Smith-Kingsmore Syndrome Foundation

👻🎃 Happy Halloween from all of us at the Smith-Kingsmore Syndrome Foundation!🎃👻

October is ADHD (Attention Deficit/Hyperactivity Disorder) Awareness Month. ADHD can be difficult to diagnose, particularly for individuals with intellectual disabilities or a genetic condition like SKS. But some of our community have been diagnosed or have benefited from ADHD interventions (medical and behavioral). For our SKS families, check out these resources to learn more about ADHD diagnosis and interventions: www.chadd.org www.add.org

October 29th is International Day of Care and Support. Carers for individuals affected by rare disease are definitely holding up more than their fair share of the sky, and support is desperately needed. Caring for the carers is long overdue! https://lnkd.in/eebg7xia

🩷 Today is World Mental Health Day! Smith-Kingsmore Syndrome comes with a heavy mental load for individuals and their families. Many days are a struggle just to get through. Or it can be hard to really enjoy the good times when you're worried about what might come next. The Courageous Parents Network has some great resources about coping and caring for the whole family when you have a loved one with a serious condition: https://lnkd.in/eRf8zGBK

It's National Postdoc Appreciation week! Shoutout to the fantastic postdocs doing work on Smith-Kingsmore syndrome. Early career researchers are so important to the rare disease community!

In honor of International Children’s Growth Awareness Day, the Overgrowth Syndromes Alliance (OSA) would like to emphasize the importance of not overlooking overgrowth+ in individuals. View our OSA bifold (linked below) to learn more and access a list of overgrowth syndromes: https://lnkd.in/eWwGtafd Malan Syndrome Foundation Tatton Brown Rahman Syndrome (TBRS) Community Inc. SOTOS SYNDROME SUPPORT ASSOCIATION Smith-Kingsmore Syndrome Foundation #OvergrowthSyndromesAlliance #OSA #DontOverlookOvergrowth #StandardsofCareinRare National Organization for Rare Disorders Global Genes

It's our 5th Smith-Kingsmore Syndrome Awareness Day today! So proud of what our community has achieved in five short years. Please help us keep the momentum by donating today! https://lnkd.in/gV3Z3Ahf

Just in time for Smith-Kingsmore Syndrome Awareness Month, an exciting article highlighting groundbreaking research supported by the Smith-Kingsmore Syndrome Foundation! Thanks to our community for participation in the study and the generous donations that help made this possible! And gratitude to Carlos Prada, Andrew Liu, Carolyn Serbinski and our broader research network for supporting our mission to find treatments and a cure for SKS! https://lnkd.in/eDMetH3u

🩷 On August 1st we kick off our FIFTH International Smith-Kingsmore Syndrome Awareness Month! Join us to celebrate our community and raise funds to accelerate SKS research. 🩷 Your Help = Our Hope! Click here to set up a personal fundraiser today! https://lnkd.in/eSsUvkyQ

🧡 It's International Self-Care Day! SKS life can be really hard, and REAL self-care can feel out of reach on many days. Sending love to all our families and hope for some care and respite for you 🩷