LymeDisease.org

This issue of the LYME TIMES is dedicated to Patricia Smith, long time president of the LYME DISEASE ASSOCIATION INC. Learn about her four decades of fierce Lyme advocacy through heartfelt tributes from fellow advocates. Other topics included in this issue:  The riddle of persistent Lyme disease Mapping the DNA of 47 strains of Lyme Understanding the Jarisch-Herxheimer reaction (herxing) Fighting to be believed by doctors When Lyme is passed from mother to unborn child ....and more Members of LymeDisease,org have full access to all issues. Click here for the Lyme Times: https://lnkd.in/gYmkeKAq

Rates of babesiosis, a tick-borne parasitic disease, increased an average of 9% per year in the United States between 2015 and 2022. And four in 10 patients were found to be co-infected with another tick-borne illness such as Lyme disease. READ MORE https://lnkd.in/gUtNDZ6d

Methylcobalamin is the active and highly bioavailable form of vitamin B12 needed by many chronically ill people. It's one of the compounds that California's Board of Pharmacy (BOP) may soon restrict. Crystal A. Frost, PhD, co-founder of STOP THE BOP, explains why that's a bad idea. READ MORE https://lnkd.in/gfREGyre

Phyllis Mervine, founder of LymeDisease.org reflects on the legacy of Pat Smith, longtime president of LYME DISEASE ASSOCIATION INC. Our two organizations worked together closely for over 30 years. https://lnkd.in/gikRZn9U

Focus on Lyme and Aces Diagnostics Inc. has announced a breakthrough in Lyme disease diagnosis with a new test that detects the disease at all stages, including the crucial first 14 days post-infection, with over 90% accuracy. Aces Diagnostics is developing and manufacturing this test, aiming for FDA clearance to make it accessible to all patients. LymeSeek™, developed through a collaboration between Tulane University and Focus on Lyme, combines advanced biomarker research from Tulane’s Monica Embers and nine years of intensive work funded by Focus on Lyme. Enhanced by machine learning, this innovative diagnostic promises to reshape Lyme disease detection. Learn More: https://lnkd.in/gb3gq28N

Tufts University researchers have received a $20.7 million grant from the National Institutes of Health (NIH) to try to answer some of the most vexing questions around chronic Lyme disease. The collaborative team will lead the largest NIH-funded prospective study to date, following patients from their earliest diagnosis of Lyme disease in order to better identify why some people go on to develop debilitating symptoms later on. READ MORE https://lnkd.in/gNGfjz_N

When you become a member of LymeDisease.org, it strengthens our collective voice. Your support enables us to continue providing critical information, advocating for better policies, and driving research that can lead to more effective treatments and, ultimately, a cure for Lyme disease. Join us in this vital mission and help us make a difference in the lives of people affected by this insidious illness. Together, we can bring about the changes we so desperately need. https://lnkd.in/gdWq3ezG

Researchers have developed new Lyme testing technology that's not too different from at-home COVID-19 tests. Results could be delivered in 20 minutes. READ MORE https://lnkd.in/gk6avmDz

Patricia Smith--longtime President of the Lyme Disease Association, two-term member of the federal Tick-Borne Disease Working Group, and fierce advocate for Lyme patients--has passed away. Learn more about her tremendous legacy. READ MORE https://lnkd.in/g-CapQBM

Kris Newby, author of Bitten: The Secret History of Lyme Disease and Biological Weapons, delves into early missteps in investigating Lyme. She writes that patients still suffer from the legacy of these errors. READ MORE https://lnkd.in/gZ-_4_3i