Aortic Hope is a community of Aortic Disease patients, survivors, and caregivers. We Spread Hope, Create Awareness and Provide Support to patients, survivors, and caregivers during the recovery and management of aortic disease.
External link for AORTIC HOPE
3011 LEEFIELD DR
Herndon, Virginia 20171, US
Today marks Aortic Dissection Awareness Day! #aortaed #aortichope #themarfanfoundation
Today marks Aortic Dissection Awareness Day and the start of Aortic Dissection Awareness Week. Share the signs, save lives. #marfan #loeysdietz #VEDS #THINKAORTA #ThinkAortaThinkFamily #AortaEd #aorticdissectionawareness
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When our valves aren’t working properly, our hearts may try to warn us that something’s wrong. #aortaed #aortichope #globalhearthub #heartvalvevoice
Listen to your Heart! Ellen Ross, Managing Director of Heart Valve Voice Canada and Chair of Global Heart Hub’s Heart Valve Disease Patient Council tells us that awareness is shockingly low. Watch now to learn more. Heart Valve Disease is when one or more of the valves in our heart don’t open or close properly. When our valves aren’t working properly our hearts may try to warn us that something’s wrong. Breathlessness, dizziness or fatigue are all signs you might have Heart Valve Disease. But some people have no symptoms at all. This week (Sept 16 – 22) is Heart Valve Disease Awareness Week. Learn more – https://lnkd.in/eX7qxcG #ValveWeek24 #ListenToYourHeart #HeartValveDisease Initiative Herzklappe e.V. Meine Herzklappe Instituto Lado a Lado pela Vida Alliance du coeur A. Heart Valve Voice Heart Valve Voice Canada AEPOVAC Croí Heart & Stroke Charity Heart Valve Voice US hearts4heart Israeli Heart Association Meine Herzklappe Pacientes de Corazón, A.C. The Mended Hearts, Inc. Stichting Hartpatiënten Nederland WomenHeart: The National Coalition for Women with Heart Disease AORTIC HOPE
Great combination of forces! #aortaed #aortichope #marfanfoundation #thinkaorta
I am so excited that Eileen Novins and I are working with Gareth Owens, Carin Andersen and everyone at Think Aorta Think Aorta US and AORTIC HOPE to raise more awareness than ever during Aortic Dissection Awareness Week 2024. We are just getting warmed up ahead of September 19th, and in three days we've already reached 210K people digitally with the signs of aortic aneurysm and aortic dissection. 4K of those people have clicked to learn even more. When everyone commits to #THINKAORTA, countless lives will be saved. Let's go! The Marfan Foundation Think Aorta Global https://lnkd.in/en3ZR8hw Think Aorta US https://www.thinkaorta.us/ Aortic Dissection - The Marfan Foundation https://lnkd.in/e2K53hp4 Aortic Hope https://lnkd.in/edx7_C8g #ThinkAortaThinkFamily #Marfan #LoeysDietz #VEDS #AorticDissectionAwareness
Did You Know Hope Mail started with just four people who received hand-knitted heart pillows? Now, over 300 Survivors/Caregivers receive a small care package from Aortic Hope once a year as a way to acknowledge their Aortaversary and say THANK YOU for their support. Hope Mail is FREE! After you sign up, you will receive a small token of our appreciation once a year during the month of your Aortaversary (the anniversary date of your OHS, repair for Dissection/ Aneurysm or even diagnosis, but you can only pick one date!). Sign up for free here: https://lnkd.in/euzPKBPU #aortichope
