James Lind Alliance

Did you know that about 40% of the Association of Medical Research Charities (AMRC) members have been involved in James Lind Alliance (JLA) Priority Setting Partnerships (PSPs)? Check out AMRC's latest blog post to find out more about the JLA and the involvement of AMRC members in JLA PSPs! https://lnkd.in/e-GZ8UW6

Lining up the priorities of doctors and researchers with the needs of patients and families can be a difficult task. Murdoch Children's Research Institute's (MCRI) Associate Professor Rachel Conyers is leading a new partnership and survey, centred around the journey of young cancer and blood disorder patients who undergo bone marrow transplants in Australia and overseas. The survey, which follows the principles of the James Lind Alliance, will ensure that the voices of clinicians, doctors, researchers and families with a lived experience can all be heard equally. “Research on the effects of treatments often overlook the shared interests of patients, carers and clinicians...questions that they consider important are not addressed equally and many areas of potentially important research are neglected," Associate Professor Conyers said. “Following the James Lind Alliance method will help us to ensure that those who fund health research are aware of what really matters to families. Uncovering these key priorities will enhance and improve the delivery of bone marrow transplants in children and improve patient’s quality of life.” To take the survey or to find out more 👉 https://direc.to/mm_P #MCRI #MedicalResearch #Cancer #Oncology #Transplant #BloodCancer Rachel C. Peter MacCallum Cancer Centre VCCC Alliance Victorian Paediatric Integrated Cancer Service

Sepsis Awareness Discussion, Westminster Hall Commons 📌 Yesterday the Westminster Hall Commons discussed sepsis awareness within the UK. Within his portion of the debate Robin Swann, MP for South Antrim, referenced Sepsis Research FEAT and the James Lind Alliance's top 10 priorities for sepsis research. These priorities will shape the future of sepsis research that will shape the future of sepsis treatment and care, with the goal of saving tens of thousands of lives each year. Thank you Robin for using your platform to share this with your fellow Members of Parliament. To watch the whole debate, head to the link below (timestamp 16:30 - 17:30 pm) 👇 https://lnkd.in/edkFwisu Helen Grant OBE Graham Leadbitter Richard Lochhead James M. Alison Bennett

It's #WorldMentalHealthDay2024 today. The recently completed Cardiomyopathy UK James Lind Alliance research priority setting partnership, identified the need for more research into the emotional and psychological impacts of living with cardiomyopathy as its number one research priority. To find out more about the #psp take a look 👇

About 40% of AMRC members have been involved in James Lind Alliance (JLA) priority setting partnerships, which identify and prioritise the research areas that matter most to people affected by the health condition or area of focus. Read about the JLA's 20-year history on our blog.

📢New Top 10! We are excited to announce that the Spinal Muscular Atrophy (Europe) PSP has announced their Top 10. Here's what people who live with SMA, carers and healthcare professionals identified as the most important uncertainties for future research to investigate: https://lnkd.in/eVCgi682 For more information about the Spinal Muscular Atrophy (Europe) PSP, established by SMA Europe, visit: https://lnkd.in/e4QsZA68

Do you have experience of childhood bone marrow transplant as a parent, patient or professional? The Bone Marrow Transplantation in Paediatrics (Australia) PSP want to know what questions you have. Complete the survey: https://lnkd.in/gnrM7EEQ

Could you lead research into Paediatric Emergency Medicine? We're offering #ResearchFunding to address the priorities identified in the latest James Lind Alliance Top 10. Find out more and apply 👉 https://lnkd.in/etHyhv5N

The Addiction Mission PSP still needs your help to identify the Top 10 priorities for research into the treatment for and the recovery from addiction! If you or someone you care about has any experience of addiction, complete the survey to help influence future research into addiction: 🔗https://lnkd.in/eJWwxqid The survey is also available in an easy read format: 🔗 https://lnkd.in/e7XTstJd

Did you know… The James Lind Alliance (JLA) is named after a pioneer of clinical trials?   In the 1700s, there were many conflicting ideas about how to treat the deadly disease scurvy. James Lind, a Scottish naval surgeon, decided to confront this uncertainty by treating his patients within a clinical trial comparing the proposed remedies. To do this, he allocated two sailors to each of six different treatments for a period of 14 days. His trial showed that oranges and lemons were dramatically better than the other supposed treatments!   Today, by bringing together patients, carers and clinicians, JLA PSPs identify and prioritise evidence uncertainties of their own.   Happy birthday James Lind!