ERNICA

We are thrilled to announce the upcoming Online Paediatric Colorectal Course, a two-day immersive program focusing on Anorectal Malformations (ARM) and Hirschsprung’s disease, supported by ERN eUROGEN, ERNICA , EUPSA European Paediatric Surgeons' Association and ARM-Net. Set for 13-14 February 2025, this unique course offers hands-on training that you can participate in from home, complete with training models, instruments, and expert guidance. The course structure includes interactive sessions and debates, with a blend of foundational knowledge and practical skills, all supervised by experienced specialists in pediatric colorectal surgery. For added value, participants are eligible for EACCME accreditation upon completion of a post-session survey. More information and registration: https://lnkd.in/eS6b5MQt #HealthUnion #EU4Health #RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg

You are invited to join an insightful webinar hosted by ERNICA, #eUROGEN, and #EURORDIS on Mental health and behavioral difficulties in children with rare neonatal surgical diseases: assessment, outcomes and implications for research, policy and practice'. 📆 Wednesday 20 November, 2024 ⌚ 17.00 - 18.00 CET Moderated by: Dr. Michaela Dellenmark Blom (The Queen Silvia Children’s Hospital and Department of Women’s and Children’s Health, Karolinska Institute, Stockholm, SE). Speakers: Dr. André Rietman, senior neuropsychologist, healthcare psychologist MSc PhD at Erasmus Medical Center, Sophia Children's hospital (Rotterdam, NL) Matt Bolz-Johnson, mental health lead at EURORDIS (European Organisation for Rare Diseases) and co-chair for the Mental Health Partnership Network. Sara Persson, paediatric surgeon and PhD student at the Queen Silvia Children's Hospital, Sahlgrenska University Hospital (Gothenburg, SE) Kate Tyler, patient representative of eUROGEN, member of the Federation of Esophageal Atresia and Tracheo-Esophageal Fistula support groups (EAT) and trustee for TOFS and Max's Trust. We invite anyone who is interested in this topic to join and participate! Register here: https://lnkd.in/ectSyNme This course is CME accredited. #HealthUnion #EU4Health

Join the next ERN eUROGEN and ERN ERNICA webinar supported by EUPSA European Paediatric Surgeons' Association and ARM-Net: 🖥 ARM and Sexuality: Part 2 👥 Irene Schokker-van Linschoten & Michel Haanen 📅 Wednesday 13 November, 18:00 CET 🔗 https://lnkd.in/efyBG3qN #HealthUnion #EU4Health #RareDisease #UroSoMe #Urology

Kick off meeting for the ERNICA Central Implementation Support Team (CIST)! Last week, members of the CIST convened in Rotterdam for the first CIST meeting! This group, coordinated by Olivia Spivack (Ghering) is dedicated to supporting ERNICA's implementation initiatives using #implementationscience. This involves supporting the implementation of clinical guidelines into (European) clinical practice. Thank you to everyone for the active participation!

You are invited to join an insightful webinar hosted by ERNICA, #eUROGEN, and #EURORDIS on Mental health and behavioral difficulties in children with rare neonatal surgical diseases: assessment, outcomes and implications for research, policy and practice'. 📆 Wednesday 20 November, 2024 ⌚ 17.00 - 18.00 CET Moderated by: Dr. Michaela Dellenmark Blom (The Queen Silvia Children’s Hospital and Department of Women’s and Children’s Health, Karolinska Institute, Stockholm, SE). Speakers: Dr. André Rietman, senior neuropsychologist, healthcare psychologist MSc PhD at Erasmus Medical Center, Sophia Children's hospital (Rotterdam, NL) Matt Bolz-Johnson, mental health lead at EURORDIS (European Organisation for Rare Diseases) and co-chair for the Mental Health Partnership Network. Sara Persson, paediatric surgeon and PhD student at the Queen Silvia Children's Hospital, Sahlgrenska University Hospital (Gothenburg, SE) Kate Tyler, patient representative of eUROGEN, member of the Federation of Esophageal Atresia and Tracheo-Esophageal Fistula support groups (EAT) and trustee for TOFS and Max's Trust. We invite anyone who is interested in this topic to join and participate! Register here: https://lnkd.in/ectSyNme This course is CME accredited. #HealthUnion #EU4Health

The "MyFetUZ" research team at KU Leuven is looking for an enthusiastic pediatric surgeon or obstetrician (either in training or with completed specialization) to participate in their research program on fetal surgery for pulmonary hypoplasia, urinary tract obstruction, abdominal wall defects, and fetal membrane repair.

👉 Today a site visit of DG SANTE EU Health and Food Safety representatives in Amsterdam UMC gathered the 6 ERN coordinators of ERN GUARD-Heart, Endo-ERN - European Reference Network, ERN CRANIO , ERN eUROGEN, ERNICA and ERN GENTURIS. The agenda of the meeting included the Inspirational session with Dutch ERN coordinators & ERN Board of Member States representatives. #ERNs #health #rarediseases European Commission #ShareCareCure

Did your institution have problems related to the purchasing / being supplied with medical devices in the last six months? Do you foresee problems related to the availability of medical devices in the coming 1-2 years? The European Commission, through the executive agency HaDEA, has commissioned a “Study supporting the monitoring of the availability of medical devices on the EU market” to a consortium led by the Austrian National Public Health Institute. To support this study they have launched the following survey. It takes about 10-15 minutes to complete the survey and the deadline is 30 September 2024 (23:59 CET). https://lnkd.in/e6_nevCY

📢 Exciting news for medical device manufacturers! EMA has launched a pilot programme to support the development and assessment of orphan #MedicalDevices offering free advice and guidance about their clinical evaluation. Orphan devices are medical devices or accessories used for diseases or conditions affecting only a small number of individuals each year. Find out how you can join this new pilot here 👉 https://lnkd.in/dcsvryJu

📢 Participate in the EJP RD Survey! 🌍 We are thrilled to announce the launch of the survey aimed at assessing the knowledge and impact of Rare Diseases research (data) resources and tools provided by the European Joint Programme on Rare Diseases (EJP RD). 🧬🔬   As a member of the Rare Diseases research community, your input is invaluable. This survey will provide a better understanding of how effectively the gaps in rare diseases research have been addressed and will guide our future efforts in data processing and service provision.   Why Should You Participate? Share your insights and challenges in the field of rare diseases research. Influence the direction of EJP RD’s resources and tools. Contribute to the upcoming European Rare Diseases Research Alliance partnership.   Take the Survey Now! 👉 https://lnkd.in/epr8W4pW Together, let’s advance the field of rare diseases research! 🚀 #RareDiseases #Research #EJPRD #Survey #DataScience #HealthcareInnovation