Lipedema Foundation

The NIH has issued a Request for Information (RFI) to gather insights on strategies addressing obesity heterogeneity across the U.S. This is an excellent chance to raise awareness about Lipedema and contribute to the broader conversation around diverse fat disorders. Here’s how you can get involved: -Share this opportunity within your professional network -Provide your comments and suggestions directly to the NIH Let’s ensure that Lipedema is part of future research efforts! Responses are due by November 29. bit.ly/3YpRa33

Lipedema is a complex condition, and finding research on it can often be a challenge. The Legato Library is a comprehensive, up-to-date digital archive of scholarly works focused exclusively on Lipedema. It offers healthcare professionals, researchers, and patients a one-stop resource for critical research. Explore the Legato Library and access the research that drives better care for Lipedema patients: bit.ly/3NIm1Cs

Don't forget to stop by our booth at the AVLS Annual Congress in Chicago today! We'd love to say hello and tell you more about what we do!

The Lipedema Foundation is excited to be at the AVLS Annual Congress in Chicago! Jonathan Kartt, our CEO, and Erin, our Project Manager, will attend the conference today and tomorrow. We're thrilled to be joining AVLS this year and look forward to connecting with the community, learning from industry professionals, and helping to spread the word about Lipedema! If you're attending, make sure to stop by our booth to say hello and learn more about the work that we do. We hope to see you soon! #AVLS #lipedema #lipedemaresearch #patientadvocacy

We’re excited to share that the 26th Annual State of Georgia Lymphedema Education and Awareness Conference, hosted by the Lighthouse Lymphedema Network, is just around the corner. This year’s lineup includes speakers covering essential topics like fibrosis techniques, lifestyle optimization, surgical options, dermatology concerns, and central lymphatic dysfunctions. Plus, there will be patient stories, networking sessions, and an exhibit hall to explore! Check out this opportunity to learn, connect, and share experiences with fellow patients, caregivers, and healthcare professionals. 👉 Save the date for October 18 - 19 in Atlanta, GA and be part of the movement towards better lymphedema and lipedema care! Patients and caregivers can register at: https://lnkd.in/d-s_uymp Professionals can register at: https://lnkd.in/dXhcPJk9 #LipedemaFoundation #LymphedemaAwareness #LipedemaAwareness

Are you a lymphedema or Lipedema therapist who’s interested in connecting, learning, and sharing insights with other experts? Consider joining the NLN Clinical Focus Group on Lipedema, facilitated by Bailey Maddox, LMT, CLT! 🌟 Bailey Maddox, a Certified Lymphedema Therapist with extensive experience in Lipedema care, will lead this session. All lymphedema and Lipedema therapists of varying settings, geographic location, and discipline are welcome! 🗓️ Date: Wednesday, October 30, 2024 🕛 Time: 12:00 - 1:00 pm EDT 📍 Venue: Online - register here: Events | National Lymphedema Network Submit your questions or topics ahead of time at events@lymphnet.org. Please note: This session will not be recorded. #LipedemaCare #LipedemaTherapists #NLN

"I believe all women deserve pelvic health therapy before and after birth." - Kelly Shroeder, PT, DPT, CLT, MBA Living with Lipedema can bring unique challenges, and one area often overlooked is pelvic floor health. Symptoms like discomfort during daily activities or pressure in the pelvic region may be signs that therapy could help. Curious about the role of pelvic floor therapy in Lipedema care? Explore our latest blog to learn how it could make a difference in your health journey. bit.ly/3Y6W5FT

This article presents a systematic review of 32 studies (containing 1,154 participants in total), which seeks to evaluate six different imaging technologies (modalities) used for diagnosing Lipedema in the legs. The article evaluates findings from the studies and outlines the advantages and disadvantages of each imaging modality. The authors of the study conclude that evidence about the diagnostic performance of currently available imaging modalities is limited, and more rigorous studies are needed. Notably, in the reviewed studies, dual-energy X-ray absorptiometry (DXA) performed strongly in differentiating people with Lipedema from those without Lipedema, though there are few studies to date and replication of and expansion on these findings is an important need. bit.ly/3N5Wqm2

Tune in tomorrow! The next NCLD virtual meeting will be held on September 30, 9:10 AM - 2:20 PM ET via NIH VideoCast and check out the agenda here: https://bit.ly/3Bd1mmj Join the call to hear the National Commission on Lymphatic Diseases, a multidisciplinary panel of experts and stakeholders, discuss strategies to advance lymphatic care and improve care for those with lymphatic diseases, focusing on innovative approaches in healthcare, education, and research. Lipedema Foundation proudly supports this important work. Missed previous sessions? Catch up on key presentations from the past meetings: April 22, 2024: View the agenda: https://bit.ly/3ZyAl78 and watch the event replay: https://bit.ly/3UQf6uV June 24, 2024: View the agenda: https://bit.ly/3XY22E3 and watch the event replay: https://lnkd.in/eiFpC_ik