Pediatric Brain Tumor Foundation

Today marks the first day of #BrainTumorAwarenessMonth, an important time of year to call attention to brain tumors and the unique challenges patients face. As part of the Pediatric Brain Tumor Foundation’s continued commitment to make children with brain tumors, survivors and their families a national priority, we are excited to welcome neurosurgeon and CNN chief medical correspondent Dr. Sanjay Gupta to our Board of Directors.  Dr. Gupta brings extensive clinical, research and journalism experience, including as associate chief of Grady Health System's neurosurgery service, associate professor of neurosurgery at the Emory University School of Medicine's, and as CNN’s chief medical correspondent, to the Pediatric Brain Tumor Foundation community, and we look forward to the many ways he will help drive forward our mission as a valuable and expert advocate for pediatric brain tumor patients, survivors, and their families.  Read the full announcement at https://lnkd.in/eKJCAM85, including quotes from Dr. Gupta, PBTF President and CEO Courtney Davies, and Board Chair Jeffrey Gelfand, and join us in warmly welcoming Dr. Gupta to the Pediatric Brain Tumor Foundation community! #CNN #nonprofitnews #philanthropy

When Graham, a sweet kid who was usually full of energy and loved to eat, started becoming a picky eater and showed no interest in opening his presents on Christmas Day, his parents immediately knew something was wrong. On Christmas morning of 2022, Graham was diagnosed with pilocytic astrocytoma. “I struggled with being confident enough to advocate for Graham when I knew the provider wasn’t working out,” says Graham's mother, Abbie. “But then I realized I could vocalize my concerns and make a change." Initially overwhelmed by so much new information and challenges, Graham's family found the resources and tools they needed through the Pediatric Brain Tumor Foundation's Starfolio Resource Notebook, designed for newly diagnosed families. Now one and half years after diagnosis, Graham's parents have found their voice to advocate for Graham to ensure he receives the care and attention he deserves. As Graham’s journey continues, his parents continue to advocate for Graham’s and their family’s needs, including appropriate medical care, insurance coverage, and both physical and emotional support. Read more about Graham and his family at https://lnkd.in/emw4_Uyb

After Marin was diagnosed with a low-grade glioma, her family was inspired to help other children facing brain tumors by organizing an annual Tumor Trot. This year's event brought together 170 passionate individuals eager to show their support for Marin, her family, and countless others facing pediatric brain tumors. Together, they raised over $17,000 to fund research focused on improving treatments and outcomes for children, with the ultimate goal of finding a cure. We are deeply grateful to Marin's family and their community for their unwavering dedication, showcasing the incredible power of unity when we rally for a cause greater than ourselves. Read the full story about Marin's journey and this year's Tumor Trot at https://lnkd.in/d5rnkBHH. We're excited to see how the community will come together for next year's event!

There are only three hours left until our town hall begins! Don't miss this critical discussion with Senator Chuck Grassley and other key panelists on the latest on the Accelerating Access to Care Act and how it will improve access to quality care across state lines for children with brain tumors and their families, followed by a live Q&A session. Haven't registered yet? Go to curethekids.org/webinar to secure your spot now.

🚨 Only 2 days left to register! Join us on July 24th at 3 p.m. ET / 12 PM ET for our town hall featuring Senator Chuck Grassley. Learn how the Accelerating Kids’ Access to Care Act will improve and simplify healthcare access for children with brain tumors who must travel across state lines to receive the care they deserve. Attendees will be able to ask questions directly to the panelists after the presentation and learn how they can support this legislation's journey through Congress. Register today at curethekids.org/webinar and learn how you can advocate for important childhood legislation like this. We are grateful to The Leukemia & Lymphoma Society and National Brain Tumor Society for co-hosting this event with us.

Thanks to passionate advocates like 12-year-old brain tumor survivor Charlie, who testified before Congress to urge support for the Accelerating Kids’ Access to Care Act, vital legislation is advancing that can improve the futures of children with brain cancer. Charlie's dedication to advocating for this bill is rooted in his own experience of traveling across state lines for specialized care, giving him firsthand insight into the bill's critical importance for countless families facing similar challenges. You can join us on July 24 at 3 p.m. ET / 12 p.m. PT for our upcoming town hall to learn how you can become an advocate and help enhance healthcare access for children nationwide. Register here: curethekids.org/webinar.

⏰ There's less than one week left to register for our upcoming town hall! Join us on July 24th at 3 PM ET / 12 PM PT to learn how you can support this critical legislation that will improve access for children with complex medical conditions who require specialized care across state lines. Attendees will hear important insights about this bill from Senator Chuck Grassley and other key panelists and have the opportunity to ask questions after the presentation. Secure your spot today at curethekids.org/webinar. Thank you to The Leukemia & Lymphoma Society and the National Brain Tumor Society for co-hosting this event with us.

Join us today for #GlioblastomaAwarenessDay to learn about one of the deadliest pediatric brain tumors - glioblastoma multiforme (GBM). This aggressive tumor is often resistant to current treatments, making it crucial to raise awareness about its devastating impact on families. By highlighting the urgent need for research funding, we can drive progress towards better treatments and outcomes for children. Be sure to share this post with four key facts about GBMs to educate your community. If your child has been diagnosed with a brain tumor, know that our community is here to support you. Feel free to email us anytime at familysupport@curethekids.org.

When your child is diagnosed with a brain tumor, it’s normal to feel overwhelmed by so much new information. The Pediatric Brain Tumor Foundation is here to help your family through every step of the journey, from diagnosis to life after treatment. Our Newly Diagnosed Resource Notebook was created with the expertise of leading medical professionals and the invaluable insights of families who have been through similar experiences, designed to help you navigate this difficult time with confidence and knowledge. Download the Newly Diagnosed Resource Notebook today and empower yourself with the information and support you need to make the best decisions for your child's health: https://lnkd.in/e7YTC_De

Every child deserves to achieve their dreams without worrying about limits. By becoming a monthly donor to the Pediatric Brain Tumor Foundation, your steadfast support can make a profound difference in the lives of children with brain tumors and their families. Your dedicated support can help connect a family with a community of support as soon as symptoms start, fund tomorrow’s scientific leaders and bring their groundbreaking ideas to life, and provide critical financial assistance to families overwhelmed by medical costs. Learn more about becoming a monthly donor at https://lnkd.in/e7SkRKQ8.