NephCure

NephCure is the leader in advocacy by representing the interests of rare kidney disease patients and their families, both on Capitol Hill and within federal agencies concerned with the study and treatment of these conditions. Our advocacy efforts aim to improve the lives of the patients and families we represent by raising disease-specific awareness and advocating for increased research funding and stronger support for our community. Visit https://champ.ly/yr5EGqOf to send a prewritten letter to your members of Congress!

This #WorldKidneyDay, NephCure remains committed to our mission to empower people with rare, protein-spilling kidney disease to take charge of their health, while leading the revolution in research, new treatments, and care. We're here to recognize our patients, parents, families, researchers, physicians, donors, advocates, volunteers, and supporters for their constant commitment to ensuring no one in this rare space feels alone or unheard. Thank you, our community, for all that you do.

We are kicking off Kidney Month with our partners NephCure to raise awareness about rare kidney diseases. Unlike CKD, rare kidney conditions require specialized care and early diagnosis. We have teamed up to shed light on RKD by comparing symptoms, progression, and treatment options for these often overlooked conditions. Find support and learn more -- you are not alone! https://bit.ly/3FyMpwU #KidneyMonth #RareKidneyDisease #RKD

In honor of Kidney Month, Black Health Matters is partnering with NephCure, the only kidney organization squarely focused on rare kidney disease to drive awareness and ensure those at risk or affected by these diseases receive the right education and support! For more information, please visit https://champ.ly/3tor21n7.

NephCure has been leading the charge to empower those with rare protein-spilling kidney diseases, also known as glomerular diseases, for over two decades. By funding groundbreaking research, providing comprehensive patient support and driving policy change, NephCure is revolutionising care for these complex and often overlooked rare kidney diseases. Read here: https://lnkd.in/esh_nTZW #Glomerular #C3Glomerulopathy #ICMPGN #C3G #RareDisease #KidneyDisease

NephCure's #HealthEquity Conference 2025 didn't disappoint with real conversations around the impact of #KidneyCare on the Black community. Barbara Gillespie, MD, FASN talked to the mother of a #FSGS patient and clinical trial participant with "the kind of smile that looked like hope". #BuildingBridges #ReachFurther #CommunityIsCore AstraZeneca Vertex Pharmaceuticals Travere Therapeutics Boehringer Ingelheim Mallinckrodt Pharmaceuticals Natera Novartis Sanofi Alexion Pharmaceuticals, Inc. Joshua Tarnoff Susan Brisendine Brian Kennedy #MikeLevine Keith D. Terry, M.B.A., CHPC, CFC, CVB, CMHFA Keisha Gibson #RareKidney Fortrea #NephCure25 Ingham Nephrology and Hypertension PC

During #NationalKidneyMonth, we're ensuring no one should face the challenges of rare kidney disease alone. For 25 years, NephCure has been committed to creating a world where all who are affected by RKD are connected to new and better treatments—and one day, a cure. As we move toward this milestone, your support can help us continue creating a future where no patient fights alone. Give the gift of hope: https://lnkd.in/gmCFWN2m

In honor of Kidney Month, PatientsLikeMe and NephCure are proud to join forces in the fight against rare kidney diseases, driving awareness, advancing research, and empowering patients for a healthier future. For more information, visit https://lnkd.in/emQS-UBr

Xtrema's 100% ceramic and non-toxic cookware is a great choice for cooking kidney-friendly meals. This #KidneyAwarenessMonth, we’re proud to partner with Xtrema to raise awareness about rare kidney disease and the importance of safe, non-toxic cookware. All month long, Xtrema is donating a portion of their proceeds to support our mission! Learn more at: https://lnkd.in/dsBS6E8Y

March is National Kidney Month! Here's how YOU can get involved: 🔹Start a Fundraiser. Create your own fundraising page and encourage your community to support rare kidney disease patients. Visit https://champ.ly/AXBAkveB to learn more! 🔹Make a Donation. Even a small contribution can make a big impact on those living with rare kidney disease. Visit https://lnkd.in/gSCiAF7N to learn more! 🔹Share your Story. Tell others why this cause matters to you and use #KidneyMonth2025 to spread awareness. Visit https://lnkd.in/gSCiAF7N to learn more!