Miles for Migraine

A staggering 89% of people with migraine report that the inability to access necessary treatments has negatively impacted their ability to manage their condition. Your voice matters! The National Headache Foundation is partnering with the American Headache Society, The Headache and Migraine Policy Forum, and the Alliance for Headache Disorders Advocacy (AHDA) to support PBM reform in the House and Senate. The HELP Copays Act (H.R. 830/S. 1375), and the Safe Step Act (H.R. 2630/S. 652) have the potential to make healthcare more accessible, affordable, and equitable for all Americans, including those living with headache and migraine. Join us in sharing your experiences with your elected officials at: https://lnkd.in/g9d43apM #MigraineBlackout #MigraineAdvocacy #AccessToCare @AHSheadache @headachemigrainepolicyforum @AllianceHeadache #AdvocateForChange

Join us online or in-person, for the second of our two part education series: Mastering Migraine. During the event, you’ll hear from leading migraine experts who understand the challenges of living with migraine or headache disease. The goal is to provide tools and information that will help you take control of your health. This event is geared toward the person who has been living with migraine and headache disease for years, those who are recently diagnosed, as well as people who are wondering if they might have migraine. Our panelists for the event include renowned headache specialists, a pain psychologist, and a mindfulness facilitator. Don’t miss this chance to learn, ask questions, and connect with a supportive community. We hope to see you there! Info/Sign Up: https://lnkd.in/dA5VHYTC

How does the updated American Headache Society position statement impact patients? A new toolkit from HMPF explains and offers helpful ways to work together toward improving access to preventive migraine treatments. https://bit.ly/3Yr7YGX

“Priya Rama has had migraine attacks since childhood, spending days in bed until the pain and fog cleared. About a decade ago, the Ohio resident and married mother of two decided to paint the colors she saw swirling through her head when it ached. “It felt like angry noise would go away when I was painting,” says Rama, 56, who lives outside Cincinnati. “It allowed me to let go of the anger and frustration I felt.” https://lnkd.in/e8yFQrHa

The world of #migraine is complex and often misunderstood, even though it’s one the most disabling neurologic disorders in the world. Despite its prevalence, this common disease remains deeply stigmatized. Teshamae Monteith, M.D., a nationally recognized headache expert, sheds light on groundbreaking research, pharmaceutical innovations and emerging treatments that aim to reshape the way we think about and treat migraines. Listen on Apple Podcasts: https://lnkd.in/enfgJFyC

Today, my colleague Max and I represented AbbVie at the 1st annual Miles for Migraine Pittsburgh event! Heather Moury, D.O. did a phenomenal job organizing the event. $2,174.90 raised for a fantastic cause. I have no doubt it will be bigger and better next year. I knew nothing about Peters Lake Park and it’s remarkably beautiful. Miles for Migraine

Kudos to Katie Moran and all of the fantastic panelists for raising awareness, and putting a "Spotlight on Migraine" on The Hill Events. Watch the replay here: https://lnkd.in/eWg_bTqY #MigraineAwareness

On Sunday, I participated in a 5k for Miles for Migraine, to raise awareness and money for migraine research and support https://lnkd.in/eCNzGN_m I suffer from intractable chronic migraine. On Thursday, I was up in Hyde Park doing a presentation for the NYC Housing Court Judges Association. Because of my presentation Thursday, I had to make the decision on Sunday not to push myself during the race. Running now makes me sick because of my migraine disease, and I didn't have time for that this week. I needed to (continue to) prepare for my presentation, AND I needed to be at work Monday through Wednesday because of other deadlines. This was what was going through my head as I neared the end of mile 2 on a day that was warmer than I had anticipated and on which I woke up with head pain and nausea that was worse than my average. I decided to walk the rest of the course. This is what it's like living and working with chronic migraine---an invisible disease.

"Little by little, each moment has gained enough inertia to softly tap the next piece, and then the next, and so on. And once enough momentum picked up, I gained my advocacy moment." #migraine #migraineadvocate https://lnkd.in/eNqvUxr9

Is it Migraine? How can mental health professionals support detection and treatment. Virtual workshop, 9/24 at 7pm ET After attending this workshop the learner will be able to: - List 10 symptoms of migraine - List 5 comorbidities of migraine - Describe migraine stigma and list three toxic effects of internalized stigma - List and describe 2 CBT interventions that may be used when treating migraine - Describe the use of biofeedback in self regulation associated with migraine. Learn more and register at: https://lnkd.in/ev2RRY9y