Pediatric Brain Tumor Foundation

Today marks the first day of #BrainTumorAwarenessMonth, an important time of year to call attention to brain tumors and the unique challenges patients face. As part of the Pediatric Brain Tumor Foundation’s continued commitment to make children with brain tumors, survivors and their families a national priority, we are excited to welcome neurosurgeon and CNN chief medical correspondent Dr. Sanjay Gupta to our Board of Directors.  Dr. Gupta brings extensive clinical, research and journalism experience, including as associate chief of Grady Health System's neurosurgery service, associate professor of neurosurgery at the Emory University School of Medicine's, and as CNN’s chief medical correspondent, to the Pediatric Brain Tumor Foundation community, and we look forward to the many ways he will help drive forward our mission as a valuable and expert advocate for pediatric brain tumor patients, survivors, and their families.  Read the full announcement at https://lnkd.in/eKJCAM85, including quotes from Dr. Gupta, PBTF President and CEO Courtney Davies, and Board Chair Jeffrey Gelfand, and join us in warmly welcoming Dr. Gupta to the Pediatric Brain Tumor Foundation community! #CNN #nonprofitnews #philanthropy

Receiving the news that your child has a brain tumor can feel overwhelming and it can be tough to find hope while preparing for the journey ahead. Our upcoming webinar, featuring pediatric brain tumor survivor Dr. Matt who's "in the business of hope", will help you define what hope is and connect to it authentically when it feels like the odds are stacked against you. Register now at curethekids.org/webinar to join us for this important discussion and learn how you can cultivate a mindset full of hope on Wednesday, September 18 at 2 PM ET / 11 AM PT.

Although pediatric low-grade gliomas are sometimes described as “benign,” these “benign” tumors have life-altering consequences that can take away the ability of a child to achieve the life they dreamed of. No child should have their dreams stolen by a brain tumor diagnosis. With your help, we’re working to create a world where childhood brain tumors are more quickly diagnosed, treatments are safe and effective, and patients not only survive, but thrive and live the lives they dream of. Make your gift today at https://lnkd.in/eeZzkzfs

The Pediatric Brain Tumor Foundation is proud to support TippingPoint Biosciences' innovative research aimed at making a breakthrough for DIPG (Diffuse Intrinsic Pontine Glioma), a rare pediatric brainstem tumor that is untreatable and terminal, usually within months of diagnosis. The complexities of DIPG pose significant challenges for treatment options and research, making this novel research from TippingPoint critical for finding effective therapies. Alongside The Sontag Foundation, Yuvaan Tiwari Foundation, and American Cancer Society we're working together to shape the future of DIPG treatment and advancing research that could change lives. There’s no cure without collaboration, and we’re committed to supporting TippingPoint to accelerate groundbreaking treatments that will improve the lives of children facing this devasting brain tumor. Read the press release at https://lnkd.in/d6xHqCZw.

This September, you can rally your community in support of children battling brain tumors and help them achieve their dreams by downloading the Pediatric Brain Tumor Foundation's #ChildhoodCancerAwarenessMonth toolkit. This toolkit provides essential facts and statistics about pediatric brain tumors to help you educate your friends and family while inspiring them to raise awareness and take action this month. Explore different ways to get involved from hosting a local event to sharing awareness graphics on social media, every effort counts. Together, we can bring hope to those who need it most. Visit https://lnkd.in/djuPy9FX to download the toolkit and support children with brain tumors and their families.

Every child deserves to live a life without limits and achieve their dreams. But, every day, pediatric brain tumors threaten kids’ dreams, futures, and potential. Today marks the beginning of Childhood Cancer Awareness Month and all throughout the month, you can take action to help these children turn their dreams into a reality. Join us in supporting children facing brain tumors by starting a fundraiser, raising awareness in your community, or making a direct donation. Together, we can advance research and provide vital support to patients and their families. Find ways to get involved at https://lnkd.in/edZTER3B

Action against pediatric brain tumors starts with awareness and since Childhood Cancer Awareness Month begins tomorrow, you can get a head start by sharing this post on four unforgettable facts to your community on why it's crucial to support children and their families. Your support can fund research that promises not just survival, but the ability to thrive. And it ensures families have the educational, emotional, and financial resources they need during difficult times. Show your support for progress toward ending childhood cancer by donating at https://lnkd.in/ebqTZ4v5

The grief that comes from losing a child to a brain tumor can be incredibly overwhelming and immense. There is no timeline for grief, nor is there a correct way to grieve over the loss of your child. Today on #NationalGriefAwarenessDay, we acknowledge every parent, caregiver, and family member navigating this difficult journey whether it's been a few days or many years. If your child or sibling passed away from a brain tumor, know that the Pediatric Brain Tumor Foundation community is here for you today and every day. Our Online Bereavement Support Group offers a safe environment where bereaved parents and caregivers can share difficult feelings, empower each other, and learn healthy coping skills. If you're interested in joining, you can learn more at https://lnkd.in/eQRkqwS6

In March 2023, two-year-old Trey was rushed to the emergency room due to severe vomiting and extreme fatigue, only to be diagnosed with stage 4 atypical teratoid rhabdoid tumor (ATRT) brain cancer, a rare and aggressive form of brain tumor. Throughout his treatment, Trey and his family faced numerous challenges, including a difficult search for a compatible bone marrow donor, with only a 29% chance of matching. In response, his parents organized a donor drive to encourage more African Americans to donate, aiming to make a meaningful impact on families facing similar struggles. Trey was declared cancer-free in November 2023, but recent scans in August revealed the tumor's return. Despite this setback, his mother, Ebony, remains optimistic, stating, "It is important for people to know that Trey is still fighting and continues to smile through the storm." Learn more about Trey's inspiring journey and his family's efforts to raise awareness for ATRT at https://lnkd.in/eMuC52Zg.

Last Thursday, we were joined by Dr. Chrissy Salley and parents Anne and Nils who talked about the benefits of palliative care for children facing a brain tumor. In this clip, Dr. Salley debunks common misconceptions about palliative care and how important of a role it can play alongside other treatments that your child receives. Learn more about palliative care and gain a stronger understanding about the differences between palliative care and hospice by watching the full webinar at https://lnkd.in/d28WE8hk