Foundation Fighting Blindness

Foundation Fighting Blindness

Research Services

Columbia, MD 14,633 followers

We are driving research finding treatments and cures for blinding retinal diseases.

About us

The urgent mission of the Foundation Fighting Blindness is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, Usher syndrome, Stargardt disease, Leber congenital amaurosis, age-related macular degeneration, and the spectrum of retinal degenerative diseases.

Industry
Research Services
Company size
51-200 employees
Headquarters
Columbia, MD
Type
Nonprofit
Founded
1971

Locations

Employees at Foundation Fighting Blindness

Updates

  • #ShareYourVision with Krystle Allen, founder of Eyes Like Mine with Pseudotumor cerebri (PTC). Receiving a vision loss diagnosis can feel isolating, but you are not alone. By sharing your journey with #ShareYourVision, you can inspire understanding and connection. https://lnkd.in/e29Pk26z Video Description: Krystle sits in front of a blue backdrop and speaks directly to the camera. The Foundation Fighting Blindness and Share Your Vision logos in the top right corner with text below that reads, “#ShareYourVision.” A blue banner with text that reads “Pseudotumor Cerebri Bilateral Optic Atrophy. Krystle Allen.” appears in the bottom left corner from 0:02 to 0:07.

  • #ShareYourVision with Colin Danna, the Foundation’s Arizona chapter president with retinitis pigmentosa. Every experience with vision loss is unique. Share your journey with #ShareYourVision! https://lnkd.in/e29Pk26z Video Description: Colin sits in front of a blue backdrop and speaks directly to the camera. The Foundation Fighting Blindness and Share Your Vision logos in the top right corner with text below that reads, “#ShareYourVision.” A blue banner with text that reads “Retinitis Pigmentosa. Colin Danna.” appears in the bottom left corner from 0:02 to 0:07.

  • Calling all Foundation Fighting Blindness community members in and around Connecticut! 📢 Don't miss our Vision Seminar at Foxwood Casino on November 2, in partnership with Hope in Focus! Learn about blinding diseases, gain insights from a panel of experts, and discover the power of patient advocacy in advancing research and treatments. Following the Vision Seminar, stay for Dinner in the Dark - an annual fundraising event and unique culinary experience hosted by Hope in Focus! To learn more and to RSVP for both events, visit our website at: https://bit.ly/3C0c4gx Image Description: Dark blue and teal gradient boarder with a white background. The Foundation Fighting Blindness Vision Seminar logo centered at the top with an orange line below it followed by text to the left that reads “Saturday, November 2, 2024, 1:00 p.m. to 3:30 p.m. ET. Foxwoods Casino, Bravo Meeting Room. 350 Trolley Line Blvd. Mashantucket, CT 06338.” To the right is text that reads “In partnership with” followed by the Hope in Focus logo.

    • Dark blue and teal gradient boarder with a white background. The Foundation Fighting Blindness Vision Seminar logo centered at the top with an orange line below it followed by text to the left that reads “Saturday, November 2, 2024, 1:00 p.m. to 3:30 p.m. ET. Foxwoods Casino, Bravo Meeting Room. 350 Trolley Line Blvd. Mashantucket, CT 06338.” To the right is text that reads “In partnership with” followed by the Hope in Focus logo.
  • Our latest Eye on the Cure Podcast episode features Sharon King, co-founder and president of Taylor’s Tale. Sharon talks to host, Ben Shaberman, about her family's journey when her daughter Taylor was diagnosed with Batten disease, a life-limiting, neurodegenerative disease that includes vision loss as a symptom. Learn more about streaming at: https://bit.ly/3WByGM3 Image Description: Dark blue background with Foundation Fighting Blindness logo in the top left and Eye on the Cure Podcast logo in the top right. Teal half circle at the top center with "Ep. 75" inside. Below, text reads, "Listen to the latest podcast episode out now. October 25, 2024." To the left is Ben Shaberman with "Ben Shaberman, Host" beneath. To the right is Sharon King with "Sharon King, Guest" below.

