Sarepta Therapeutics

We’re lighting up green for limb-girdle muscular dystrophy! Today, our Genetic Therapies Center of Excellence in Columbus, Ohio is glowing with green lights for LGMD Awareness Day. We’re shining bright to show our support for the LGMD community. #LGMD2024

Today is Limb-Girdle Muscular Dystrophy Awareness Day, and we’re wearing lime green to show our support and raise awareness.💚 This year, we’re more committed than ever to supporting the LGMD community and advancing research on these rare neuromuscular diseases. Join us in going green and showing your support. #LGMDAwarenessDay #LimeGreen4LGMD

We are excited to announce the recipients of the 2024 Limb-girdle muscular dystrophy (LGMD) Grant Award Program! Created by Sarepta to help accelerate the LGMD diagnostic journey and enhance participation in genetic testing programs, this year we are awarding more than $100,000 in grant funding. Open to non-governmental and patient advocacy organizations worldwide, this year’s recipients are based in Argentina and Italy. Check out our news release for more details about the program and the recipients. https://bit.ly/4dxyKlc #LgmdDay2024

Duchenne affects the entire family and siblings are an integral part of the #Duchenne community. For that reason, we extend our annual Route 79 Scholarship program to the siblings of individuals with Duchenne. We’re happy to acknowledge Mateo, who is studying Business at the University of North Carolina Chapel Hill. Learn more about the Route 79 Scholarship program and this year’s recipients: https://bit.ly/3TmweXI

We are excited to share that Sarepta was honored with the Transformational Therapy Award at the #BiotechWeekBoston Awards this week. The award, given for our newest therapy for Duchenne muscular dystrophy, recognizes innovation in the rare disease space and efforts to bring much-needed therapies to patients. Thank you, #BWBAwards!

We're continuing our spotlighting of recipients of Sarepta’s 2024-2025 Route 79 Scholarship and are happy to introduce you to Bradon. Bradon is pursuing his passion for entomology at the University of Florida. Every year, through the Route 79 Scholarship program, we acknowledge and support individuals with Duchenne who are taking charge and mapping out their future via educational pursuits. Learn more about the Route 79 Scholarship program and meet the additional recipients: https://bit.ly/3TmweXI

This month we are recognizing recipients of Sarepta’s Route 79 academic scholarship that was designed to help students diagnosed with #Duchenne pursue their post-high school educational goals. Today we highlight Josh, who studies Communications at Texas Christian University and aims to encourage others through his positive perspective. Learn more about the Route 79 Scholarship program and this year’s recipients: https://bit.ly/3TmweXI

We had an amazing time at the Muscular Dystrophy Association (MDA) Muscle Walk of Massachusetts this weekend! More than 70 Sarepta colleagues – along with their families, friends and furry companions – came out to support a great cause. This annual tradition brings us together as #OneSarepta to support the communities we serve while having some fun together. #MuscleWalk #duchenne #LGMD

We are pleased to welcome Deirdre Connelly, seasoned biopharmaceutical executive, to Sarepta’s Board of Directors. Learn more: https://bit.ly/3MNUjD4

This weekend, Team Sarepta will gather to support people living with neuromuscular diseases by participating in the annual Muscular Dystrophy Association (MDA) Muscle Walk of Massachusetts. For our colleague Shawn Marlow, co-lead of Sarepta’s walk team, this event holds extra special meaning. It’s not only an opportunity for Sarepta to demonstrate the company’s mission but also a nod to his great-grandfather, who began fundraising for the #Duchenne community back in the early 1950s. Shawn's great-grandfather was a South Boston firefighter with a big heart and a knack for getting things done. In 1952, he rallied his fellow firefighters to pick up their boots, stand on street corners and go door-to-door to raise money for a local family whose two sons lived with Duchenne muscular dystrophy. In the years since, firefighters across the nation have filled boots and raised hundreds of millions in donations for the MDA. Today, Shawn sees parallels between his work at Sarepta and his great-grandfather’s roll-up-his-sleeves approach. This event, in particular, gives Sarepta employees a chance to show up for the community in a new way. We invite you to read more about Shawn's story and its connection to our #OneSarepta walk team in our Newsroom -- and we'll see you Saturday! https://bit.ly/3RK4I6n