The Coalition to Transform Advanced Care (C-TAC)

C-TAC’s 2024 National Leadership Summit was held last week in Washington, DC to a packed gathering of thought leaders, changemakers, and policy decision-makers seeking to transform care for people with serious illness and provide support for their families and caregivers. We thank our speakers and attendees for their participation. View Summit Highlights >> https://ow.ly/u43J50TVNuP

The The Coalition to Transform Advanced Care (C-TAC) does such critical work bringing together all the stakeholders to transform how we care for advanced illnesses, and works tirelessly to advance policy toward that goal. Given the silos we have in our healthcare system, C-TAC serves as a critical bridge between government at all levels and healthcare providers across the entire spectrum. We gleaned so many insights from the C-TAC Annual Leadership Conference last week. • Red or blue, policy matters, and behind the partisanship we see on TV, there are many behind the scenes on both sides of the aisle working to advance healthcare policy, from the expansive Olders American Act which brings us programs like Wheels on Wheels to state-level Caring for Caregivers Act for tax relief. • As we move toward comprehensive care models with interdisciplinary teams, staffing challenges will compound. It is important to optimize staffing by ensuring clinicians are doing above the license work, and other elements can be delivered by non-clinical staff or best of breed partners. • Measurement is a priority. Centers for Medicare & Medicaid Services is prioritizing collecting data in many ways for the GUIDE model. C-TAC is doing great work with TFA Analytics and state government on the Act Index to measure overall performance for advanced illness. • Programs such as GUIDE can only do what the statute allows. Again, policy matters. To that point, it was great to hear that Liz F. built on top of what Adam Boehler built and we are hopeful for continuity with the upcoming election regardless of outcome. It was so meaningful to meet many changemakers and clinicians doing important work for serious illness, including Anna Chon, Kristen G. Schaefer, MD, HMDC, FAAHPM, Heidi Young, MD, Stacey Downey, Lindee Goh, Emily Cane, Lea Tessitore, MSB, MBA, Sandra Clark, MPH, Erika Diaz Narvaez, Diane Ty, Cal Cates, Tonya Saffer, Laura Makaroff, Melissa Singleton, and Leigh Ann Kingsbury. And Torrie Fields in spirit! Thanks Jon Broyles, Joy Braun, Marian Grant, DNP, ACNP-BC, ACHPN, FPCN, FAAN, Luke C. Scuitto and the C-TAC team for an excellent summit! With Jessica Nam Kim

INELDA attended the The Coalition to Transform Advanced Care (C-TAC) National Leadership Summer this week, a conference to connect changemakers working to improve quality of life for people living with serious illness, and their caregivers. As a member of C-TAC, we lend our voice to advocate for the importance of advance care planning, doula integration in the health care system, and increased access to social workers through Medicare billing, and we learn what other partner organizations are researching in the serious illness space. This organization and annual conference has been instrumental to our growth as an organization, both by showcasing dynamic and cutting-edge speakers and by the support it has offered INELDA through quarterly check-ins on our own policy and partner interests. We had meaningful conversations with Cal and Laura from Healwell and enjoyed hearing Senator Angela V. McNight speak. Learn more here https://bit.ly/40d7YeK

It was an honor to share my story at The Coalition to Transform Advanced Care (C-TAC) Annual Summit in Washington, D.C. As a person living in remission for angiosarcoma, a rare, incurable cancer, and serving as a remote caregiver for my beloved Mom, I am grateful for the power of connection that advocates share in magnifying the voices of patients and caregivers for critical policy change. In these uncertain times before key elections, this week showcased the promising bipartisan work that we can and must continue to drive the solutions that all patients and caregivers need. Our shared stories bind and galvanize us, fostering progress and unity. Proud to be a 20-year staff member at the American Heart Association and the State Volunteer President for AARP Colorado, both founding members of C-TAC. Together, we can move mountains and make a significant impact on healthcare policy. Special thanks to Breelyn Wilky, MD whose support has allowed me to live with hope for many years of service yet to come. #ctac #aha #aarpco #caregiving

It's pretty rare that you step into a conference and are surrounded by like minded individuals with a common goal, improving care for people with serious illness. Thank you The Coalition to Transform Advanced Care (C-TAC) and all members that listened, had meaningful discussions, and helped me think how can we, in a joint effort, help improve access to palliative care and support patients in hard decisions and difficult conversations. Epilog (and this doctor) are proud to be a part of this special group of people. Tal Shapsa Heiman Or Bar Tal Ron Sabar Dan Ariely

Energized after the The Coalition to Transform Advanced Care (C-TAC) 2024 summit. To see the power of collaboration across the diversity of healthcare players all dedicated to advancing high quality holistic (mental and physical) care for patients with serious illness, and meeting old and new supporters that are elevating the conversation and addressing the challenges of caregiving. #caregiving #valuebasedcare #innovation #2024CTACSummit

We’re so glad you’re here representing South Dakota!!!!

This week, several members of our team are actively participating and speaking at The Coalition to Transform Advanced Care (C-TAC) Summit. This morning, participants in the pre-summit session had the privilege of hearing from our Innovation lab team J. Cameron Muir, MD Marian Grant, DNP, ACNP-BC, ACHPN, FPCN, FAAN, who delivered compelling insights into our groundbreaking innovation initiatives. Their presentation highlighted the guides we produce, designed to simplify the care journey for patients and their families. These resources are not just informative; they are tools aimed at making caregiver easier and improving the quality of life for those we serve. #healthcare #hospice #innovation #CTAC Learn more about these guides on our website: https://lnkd.in/ehzCK6gi

CAPC's Brynn Bowman, Andrew Esch and Rachael Heitner presented at The Coalition to Transform Advanced Care (C-TAC)'s #CTACSummit2024, sharing insights from our first Annual Palliative Pulse survey. Well done team!    They recently shared the findings at an open on-demand briefing, watch it here > https://lnkd.in/efEqq9iJ

Pearls of wisdom and opportunities for action gleaned from Center to Advance Palliative Care (CAPC) Palliative Pulse Survey presented at The Coalition to Transform Advanced Care (C-TAC) National Leadership Summit: Overall, palliative care professionals are doing more with less Leaders are concerned with team well-being and team leaders were less likely than team members to rate their well-being as good or excellent. Nearly all team leaders experience some level of concern of continued viability of their PC programs, with Northeast region reporting highest concern regionally. Common stressors for palliative care leaders and clinicians: Conflict with “upper management”, team morale, meeting the consult demands, staff turnover, and lack of understanding of what palliative care is by leadership/referring clinicians/the public Palliative care as a field is focused on health equity and equatable access to care AND there is room for more PC leaders to have opportunity to spend time on health equity work. These are the challenges of a field that has established itself. Looking to the future the focus is on sustainability, consistency, and accountability.