also emphasized the importance of stronger patient representation and protections around electronic health records and social media—especially as more patients engage online to share knowledge about their health. Our call to action: “Without representation, we can’t advance rights, interests and voices of patient communities in health technology. As individuals, we have to take collective action.” Aligning with the Light Collective’s mission, patient communities can and should challenge and create policies that are at the service of protecting patients’ health and data. #PatientDataRights #HealthEquity #BreastCancerAwarenessMonth #CybersecurityAwareness Month

Behind the scenes: Podcast with Ashley Dedmon, MPH,CHES® (DrPH Student) and Andrea Downing about breast cancer action + cybersecurity awareness month at Rice University. Stay tuned for when this comes out!!

Tomorrow Andrea Downing, Valencia Robinson, and Ashley Dedmon, MPH,CHES® (DrPH Student) will be speaking at Rice University! There has never been a greater need or opportunity to advance the rights, interests, and voices of patient communities in health technology. The emergence and growth of digital health technology and social media platforms over the past decade has caused a radical shift in global healthcare. Patient populations increasingly turn to social media and other digital health technologies for information and support as they navigate their health challenges. If you are in Houston register here: https://lnkd.in/gu9r_Yvt

Today we're shedding light on digital rights from coast to coast! Excited to join the PCORI Annual Meeting to talk about AI rights, patient representation, and patient-led research. #BeLikeLight

Tomorrow Andrea Downing, Valencia Robinson, and Ashley Dedmon, MPH,CHES® (DrPH Student) will be speaking at Rice University! There has never been a greater need or opportunity to advance the rights, interests, and voices of patient communities in health technology. The emergence and growth of digital health technology and social media platforms over the past decade has caused a radical shift in global healthcare. Patient populations increasingly turn to social media and other digital health technologies for information and support as they navigate their health challenges. If you are in Houston register here: https://lnkd.in/gu9r_Yvt

Here's the latest news from The Light Collective! We have TONS of upcoming events, and a report out of our latest research. #BeLikeLight https://lnkd.in/gDuTdggu

Here's the latest news from The Light Collective! We have TONS of upcoming events, and a report out of our latest research. #BeLikeLight https://lnkd.in/gDuTdggu

Recently we joined many of our members at AcademyHealth's Health Datapalooza. Check out wisdom from Danny van Leeuwen, creator of Health Hats Podcast. 👉 Patients rarely use health apps, they use tools. 👉 They use these tools to project manage time, people, records, and tasks 👉 Finding a practice that works, we (patients and caregivers) don't mess with what work. 👉 If you cannot conjure a use case from lived experience, you aren't going to get patients to use it. 👉"Invite people with lived experience into your teams as a full time member." - #BeLikeLight https://lnkd.in/g5eV_bGn