Pyruvate kinase deficiency (PKD) may be a #raredisease, but it can occur in multiple family members. On this week’s episode of Just Listen, host Dr. Rachael Grace has a conversation with Jennifer and Jerry King who are raising two children, William and Lilly, who have PKD. Tune in here: https://lnkd.in/e6guvkN4 Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by #PKdeficiency. Each episode of the Just Listen: Voices of PK Deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. This podcast is intended for informational and educational purposes only and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Listen, rate, review, and subscribe wherever you get your podcasts!
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On this episode of the Just Listen: Voices of PK Deficiency podcast, host Dr. Grace welcomes Dolores Dumas, a 73-year-old living with #PKdeficiency. Incorrectly diagnosed with non-spherocytic #hemolyticanemia as a teen, she received a definitive diagnosis of PK deficiency during a visit with a new hematologist. Join us for an episode on the importance of self-advocacy throughout the diagnostic journey. Tune in here: https://lnkd.in/gzzwHBvm Just Listen: Voices of PK Deficiency is a podcast about PK deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by #PKdeficiency. Each episode of the Just Listen: Voices of PK Deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. This podcast is intended for informational and educational purposes only, and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Listen, rate, review, and subscribe wherever you get your podcasts! Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD.
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On this episode, Dr. Rachael Grace is in conversation with Dr. Sujit Sheth about iron overload. You’ll learn about iron overload and why it occurs in pyruvate kinase deficiency. Dr. Sujit Sheth explains the potential complications as well as the importance of managing and monitoring iron overload. .. Listen, rate, review, and subscribe wherever you get your podcasts! Or by clicking here: www.JustListenPod.com .. Just Listen: Voices of PK deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. .. Just Listen: Voices of PK deficiency is sponsored by Agios Pharmaceuticals. Visit Agios.com to learn more. .. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. .. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment related questions. .. #RedBloodCellDisorder #HereditaryDisease
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Host Dr. Grace welcomes Dolores, a 73-year-old living with PK deficiency; diagnosed as a teen with non-spherocytic hemolytic anemia. During a visit with a new hematologist, she received a definitive diagnosis of PK deficiency. Join us for an episode on the importance of self-advocacy throughout the diagnostic journey. .. Listen, rate, review, and subscribe wherever you get your podcasts! Or by clicking here: www.JustListenPod.com .. Just Listen: Voices of PK deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. .. Just Listen: Voices of PK deficiency is sponsored by Agios Pharmaceuticals. Visit Agios.com to learn more. .. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. .. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment related questions. .. #RedBloodCellDisorder #HereditaryDisease
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Advocacy is crucial!
Have you listened yet? Hear about the stuff that matters from real teens affected by Thalassemia. On the latest episode of Thal Pals! Available now! .. Available now: https://lnkd.in/g2AuENeb .. Thal Pals: The Alpha Beta Revolution Podcast is intended for patients, caregivers, providers, and the greater community of people who are impacted by thalassemia. Each episode strives to provide listeners with critical education, the latest scientific updates and voices from the thalassemia community. .. Thal Pals is sponsored by Agios Pharmaceuticals Visit Agios.com to learn more. .. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment related questions. .. #RedBloodCellDisorder #HereditaryDisease
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On this episode, Dr. Rachael Grace talks with the King family about the unique challenges of having multiple family members affected by PK deficiency. Jennifer and Jerry King are raising William and Lily, both have pyruvate kinase deficiency and Dr. Grace discusses how they’ve managed the disease with their two children. Listen, rate, review, and subscribe wherever you get your podcasts 👉 bit.ly/justlisten_podlink Just Listen: Voices of PK deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. Just Listen: Voices of PK deficiency is sponsored by Agios Pharmaceuticals Visit Agios.com to learn more. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment related questions. #RedBloodCellDisorder #HereditaryDisease
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Because PK deficiency is rare, it can be difficult to collect information on how the disease and its treatment affect different people. On today’s episode, Dr. Grace speaks with Carl Lander about how The Peak Registry seeks to help doctors and researchers better understand PK deficiency by collecting and assessing information on how patients of all ages are affected. .. Listen, rate, review, and subscribe wherever you get your podcasts! Or by clicking here: www.JustListenPod.com .. Just Listen: Voices of PK deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. .. Just Listen: Voices of PK deficiency is sponsored by Agios Pharmaceuticals. Visit Agios.com to learn more. .. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. .. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment-related questions. The Peak Registry is a global longitudinal study of patients diagnosed with pyruvate kinase deficiency sponsored by Agios Pharmaceuticals, Inc. .. #PKDeficiency #RedBloodCellDisorder #HereditaryDisease
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Listen to PK deficiency advocate and TikTok influencer Karla Chichester dispel some of the biggest myths surrounding Pyruvate Kinase Deficiency with host, Dr. Rachael Grace on this informative and fun replay episode! .. Available now: www.JustListenPod.com .. Just Listen: Voices of PK Deficiency is a podcast about pyruvate kinase (PK) deficiency and is intended for patients, caregivers, providers, and the greater community of people who are impacted by PK deficiency. Each episode of the Just Listen: Voices of PK Deficiency podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the PK deficiency community. .. Just Listen: Voices of PK Deficiency is sponsored by Agios Pharmaceuticals. Visit Agios.com to learn more. .. Learn more about PK deficiency by visiting KnowPKDeficiency.com or connect with KnowPKDeficiency on Facebook: bit.ly/KnowPKD. .. This podcast is not intended as medical advice. Please consult your healthcare team with any treatment related questions. .. #RedBloodCellDisorder #HereditaryDisease
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On this episode of the Cheat Codes podcast, Dr. Z and Dr. C talk to a panel of #sicklecellwarriors who were part of the RISE UP campaign, Agios’ Phase 2 and 3 clinical trial for #sicklecelldisease. The campaign was directed by the warriors to educate the community about the trial, answer any questions they may have, and break down myths about participating in a clinical trial. The panel of warriors includes Teonna Woolford, Dominique Friend, Blaze Eppinger, Golie-Lorenzo Green & Tristian Jones. Tune in here: https://lnkd.in/gD2w9hvG Cheat Codes is a podcast about sickle cell disease and is intended for patients, caregivers, providers, and the greater community of people who are impacted by it. Each episode of Cheat Codes: A Sickle Cell Podcast strives to provide listeners with critical education, the latest scientific updates, and voices from the sickle cell community. Cheat Codes: A Sickle Cell Podcast is sponsored by Agios Pharmaceuticals Inc. Visit Agios.com to learn more. This podcast is intended for informational and educational purposes only, and is not intended as medical advice. Please speak with your healthcare professional before making any treatment decisions. Listen, rate, review, and subscribe wherever you get your podcasts!
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More from AHA including SGLT2 inhibitors, blood transfusion after MI; cracks in the armor of Factor XI inhibitors; and renal denervation are the topics John Mandrola, MD, covers in this week's podcast.
This Week in Cardiology
medscape.com
