Li-Fraumeni Syndrome Association

In this recent NBC News Today.com story, LFSA co-founder Dr. Robert Lufkin shares insights on surveillance and the importance of early detection to improve outcomes for individuals with Li-Fraumeni syndrome. Families like Sarah and Jack's are all too familiar with managing multiple diagnoses or family members with cancer at the same time. Learn more about LFS at https://lnkd.in/eezVEpNG

Final call for abstract submissions! Poster session submissions are due by September 6 for REACH24, the 7th International LFSA Symposium hosted with PennMedicine and CHILDRENS HOSPITAL OF PHILA, in partnership with the LiFE Consortium. Poster sessions provide a unique opportunity for patient families to connect directly with leading researchers in the field. Learn more at https://bit.ly/LFSAreach24

A steadfast advocate for research and advancements to support those impacted by Li-Fraumeni syndrome, LFSA founder Jenn Perry recently shared her own family story on the Gresh and Fauria show. She and her daughter joined the WEEI Sports Radio Network / NESN The Jimmy Fund Telethon presented by Arbella Insurance Group to support the incredible work of Dana-Farber Cancer Institute.

Special room rates end September 13 at The Inn at Penn. The hotel is conveniently located near REACH24 Symposium venues at PennMedicine and Children's Hospital of Philadelphia, reserve your room today! Details at https://lnkd.in/ejeht4-y

A new voluntary research questionnaire is enlisting participants to help expand knowledge on breast cancer screening after mastectomy in women with Li-Fraumeni syndrome. The effort stems from a break-out session at the 2022 LFS Association Symposium led by Dr. Judy Garber of Dana-Farber Cancer Institute where women discussed concerns regarding imaging on reconstructed breasts. To learn more and participate, visit https://lnkd.in/efFikyUd.

Calling researchers, clinicians & advocates! Submit your abstract today for the REACH24 poster session to share your work and insights. Be part of the 7th International LFS Association Symposium to drive progress and advance efforts for those impacted by Li-Fraumeni syndrome. Join us, Children's Hospital of Philadelphia, Penn Medicine, University of Pennsylvania Health System and the LiFE Consortium in October, visit lfsassociation.org/reach24 for details.

A NEW LFSA PODCAST! LFSA Board Secretary ERICA KIRSCHNER interviews KARA MAXWELL, MD, PhD, Asst Professor of Medicine and Genetics, Penn Medicine, University of Pennsylvania Health System, and SUZANNE MAC FARLAND, MD, Division of Oncology and Cancer Predisposition Program at Children's Hospital of Philadelphia. Learn about the exciting events being planned for our REACH24 Symposium this October and how collaborations with these two leading medical centers are contributing to the progress being made in understanding and treating LFS. And there's more! They also dish on the best of Philly Cheesesteaks!

Registration is now open for REACH24, the 7th International LFS Association Symposium, hosted by PennMedicine and Children's Hospital of Philadelphia in partnership with the LiFE Consortium. The world's largest Li-Fraumeni syndrome conference, REACH24 offers a unique opportunity to engage with leading LFS physicians, scientists and genetic counselors. Discussions, Q&A panels and poster sessions cover crucial scientific and clinical research topics such as emerging therapies, genetics and mental health. In-person and virtual engagement opportunities are available, learn more at https://ow.ly/V4a950SKqHB

We're excited to bring the LFSA community an exclusive webinar on the essential topic of navigating hospital financial assistance programs. With insights from Christy Snodgrass of Dollar For, a national nonprofit organization, the event will help participants learn about eligibility criteria and effective applications to secure financial assistance. Join us on August 5 at 5:30 PM EDT, learn more and sign up now at https://bit.ly/3WnFSvg

The lifesaving benefit of early detection A new study published in the prestigious medical journal JAMA Oncology demonstrates that standardized surveillance of children and young adults with a predisposition to cancer, such as Li-Fraumeni Syndrome (LFS), is an effective strategy for identifying asymptomatic, treatable tumors at their most curable stage across a wide range of cancers. The findings demonstrate successful outcomes in the majority of patients. [Read more https://bit.ly/4eTmg9k]