Amanda Osowski, MPH’s Post

If you're newly diagnosed with an autoimmune disease, understanding your diagnosis is a crucial step. Visit our site to learn the autoimmune disease basics and explore the science behind them to better inform your conversations with your doctor: bit.ly/4cIPeaH #ImmunologyExplained

Do you have a child with a rare or undiagnosed disease? You will not want to miss this breakout session at TWC on Navigating the Diagnostic Odyssey. Learn more about this session here: https://lnkd.in/gHa3pp36

If you are feeling distressed & have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support from a volunteer at The Wren Project. #thyroiduk #betterthyroidhealth #wrenproject #selfrefer #gravesdisease #automimmune #hasimotosdisease

Diaceutics’ belief is that every patient deserves the right test and the right treatment to positively benefit their disease outcome. In acting out this belief, Diaceutics has helped hundreds of patients with rare diseases by working hard to mitigate the barrier that is misdiagnosis. Through harbouring real-world data, Diaceutics has been able to provide insight into rare biomarkers and identify patients who are eligible for treatment of rare diseases. In doing so, reducing time to diagnosis and subsequently, improving patient’s medical journey. Read the blog below ⏬ #rarediseaseday #precisionmedicine

World Mitochondrial Disease Week starts today! 💚 Join us in raising awareness. The theme this year is ‘Illuminate Tomorrow: Revitalise your energy’. The week aims to increase global awareness and understanding of the disease, affecting 1 in 5,000 people around the world. During the week, we will share short videos each day highlighting the ongoing activities at Abliva.  #WorldMitoWeek2024 #IlluminateTomorrow #mitochondrialdisease In the first video below, meet Regina, mito patient, who talks about how she was diagnosed and about one of her most bothersome symptoms - #fatigue. https://lnkd.in/dUbbwE4D

Plan on submitting an abstract to #ISHLT2025? 📖💡 Get feedback and join the conversation on #ISHLTconnect! The 10 Professional Community discussion forums are open to everyone involved in managing and treating advanced heart and lung disease. Log in today: 🔗 https://bit.ly/4a8qPcU

Diaceutics are proud to be supporting Rare Disease Day this week by sharing our colours and being proud to be blue. As misdiagnosis is one of the main issues rare disease patients face, our latest blog sheds light on the problems that laboratories face in rare disease treatment and how they can help overcome them. Read our blog here: https://lnkd.in/eE-fq7e5

It’s #MensHealthMonth, and while lupus is more common among women, men can also develop the disease. Knowing how to recognize the signs is important. Learn more about the disease, its symptoms, diagnosis, and treatment: bit.ly/aboutlupus #lupus #lupusresearch

Working in life sciences, I see how vital an early diagnosis can be in helping patients get the specialized care, treatment and support they need. This is especially true for people living with a rare disease, whose diagnosis is often delayed. Learn how the industry can help patients with rare diseases overcome early challenges in a recent blog post from Phreesia Life Sciences: https://lnkd.in/eAUUbme3 

In observance of #RareDiseaseDay, Phreesia Life Sciences released a new blog post about the challenges patients with rare diseases experience and ways to support them early in their care journey. Read the blog post: https://lnkd.in/eM-P-A2Q