Every step counts in the fight against autoimmune blistering diseases! 🌟 From enlightening talks and personal stories to interactive sessions and heartfelt connections, we came together to spread knowledge about autoimmune blistering diseases and to support one another in this journey. 💬 Your presence and involvement mean the world to us and bring us one step closer to a future where no one has to face these challenges alone. 🌍🤝 Let's continue to raise awareness, advocate for better treatments, and support each other with strength and compassion. 💪💜 Visit www.aibdf.in for more information! 🌐 #aibdf #autoimmuneblisteringdiseases #autoimmunedisorder #blister #autoimmunelife #autoimmunewarriors #discussion #autoimmunewarrior #autoimmunedisease #autoimmunediseaseawareness #autoimmunecondition #supportgroup #autoimmunehealth #autoimmunedisorders #autoimmunediseases #autoimmuneawareness #blisters #autoimmuneillness #patientcare #autoimmunefighter
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💧Today, we join the global community in raising awareness for Sjogren’s Syndrome, a chronic autoimmune disease that affects millions of people worldwide. Sjogren’s primarily targets the moisture-producing glands, leading to dry eyes and mouth, but it can also cause fatigue and affect other organs. Here are some key facts about Sjogren’s Syndrome: - It’s an autoimmune disease that primarily affects women. - Common symptoms include dry eyes, dry mouth, and fatigue. - Early diagnosis and treatment are crucial for managing symptoms and preventing complications. If you or a loved one is experiencing symptoms of Sjogren’s Syndrome, visit HB Urgent Care. We are here to provide the care and support you need. Walk-in anytime for fast and friendly service. https://lnkd.in/g9T_xyg Get your COVID Testing today. https://lnkd.in/gC7Kutr #WorldSjögrensDay #AutoimmuneAwareness #HBUCares #SjogrensSyndrome #SupportAndAwareness
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Today, July 10th is Chronic Disease Day! Chronic Disease Day raises awareness about the ways in which we can build a healthier community and expand access to care for those in need. The AHDA wants raise awareness about all chronic diseases today, including those who live with chronic headache disorders. Let's look at chronic migraine as an example. Chronic migraine is so much more than "just a headache." Chronic migraine patients experience 15 or more headache days per month and affects around 3-5% of the U.S. population. This condition can be extremely debilitating. You can participate in raising awareness on this Chronic Disease Day by sharing who motivates you to be your strongest self and live your best life while living with your chronic headache disorder with the hashtag #IStayStrong.
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Digital Media Transformation, Podcaster, Healthcare Advocate, Medical Communications, Patient Advocacy
It’s increasingly clear now that a regular update and in some cases a rewrite of guidelines need to be done. Newer tools, tech and specialities are available to help #healthcare innovate & improve how to treat #patients. Here’s one for clinicians.
It's here! The KDIGO 2024 CKD Guideline Executive Summary was released today in the April Issue of Kidney International (KI). Read the Executive Summary in KI: https://lnkd.in/grYUb6mu Download the PDF: https://lnkd.in/g9-UEiMX The KDIGO 2024 CKD Guideline, based on the best current evidence, indicates exciting new approaches to management strategies and treatment options for people living with #CKD. The goal is to improve symptom management, disease modification, and person-centered approaches while also recognizing the heterogeneity of CKD. The fact that new therapies exist and others are being evaluated heralds an exciting time for people living with #kidney diseases.
