Kidney Research UK

Calling for action in Scotland! Yesterday we hosted an event in Edinburgh to launch our Scotland Chronic Kidney Disease (CKD) Action Plan. This plan has been developed over the last 12 months by a working group chaired by Professor Jeremy Hughes and includes patients, GPs, nephrologists and industry observers. The plan makes 19 recommendations on how the diagnosis and treatment of CKD can be improved in Scotland. The Minister for Public Health and Women’s Health, Jenni Minto MSP, spoke at the event alongside our chief executive, Sandra Currie, and kidney patient Angela Riley, who shared an emotional account of what it’s like to live with CKD and to be on dialysis. It was great to hear the Minister publicly welcome the plan. Here's to seeing CKD prioritised in Scottish government and healthcare policy. Read about the action plan: https://bit.ly/48C0fJu

A new device has been designed for patients to capture kidney cells in their urine at home. The Cell Catcher collects kidney cells which are present in the urine of patients with rare genetic disorders and diseases such as Bardet-Biedel syndrome (BBS). In the UK, BBS affects approximately 1 in 100,000 babies born (BBS UK) and at present, there is no cure. This new, non-invasive method will allow researchers to learn more about these conditions from across the country and could lead to personalised treatments. Read what this will mean for kidney patients here: https://bit.ly/40Tl5m3 [Image description: A Cell Catcher box packaging is in the background with the contents of it in front. On the left is a white and mustard cup and to the right is a white and mustard lid.]

Still time to get your bids in. We also have two NEW fantastic prizes 👇 - Two hour dance lesson with Strictly come dancing pro Nadiya Bychkova - Aston Martin Vantage Performance Driving Experience Click here to see the full list: https://lnkd.in/ecknqjvd Be quick as the live auction pre-bidding closes at 12pm and the silent auction closes as 11pm today!

At our annual conference Driving Discoveries 2024, NURTuRE was highlighted as a key resource to speed up the search for more effective, personalised approaches to the diagnosis and treatment of kidney disease. NURTuRE contains biological samples and linked healthcare data from patients living with chronic kidney disease (CKD) patients and idiopathic nephrotic syndrome (INS). You can find more information about NURTuRE and how to apply here: https://bit.ly/3As1caM

We are calling on the Scottish Government to right a 20-year wrong! Our new action plan comes 20 years after the then-Health Secretary turned down an opportunity to publish a plan for chronic kidney disease (CKD). We assembled a dedicated working group, including nephrologists, GPs, and patients, who made 19 recommendations to minimise preventable CKD and kidney failure, prioritising the health of more than 600,000 Scots thought to be living with CKD. Read the full action plan here: https://bit.ly/48C0fJu [Image description: A quote from Professor Andy Rees sits on a light pink background with a picture of Andy in the forefront. The quote reads "We believed back in 2004 that the only way to ensure people with chronic kidney disease had quick and equitable access to the right treatment was through a national plan. The Health Minister at that time told us that a national plan was not the best way forward and that the Scottish Government would instead seek alternative ways to drive improvements for people with CKD. Twenty years later and that positive change is yet to happen." 'Professor Andy Rees, former president of the Renal Association of Great Britain and Ireland' sits below the quote in bold writing.]

We have joined forces with The PKD Charity to further research into polycystic kidney disease (PKD). Therefore, a new role is available to be the next PKD consortium lead to oversee and deliver this initiative. The right candidate for this job will have experience in relaying complex concepts across multiple outlets, strong communications skills, and building and maintaining relationships. For the full job description and to apply, click here: https://bit.ly/3Asa00b Closing date: Sunday 1 December 2024 Interviews will be held week commencing 9 December 2024 No agencies please

We are happy to share the results of our joint research, “The Impact of Different Cysteamine Formulations on the Lives of People Living with Cystinosis”. In collaboration with Cystinosis Foundation UK and Metabolic Support UK, we conducted a survey that ran from July to September to better understand how cystinosis and its treatment affect the daily quality of life for those living with cystinosis, as well as their parents and caregivers. Click here for more information on this work: https://bit.ly/3UCcMH8 Thank you to everyone who participated, sharing valuable insights into the challenges faced by the cystinosis community to help us share their voice, as well as shape future support. A grant was received from Chiesi Ltd to support this project.  #Cystinosis #IMD #Study  

The silent and live auction for the Andy Cole Fund Gala is officially open and we have amazing prizes you won’t want to miss! From extravagant to everyday use, there's something for everyone – all available just in time for Christmas! Here’s a sneak peek at some of our standout prizes: - VIP Oasis tickets - Signed Andy Cole Hall of Fame shirt - Four hospitality tickets for The Racing Green at the Formula 1 British Grand Prix 2025 - VIP Prodigy tickets - Afternoon tea at The Swan - Dyson hair straighteners Curious to see what else is on offer? Check out the full list here: https://bit.ly/4faK0pd You must be quick as the live auction pre-bidding closes at 12pm and the silent auction closes as 11pm on Thursday 7 November.

Introducing a brand-new role to our growing charity! We are hiring a commercial contracts and procurement manager to lead on drafting, review and performance of contracts, identification of related risks and training requirements, and all aspects of procurement and compliance. Preferably, you’ll have a background in commercial law with experience and an understanding of commercial contracts, procurement processes and best practices. For the full job description and to apply, click here: https://lnkd.in/efNXVMn9 Closing date: Sunday 1 December 2024 Interviews will be held on week commencing 9 December 2024 No agencies please

Due to the expansion of our marketing and communications team, we are seeking a new head of marketing and communications. You’ll have experience as a marketing and communications leader within the charity sector, with the ability to drive and inspire a team to bring ideas to life. Your main focus will be to significantly grow awareness and engagement with key audiences including patients, supporters, researchers, medical professionals and partners. To find out more and to apply, click here: https://bit.ly/3XpYJGy #Recruitment #Hiring