Young Epilepsy

We're blown away by the amazing drive everyone showed at the Setting Purple Sectors event earlier this week with Chris McCarthy, Alpha Live and Simply Race. On the night over £5000 was raised for young people with epilepsy! And the fun isn't finished yet. There are still some amazing #SettingPurpleSectors prizes that up for grabs: 🏆Broadcasting Coaching Sessions with Chris McCarthy 🏆Signed Racing Sim Rig - signed by all Team Leaders! 🏆Roman Bilinski's Trident team race suit as worn whilst competing in the Formula Regional European Championship by Alpine 🏆Northampton Saints vs Coventry rugby match tickets for 4 people 🏆F1 Series Hand embellished Canvas art 🏆and lots, lots more Bid for your favourite prizes now, or there's still time to donate to the cause. Every contribution helps a young person with epilepsy. https://lnkd.in/efptvysW 📷 Photography: Adam Gumbs Photography

The Big Give campaign is on 3-10 December! This Christmas you can help children newly diagnosed with epilepsy. Pledge your support to donate during The Big Give week and it will be DOUBLED, making twice the difference to children and families affected by epilepsy. https://lnkd.in/e8DKmNce

Are you a young person or parent living in England? Royal College of Paediatrics and Child Health (RCPCH) are working to improve health services for young people and need your help. Take part in this important survey about the future of healthcare. 👉 https://lnkd.in/e_GHVfzg Parents, please help your younger children to answer the questions. Parents can also share your own views here: 👉 https://lnkd.in/dmqrAHsZ

Setting Purple Sectors starts today at 7:30pm! Join the action packed LIVE stream as 15 teams INCLUDING professional racing drivers battle it out in an epic 2 hour race. PLUS we have live interviews with the stars filled with amazing stories, special guests, auctions, polls and plenty more as we come together to raise awareness and funds for a cause that truly matters. Click the link to join the live stream and be part of something special: https://lnkd.in/eu8QcbrJ See you on the grid! #SettingPurpleSectors 👋

We need children to be at the heart of the NHS. As members of the Children and Young People’s Health Policy Influencing Group, we’re supporting this roadmap for the healthiest generation of children ever.

As part of #NationalTrusteesWeek we'd like to welcome our new Chair to the Board of Trustees, Markus H Ruetimann. With a history in strategy, operations and working in the best interest in young people, we look forward to creating a brighter tomorrow for young people with epilepsy together. https://lnkd.in/eCaQR8Jq

We are incredibly appreciative of the wonderful community who took part in the 10,000 steps a day in October challenge. Together they raised over £16,000! Incredible. Whether joining from the start or partway, your commitment made a difference and we celebrate you all!

What do you believe Young Epilepsy should focus on to make the biggest difference? We’re reviewing our priorities and need your feedback! Your experiences and opinions will help us identify key challenges and opportunities, guiding our strategic priorities to ensure we continue providing essential support, improving access to services, raising awareness, and driving research for children and young people with epilepsy. 📝 Take Our Survey: https://lnkd.in/evP36Akt Please complete our survey by 12pm on Thursday, 7 November. Your feedback is invaluable, and you can skip any questions you’re unsure about. Childhood epilepsy can be frightening and isolating, and we want to ensure that every voice is heard. We’re reaching out to young people with epilepsy, their families, health professionals, educators, and supporters to gather diverse perspectives on the most urgent areas of care and support. Your input will help us transform lives! Thank you for your support 💜 #YoungEpilepsy #YourVoiceMatters #EpilepsyAwareness #Epilepsy #EpilepsySurvey

🔬 Calling All Parents and Carers! 🔬 Young Epilepsy is looking for parents and carers to join the E-CURe Network. Your experiences and opinions are invaluable in advancing epilepsy research. By joining, you can directly influence projects that aim to improve the lives of children with epilepsy. Get involved, share your insights, and help shape the future of epilepsy care. Together, we can make a difference. Sign up today: https://lnkd.in/eqR8PdHR

Today is Stress Awareness Day, during Stress Awareness Week, where we're highlighting the progressive work of NHS England's bundle of care for children's epilepsy services. It's focus: to provide support and resources for young people living with epilepsy, paving the way for better stress management and overall positive mental well-being. Learn more: https://lnkd.in/eTWBtUUR #EpilepsyCare #MentalWellbeing #SupportingChildrensHealth