PSC PARTNERS SEEKING A CURE

We are so pleased that the WIND-PSC study sponsored by PSC PARTNERS SEEKING A CURE and PSC PARTNERS SEEKING A CURE CANADA is receiving local press coverage! https://lnkd.in/gFTMtN6h

Today is Global #PSC Awareness Day! We stand with all of the PSC organizations around the world working to find treatments and a cure for this rare liver disease while providing education and support to the PSC community. Together, we truly are stronger! #PSCaware #PSCAwarenessDay

#PSCaware #PSCPartners2024 #PSC #liverdisease

Stricture - abnormal narrowing of a body passage which can slow or obstruct the flow of body fluids. Inflammation, cancer, or scar tissue may cause stricture Get info: CLICK WEBLINK IN BIO AND NEWS AND RESOURCES TAB ON HOMEPAGE #PSCaware #PSC

Brooke, the mom of a #PSC daughter who is not in need of a liver transplant, is in the process of being approved to make a living liver donation to someone in need before she ages out of eligibility. At the Conference, she was in the lunch line and noticed the t-shirt of the woman directly in front of her. The shirt said, "I need a liver." It was Michelle. Both women are the same blood type. They now are going through the process of seeing if it's a match, so Brooke can make a directed donation to Michelle. Wow! These amazing women have agreed to allow us to follow their story. More soon. #PSCPartners2024 #PSCaware #OrganDonation #DonateLife PSC PARTNERS SEEKING A CURE CANADA

During the Saturday Night Gala at the 2024 PSC Partners 20th Anniversary Annual Conference, folks lit the night with candles to show our unity and support for everyone in the #PSC community. It was a lovely moment during an amazing weekend. We know people are excited to see more photos from the event. Watch social media tomorrow for a sneak peek. We will be sharing a longer photo compilation video soon. Recordings of sessions will also be available. Be sure you're on our mailing list to receive that information: https://lnkd.in/g5x2Pjdt #PSCPartners2024 #PSCaware

Day one of our 20th Anniversary Annual Conference was a success! Check out watercolor #4, a portrait of Conference Co-Chair Dr. Tom Karlsen created yesterday by Board Vice Chair Matt McMurtry. #PSCaware #PSCPartners2024

Ricky Safer has launched the 20th Anniversary Annual PSC Partners Conference saying, “Once we launched PSC Partners and held our first conference in 2005, attended by 84 enthusiastic supporters, we were well on our way to success!” #PSCPartners2024 #PSCaware

We are so grateful for the support of our Corporate and Community Sponsors for the upcoming 2024 PSC Partners 20th Anniversary Annual Conference. We couldn't do it without you! Cincinnati Children's Mirum Pharmaceuticals, Inc. Ipsen GlaxoSmithKline Consumer Healthcare, L.P. Chemomab Therapeutics Pliant Therapeutics HepQuant, LLC Rectify Pharma #PSCaware #PSCPartners2024

We are so grateful for the support of our Corporate and Community Sponsors for the upcoming 2024 PSC Partners 20th Anniversary Annual Conference. We couldn't do it without you! Cincinnati Children's Mirum Pharmaceuticals, Inc. Ipsen GlaxoSmithKline Consumer Healthcare, L.P. Chemomab Therapeutics Pliant Therapeutics HepQuant, LLC Rectify Pharma #PSCaware #PSCPartners2024