Hello, everyone, and welcome back to #AorticDiseaseAwarenessMonth and #HeartValveDiseaseAwarenessWeek! We previously spoke about aortic valve disease and some ways our valves may fail over time. Remind me again: what is it called when an aortic valve becomes too tight? Comment below! Today, we will shift gears a bit and talk about how doctors can help treat aortic valve disease. While mild and moderate disease may be monitored over time with repeat echocardiography and controlling risk factors such as high blood pressure and smoking, once the threshold for severe aortic stenosis or regurgitation is met, the only treatment known to prolong life expectancy and improve symptoms is aortic valve replacement. To learn more about valve types and surgical procedures, click here: https://lnkd.in/eGD3_iay #aortaed #aortichope
It's #AorticDiseaseAwarenessMonth and #AorticDissectionAwareness week. You can download a free Think Aorta poster in Many different languages by going to: https://lnkd.in/ehxuSQZ Download it and order your own assets from the United States by going to: https://www.thinkaorta.us/ #ThinkAorta #ThinkAortaUS #AortaEd #ADA2024
It's #AorticDiseaseAwareness Month, and with thanks to Corrigann Minehan Heart Center, it's a perfect time to share common disease terminology. Here is a sample of some of the more common terms used: 𝗔𝗯𝗱𝗼𝗺𝗶𝗻𝗮𝗹 𝗔𝗼𝗿𝘁𝗶𝗰 𝗔𝗻𝗲𝘂𝗿𝘆𝘀𝗺 (𝗔𝗔𝗔): Significant enlargement of the part of the aorta within the abdomen 𝗔𝗻𝗲𝘂𝗿𝘆𝘀𝗺: A significant dilation (enlargement) of the aorta 𝗔𝗻𝗲𝘂𝗿𝘆𝘀𝗺, 𝗮𝗼𝗿𝘁𝗶𝗰 𝗿𝗼𝗼𝘁: Significant enlargement of the part of the aorta where the aortic valve sits and where the aorta meets the heart 𝗔𝗻𝗲𝘂𝗿𝘆𝘀𝗺, 𝘁𝗵𝗼𝗿𝗮𝗰𝗶𝗰 𝗮𝗼𝗿𝘁𝗶𝗰 (𝗧𝗔𝗔): Significant enlargement of the part of the aorta within the chest (thorax) 𝗔𝗻𝗲𝘂𝗿𝘆𝘀𝗺, 𝗮𝘀𝗰𝗲𝗻𝗱𝗶𝗻𝗴 𝘁𝗵𝗼𝗿𝗮𝗰𝗶𝗰 𝗮𝗼𝗿𝘁𝗶𝗰: Significant enlargement of the part of the aorta that leads from the heart up the front of the chest 𝗔𝗻𝗲𝘂𝗿𝘆𝘀𝗺, 𝗱𝗲𝘀𝗰𝗲𝗻𝗱𝗶𝗻𝗴 𝘁𝗵𝗼𝗿𝗮𝗰𝗶𝗰 𝗮𝗼𝗿𝘁𝗶𝗰: Significant enlargement of the part of the aorta that runs from the neck down the back 𝗔𝗻𝗲𝘂𝗿𝘆𝘀𝗺, 𝘁𝗵𝗼𝗿𝗮𝗰𝗼𝗮𝗯𝗱𝗼𝗺𝗶𝗻𝗮𝗹: Significant enlargement of the part of the aorta within the chest (thorax) that extends into the abdomen as well To check out the complete list, click here: https://lnkd.in/ei4mnk7W... #aortaed #aortichope
Today, we will review the three forms of 𝗱𝗶𝗮𝗴𝗻𝗼𝘀𝘁𝗶𝗰 𝘁𝗲𝘀𝘁𝗶𝗻𝗴 done for aortic disease. 𝗖𝗧 𝗦𝗰𝗮𝗻𝘀: A CT scan gives doctors a 3D picture of your body. It’s essentially having many X-rays all at once. A CT chest and abdomen or ‘CT aorta’ allows for detailed visualization of the entire aorta from the chest down to the groin. CT scans are used to diagnose aortic dissections and to plan for aortic surgery, or as routine imaging for patients with known aortic aneurysms or other known conditions of the aorta. 𝗠𝗥𝗜 𝗦𝗰𝗮𝗻𝘀: An MRI scan is often used as an alternative to a CT scan. MRIs also provide great visualization of the aorta in fine detail. It uses a technology different from CT, which does not involve X-ray radiation. Undergoing an MRI usually takes a longer time and is quite noisy. 𝗘𝗰𝗵𝗼𝗰𝗮𝗿𝗱𝗶𝗼𝗴𝗿𝗮𝗽𝗵𝘆 𝗼𝗿 “𝗘𝗰𝗵𝗼”: An echo uses ultrasound to visualize the heart, its structures, measurements, and function. Echocardiography is quick and helpful in assessing the heart and valves, including the aortic valve and the ascending aorta, as it leaves the heart. A transthoracic echo can be done at the bedside. To learn more about each of these tests, click here: https://lnkd.in/esG6nEws #aortaed #aortichope
We want to share with you Pre/Post Surgical Suggestions created by the community for the community. When it comes to planning a surgery, a lot of thought can go into preparing for it and planning for post-op. We are asking you to take a look at these pre- and Post-surgical suggestions and feel free to add to them by commenting below. Thanks to all of you, this list just keeps growing! https://lnkd.in/eeyDfvZu For additional suggestions, check out our Patient Guide by downloading a copy today.