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Paroxysmal nocturnal hemoglobinuria (PNH) is a debilitating blood disorder which causes a range of life-limiting symptoms for those affected. We spoke to the Aplastic Anemia and MDS International Foundation (AAMDSIF) to highlight the importance of providing support for patients living with rare diseases Click the link to learn more about AAMDSIF and the strides they are making to improve life for people living with PNH: https://lnkd.in/gZUvmp-T
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Gulf , Levant Market Access & Pricing Manager at Sandoz Middle East. Passionate towards Delivering Value | Developing Sustainable Access Strategies | Healtheconomics | Leadership & Networking
300 Million , is the number of patients with Rare diseases ! In the context of rare disease day , Patient access has more significance. Limited awareness, diagnostic challenges and Limited treatment options can create additional barriers for individuals with rare disorders. It involves increasing awareness but also ensuring that specialized care and resources are readily available to those in need. #Rarediseaseday2024 #patientaccess #awareness
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🌟 Exciting News in Kidney Disease Management! 🌟 📚 Just Released: A Comprehensive Guidance Document on Chronic Kidney Disease (CKD) Management 🔍 Multinational population studies based on CKD-PC 2023 analyses highlight the incremental increase in the association of all CKD complications with worse categories of estimated glomerular filtration rate (eGFR) and albuminuria. 💡 Key Highlights: -Emphasis on the importance of detecting CKD early, especially in high-risk populations. -Recommendations for accurate assessment of GFR and urine albumin-to-creatinine ratio (ACR). -Importance of using validated risk equations to estimate absolute risk of kidney failure. -Comprehensive discussion on delaying CKD progression and managing complications. -Insights into cardiovascular risk factor modification and drug stewardship in CKD. -Optimal models of care, including the value of multidisciplinary teams and advanced care planning. 🔬 Newer data on treating hyperuricemia were evaluated, with no support for targeting hyperuricemia in the absence of symptoms. 📊 Tables provided for "expected" values for common laboratory tests by eGFR to aid in identifying aberrant values. 🚀 Conclusion: This guidance document offers exciting new approaches to CKD management, aiming to improve symptom management, disease modification, and person-centered care. #KidneyDisease #CKDManagement #Healthcare #MedicalResearch #PatientCare #HealthTech #Nephrology #ChronicDiseaseManagement
It's here! The KDIGO 2024 CKD Guideline Executive Summary was released today in the April Issue of Kidney International (KI). Read the Executive Summary in KI: https://lnkd.in/grYUb6mu Download the PDF: https://lnkd.in/g9-UEiMX The KDIGO 2024 CKD Guideline, based on the best current evidence, indicates exciting new approaches to management strategies and treatment options for people living with #CKD. The goal is to improve symptom management, disease modification, and person-centered approaches while also recognizing the heterogeneity of CKD. The fact that new therapies exist and others are being evaluated heralds an exciting time for people living with #kidney diseases.
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The KDIGO 2024 CKD Guidebline Executive Summary.
It's here! The KDIGO 2024 CKD Guideline Executive Summary was released today in the April Issue of Kidney International (KI). Read the Executive Summary in KI: https://lnkd.in/grYUb6mu Download the PDF: https://lnkd.in/g9-UEiMX The KDIGO 2024 CKD Guideline, based on the best current evidence, indicates exciting new approaches to management strategies and treatment options for people living with #CKD. The goal is to improve symptom management, disease modification, and person-centered approaches while also recognizing the heterogeneity of CKD. The fact that new therapies exist and others are being evaluated heralds an exciting time for people living with #kidney diseases.
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Happy Friday, If you or someone you know have been diagnosed with PBC, TODAY is the first PBC Foundation virtual meeting of 2024. I'm proud to facitate this group starting at 12pm. A relatively rare disease, both in the United States and worldwide, PBC affects an estimated 65 out of 100,000 women in the U.S., according to the American Liver Foundation, with symptoms such as pruritis, fatigue and jaundice presenting later in life, most often in patients aged 45 to 65 years. Although there is currently no cure for PBC, medications are available for disease management and to curb progression of liver damage. #LiverHealth #PBCcommunity #PatientAdvocate #raredisease #PBCawareness
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Today is Rare Disease Day! There are estimated to be 7,000 rare diseases affecting between 25 and 30 million Americans. That's 1 in 10! And yet, for many with a rare disease, diagnosis can take years, treatment is palliative, and a cure is unlikely. If you know someone with a rare disease, here are a few tips on how to be an ally: - Don't ask if they have tried XYZ. By the time they are diagnosed, many with rare diseases are experts on their own condition and may even know more than their doctors. - Don't tell them to stay positive. This is invalidating of their lived experience, and the grief they may feel around the loss of their health and the impact that has on their lives. - Do offer specific help. If you want to help, don't put the burden on them to figure out what you can do. Offer something you are capable of doing and let them accept or offer an alternative. - Do listen. Having a rare disease can be isolating which makes having someone to talk to that much more important. #rarediseaseday #disabilityawareness #disabilityrights #womenintech
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It's here! The KDIGO 2024 CKD Guideline Executive Summary was released today in the April Issue of Kidney International (KI). Read the Executive Summary in KI: https://lnkd.in/grYUb6mu Download the PDF: https://lnkd.in/g9-UEiMX The KDIGO 2024 CKD Guideline, based on the best current evidence, indicates exciting new approaches to management strategies and treatment options for people living with #CKD. The goal is to improve symptom management, disease modification, and person-centered approaches while also recognizing the heterogeneity of CKD. The fact that new therapies exist and others are being evaluated heralds an exciting time for people living with #kidney diseases.
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