BDSRA Foundation reposted this
Following more than 6 years of advocacy from our mighty rare disease community, the FDA has established the FDA Rare Disease Innovation Hub. Together - as patients, caregivers, clinicians, industry leaders, researchers, advocates, Congressional champions, and more - we collectively established the need for an infrastructure dedicated to rare disease within FDA. We are so grateful to FDA for responding to our community. On October 16th, FDA is seeking insight and expertise as Rare Disease Innovation Hub priorities are established. ✋ Will you be joining in person or virtually? Are you providing public comments? 👇 Let us know in the comments! We’re eager to see who’s participating and can’t wait to learn from everyone contributing to this critical inflection point for the rare disease community. For more information visit: https://lnkd.in/e7h7CzBN #FDA #RareDisease #InnovationHub #RDIH