Think Local Act Personal (TLAP)

Data isn’t just about numbers, it’s about real people and their lives. For people who draw on care and support, data should reflect their priorities and be used to improve their lives. So, we’re calling for a change that puts people at the heart of data practices. And these are the 15 principles that we believe can do that: 1. Approaches to data should be co-produced. 2. The purpose of data must be to improve lives. 3. Data must be used to drive equity and inclusion. 4. Data should relate to things that matter to people. 5. People who draw on care and support should decide what good looks like. 6. Data must be inclusive of every person and every model of care. 7. Personal experiences should be valued alongside numbers. 8. People need choice and control over how their data is handled. 9. People's data should not be used to make money, without consent. 10. People should have access to their own data in accessible formats. 11. Carers should have access to the data of the people they support, if consent has been given. 12. People should be able to verify and update their data easily. 13. Data practices should be regularly audited. 14. Organisations using data must be transparent and accountable. 15. People must have a way to report a problem if their data is mishandled. Together we can make this a reality. Tag someone in the comments who cares about data practices in care and support.

This is what we mean when we talk about co-production... Valuing each person's voice to solve real life challenges. It's more than just a process, it's about relationships that make care and support feel human. Thank you for sharing Isaac Samuels 💜 _______ P.S. If you want actionable tips on co-production, consider signing up to our newsletter. Each quarter we'll send you an email about making care and support work better, including guidance and inspiration about co-production. Join 7,000+ subscribers 👇 https://bit.ly/4en1A8i

💬 'The fact that I have the simple necessity of a roof over my head and a place to call home shouldn’t be seen as extraordinary. I think a change in society’s perception of how and where people who draw on care and support can choose to live their lives would make a big difference.' ✍ In our latest blog of reflections on Making It Real, Rich Amos from the National Co-production Advisory Group talks about the importance of living in a place he calls home, and how his life has changed for the better compared to when he was forced into shared accommodation with people he didn't know. Read Rich's blog in full: https://lnkd.in/dY4QTaEm

Well, what an awesome start to a month in focus for Direct Payments, West Midlands ADASS. People who take a direct payment leading the way, and talking with their personal assistants, social workers in dialogue about working with people, encouraging flexibility, dp workers talking about different ways the money can be managed, very interested to hear about Shropshires approach with a local credit union, Birmingham really shifting the culture across the council to 'direct payments first', increasing uprake but also improving peoples experience and of course outcomes. All in all, loads of positivity and effort going into improving the experience of taking a direct payment and getting back to the original intentions of this policy, that people can maximise the choices they have and be fully in control of their care and support. Bloomin marvellous! Great Job DP network in the West Midlands.

Each and every person should have the opportunity to live their life their way. Good, personalised care and support can play an important part in making this happen. But for many people, their care and support isn’t working as well as it should. This can make it difficult for them to live life the way they want to. That’s where Making It Real comes in. Making It Real is a set of co-produced statements that describe what good care and support looks like. It can be used by anyone who wants to make care and support work better for people, including you! For support and guidance on how you can use Making It Real to spark conversations that change lives, visit the Making It Real website.

For all of us dedicated to improving direct payments, November is a month of hope and positive activity that we can all draw strength from. If you ever feel alone in pursuing this locally, now is the time to get connected and draw on the collective experience and learning of some fantastic people. TLAP's Martin Walker talks about the importance of direct payments and details lots of great things happening in November https://bit.ly/3AtKzva

Love, hope, joy, happiness, belonging, comfort, ambition. These are everyday words, but they’re not words you hear in care and support. Why not? The language of care and support can feel cold and distant, focused on tasks and processes instead of what makes life meaningful. But shouldn't we be talking about love, about joy, and about creating a sense of belonging? Shouldn’t hope and happiness be central to the conversation? The way we speak about care shapes the way we make it real. If we want care and support that really enables people to live good lives, we need to use words that reflect the warmth, joy, and purpose that everyone deserves and has a right to. What other words do you think are missing from care and support? #LanguageMatters

Generative AI is everywhere, from our phones to our cars. But how could it shape the future of social care? We're working with the University of Oxford to find out. At TLAP, we work to make health and social care more personalised, so that everybody can live their life their way. We believe Generative AI tools could play a role in achieving this, but it must be implemented with people who use care and support at the centre of decision-making. Through this work we'll co-produce principles and values that will guide the responsible use of Generative AI in social care. We'll be working closely with the National Co-production Advisory Group to ensure that people with lived experience are at the heart of this conversation. https://lnkd.in/eVGgSC4J

📢 Together with people with lived experience we’ve set out 15 principles and 6 actions to make care data practices more equitable, transparent, and trustworthy. This is a call for change — change that ensures people who draw on care and support are part of the conversation from the start. Because data in care should have one clear purpose: to improve people’s lives. Explore this work https://lnkd.in/e5DMm7Wh

We're proud to host Dementia Change Action Network #DCan #DCan . DCAN harnesses the power of people to tackle key challenges for people living with dementia. As DCAN move into a new strategic phase, their plans will be built on the insights and experiences of people with lived experience of dementia. Here’s how they're making it happen: ✔️ An oversight group of people living with dementia and people working in dementia care and policy. ✔️ Conversations across the country to capture thoughts, experiences, and ideas. ✔️ Co-creating policy recommendations with those who know best. We believe that lived experience is the key to shaping a future that truly supports people with dementia to live life their way. https://lnkd.in/exAYf26N