    • Dark blue background with Foundation Fighting Blindness logo in the top left and Eye on the Cure Podcast logo in the top right. Teal half circle at the top center with "Ep. 75" inside. Below, text reads, "Listen to the latest podcast episode out now. October 25, 2024." To the left is Ben Shaberman with "Ben Shaberman, Host" beneath. To the right is Sharon King with "Sharon King, Guest" below.
  • The Foundation Fighting Blindness is headed back to London! Join us at the Smith Centre for a special Vision Seminar hosted by our CEO, Jason Menzo! Learn about the Foundation’s mission to advance research driving treatments and cures for blinding diseases like AMD, retinitis pigmentosa, Usher syndrome, and more. Hear from experts Prof. Michel Michaelides and Dr. Nikolas Pontikos as they share insights into the latest breakthroughs in the field. Don't miss this opportunity to connect with leaders in vision science! RSVP today at: https://bit.ly/3NH8Fpo Image Description: Dark blue and teal gradient boarder with a white background. The Foundation Fighting Blindness Vision Seminar logo centered at the top with an orange line below it followed by text to the left that reads “Saturday, November 16, 2024, 10:00 a.m. to 1:00 p.m. BST." Followed by smaller text that reads "Smith Centre - Science Museum. Exhibition Road, South Kensington, London SW7 2DD, GB." Below, from left to right, are Nikolas Pontikos, Jason Menzo, and Michel Michaelides.

    • Dark blue and teal gradient boarder with a white background. The Foundation Fighting Blindness Vision Seminar logo centered at the top with an orange line below it followed by text to the left that reads “Saturday, November 16, 2024, 10:00 a.m. to 1:00 p.m. BST." Followed by smaller text that reads "Smith Centre - Science Museum. Exhibition Road, South Kensington, London SW7 2DD, GB." Below, from left to right, are Nikolas Pontikos, Jason Menzo, and Michel Michaelides.
  • #ShareYourVision with Tim Smith, the Foundation’s Cincinnati/Northern Kentucky chapter president with retinitis pigmentosa (RP). Tim learned from his father who also had RP. By sharing your story, you can help others understand and learn about blinding diseases. https://lnkd.in/e29Pk26z Video Description: Tim sits in front of a blue backdrop and speaks directly to the camera. The Foundation Fighting Blindness and Share Your Vision logos in the top right corner with text below that reads, “#ShareYourVision.” A blue banner with text that reads “Retinitis Pigmentosa. Tim Smith.” appears in the bottom left corner from 0:02 to 0:07.

  • As VisionWalk season comes to a close, we're excited for the final walks this weekend in Pittsburgh and LA! 💙👟 What a perfect way to wrap up the last weekend of Blindness Awareness Month by uniting our communities and driving awareness for blinding diseases. To everyone who has walked, donated, and shared their stories this year—thank you! Together, we're taking strides toward a brighter future. Let's make these final walks unforgettable! ✨ Register or donate to a VisionWalk near you today at: www.VisionWalk.org #VisionWalk #BlindnessAwarenessMonth #FightBlindness Video Description: Compilation of video clips from various Fall 2024 VisionWalks. White VisionWalk logo on a dark blue background in the top left corner.

  • #ShareYourVision with Fiona Gibbons, co-president of the Foundation’s UK Region with CRB1 related blindness. Help others understand the unique experiences of vision loss by sharing your story. Join the #ShareYourVision campaign at: https://lnkd.in/e29Pk26z Video Description: Fiona sits in front of a blue backdrop and speaks directly to the camera. The Foundation Fighting Blindness and Share Your Vision logos in the top right corner with text below that reads, “#ShareYourVision.” A blue banner with text that reads “CRB1 Related Blindness. Fiona Gibbons.” appears in the bottom left corner from 0:02 to 0:07.

  • #ShareYourVision with Jake Ellis, a nursing student with Usher syndrome type 2A. Jake’s diagnosis doesn’t limit him. Share your unique journey with vision loss and inspire others! Tell your #ShareYourVision story at: https://lnkd.in/e29Pk26z Video Description: Jake sits in front of a blue backdrop and speaks directly to the camera. The Foundation Fighting Blindness and Share Your Vision logos in the top right corner with text below that reads, “#ShareYourVision.” A blue banner with text that reads “Usher Syndrome. Jake Ellis.” appears in the bottom left corner from 0:02 to 0:07.

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