Resuming roles in July, the new European Parliament and Commission will have a generational opportunity this year to overcome health inequities for people living with rare diseases, shaping policies that could address the urgent need for faster diagnosis and increased treatment options. Soraya Bekkali, MD, our SVP for EUCAN and International Business reflects on the opportunities and risks of this historic period in the region: http://spr.ly/604195Zil
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Today is Rare Disease Day. We stand with Eurordis and the launch of the #ActRare2024 campaign, which outlines the European rare disease community’s eight key policy demands for the EU’s next cohort of decision-makers. We are calling for rare diseases to be a priority of the candidates to the European Parliament, the future European Commission, and all other relevant policymakers. We are calling on the EU to build a true European Health Union for rare diseases, including Treaty amendments to centralise decision-making and improve policymaking. ➡️ https://ow.ly/Tnxy50QIjCB EURORDIS-Rare Diseases Europe | Retina International
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A thought-provoking Expert Talk on "Global Burden of Diseases: Top 10 Public Challenges to Tackle in 2024," happening on 05 April 2024, from 12:30 pm to 01:00 pm. We're honored to host Dr. Jibanananda Mishra, Dean Academic Affairs at RIMT University, who will shed light on the pressing public health challenges facing the world today. Gain insights and contribute to the discourse on global health initiatives. Don't miss out on this impactful session! #ExpertTalk #GlobalHealth #PublicHealthChallenges #DrJibananandaMishra #RIMTUniversity
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World Health Organization's global research agenda for antimicrobial resistance in human health! - Prioritizing 40 research topics for evidence generation to inform policy by 2030. - Guiding policy-makers, researchers, funders, implementing partners, industry and civil society. - Informing antimicrobial resistance policies and interventions as part of efforts to address antimicrobial resistance, especially in low-and-middle-income countries. Read full policy brief World Health Organization #AMR #AntimicrobialResistance
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Today, Commissioner Stella Kyriakides reflected on the paradigm shift that has made health an EU priority as a result of the crisis. Let's work together to ensure that health remains positively on the policy agenda. The next mandate must build on the foundations of the EU Health Union. The European Diabetes Forum (EUDF) proposes 15 concrete recommendations on Early Detection – Equitable Care – Empowering People – Embracing Science and Technology. Our policy recommendations call for improving diabetes care now 👉🏾https://lnkd.in/ej69DBQi
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Professor of Community Health & Wellbeing at The University of Queensland. Creatively blending research excellence, leadership and strategy to empower our most influential thought leaders.
Consumer and community involvement in preventive research and health initiatives should be encouraged and expected. Key systemic barriers must be overcome! As discussed in this new paper in @phrpjournal 👇 https://loom.ly/ODhmOk0
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Another milestone towards the end of the Commercial Determinants of Health The report builds on the Lancet series on the Commercial Determinants of Health, and it explores how commercial interests exacerbate non-communicable diseases, as well as key strategies used by commercial interests to influence NCD-related policies negatively, at both national and international level. The European Public Health Alliance has led Chapter 13, "The power of people's voice matters: the actions that citizens and civil society can take to reduce commercial determinants of NCDs", directed by our Policy Manager on NCD Prevention, Alessandro Gallina. The recent European elections could represent a turning point for addressing the commercial determinants of NCDs and improving our health. https://lnkd.in/ehY3ZFhE #PublicHealth #Europe #StayInformed #StayEmpowered
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📰 The Governing Pandemics Initiative just published a new Thematic Text Comparison between the REVISED Draft of the Negotiating Text of the World Health Organization Pandemic Agreement (7 March 2024) & the Proposal for the WHO Pandemic Agreement (April 2024). Author: Ava Greenup Read now👇 #PandemicAgreement #PandemicAccord #PandemicTreaty
RESOURCES | Governing Pandemics Thematic Text Comparison
governingpandemics.org
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What is the state of the debate regarding global oral health and sugar, and what progress has been made? Find out by reading this BDJ In Practice article: https://lnkd.in/eZjbzVkV
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The WHO published a handbook 📚 on indoor radon in 2009. It is a must-read document with very clear messages about the dangers of exposure to radon gas: https://lnkd.in/gMak-_gk Citation: WHO handbook on indoor radon: a public health perspective / edited by Hajo Zeeb and Ferid Shannoun. ISBN 978 92 4 154767 3
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New report from the WHO Regional Office for Europe shows how #CommercialDeterminants fuel non-communicable diseases and obstruct health policy❌ To address this, the report calls for public health actors to: 🔎 spot commercial conflicts of interest in research and policy design 📶 leverage objective evidence to support regulation of harmful industries 💷 engage in economy & trade policy spaces Full report 🔗 tinyurl.com/5n8xdsbu
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Disabled Social Security Administration
1moWhat upsets me the most is the health care system here and the state of Tennessee does not take SLE lupus seriously and allowing people like myself to go without insurance I'll try to take my QMB away that I was entitled to through Medicare and you know what happens with lupus It attacks here kidneys, liver, respiratory, brain and your heart not to mention inflammation in your joints You know I'm suffering 24/7 in chronic pain and I can't get the help or assistance that I need and it's pretty darn sad that I have to suffer like this at 62 years old.