Alex's Lemonade Stand Foundation’s Post

Research by Children with Cancer UK Around 1,800 new childhood cancer cases are diagnosed annually in the UK. Cancer is a rare disease in children, but it is essential to be aware of the signs and symptoms so that it can be diagnosed early. In this article, we highlight the signs and symptoms to look out for. https://lnkd.in/eTcWYjG8

Bridging the Survival Gap: The Fight Against Childhood Cancer Join the fight against childhood cancer! 🎗️ On International Childhood Cancer Day, we're highlighting the importance of early detection and the role we can all play. Learn more about the WHO's initiative to bridge the survival gap by 2030: #ChildhoodCancer #CancerSurvival #WHOInitiative https://lnkd.in/d7bmuZUM

It's important to understand the differences between childhood and adult cancer. In our latest blog, Chandni Dargan, M.D. explains these distinctions and why specialized care for young patients is so important. 🎗️ Learn more about how childhood cancer stands apart and what it means for treatment and outcomes. Read the full blog now by clicking the link below. 💛 https://bit.ly/3XuZpKO #ChildhoodCancerAwareness #PediatricCancer #SpecializedCare #HopeForOurKids

Research is critical to progress against childhood cancer. NCI supports an array of programs specifically to advance childhood cancer care and has renewed these initiatives and programs over numerous funding periods. Learn more about how NCI programs are making a difference in childhood cancer. #ChildhoodCancer https://go.nih.gov/gf2pZJ2

For parents diagnosed with cancer, often our first thoughts are often of our kids and how we will shepherd them through our cancer diagnosis. Talking to them is necessary but can be difficult and having a book to read together can be helpful. "Books give parents words and pictures to explore challenging subject matter and help them to make connections to their unique situation and family" explains Bright Spot Network's Director of Programs, Carissa Hodgson LCSW, OSW-C in this Yahoo News article. At Bright Spot Network we are huge fan of using books to talk to kids about cancer. Books can be jumping off points, a place to return to, a reference for future conversation, and reading together enhances bonding which is especially important during something like a medical diagnosis. Check out the link below to learn more about how to talk to kids about cancer.

CHILD CANCER AWARENESS Did you know? • Each year, an estimated 400 000 children and adolescents of 0-19 years old develop cancer. •The most common types of childhood cancers include leukemias, brain cancers, lymphomas and solid tumours, such as neuroblastoma and Wilms tumours. •In high-income countries, where comprehensive services are generally accessible, more than 80% of children with cancer are cured. In low- and middle-income countries (LMICs), less than 30% are cured. •Childhood cancer cannot generally be prevented or identified through screening. •Most childhood cancers can be cured with generic medicines and other forms of treatment, including surgery and radiotherapy. Treatment of childhood cancer can be cost-effective in all income settings. •Avoidable deaths from childhood cancers in LMICs result from lack of diagnosis, misdiagnosis or delayed diagnosis, obstacles to accessing care, abandonment of treatment, death from toxicity, and relapse. •Only 29% of low-income countries report that cancer medicines are generally available to their populations compared to 96% of high-income countries. Make a change today 🙏🏻🌷

"Kids deserve better treatments," and we couldn't agree more!! Kudos to Gillian (https://ow.ly/VIJ050QUEhf), former captain of Team Goat, member of the Hope & Heroes community, and a pediatric cancer advocate, for this excellent opinion piece in Newsweek. A very insightful read from a childhood cancer survivor, and we encourage you to share it with others! https://ow.ly/4Uag50QUEXK Gillian's call for a unified approach to cancer research resonates deeply. It's this very spirit that is driving the Hope & Heroes Research Initiative. Our groundbreaking endeavor brings together the foremost pediatric cancer centers across the New York tri-state region, pooling resources and expertise to push the boundaries of our understanding of child and adolescent cancer and serious blood diseases. Curious about how we're revolutionizing pediatric cancer treatment and care? Learn more about our initiatives and the impact we're making in the field. https://ow.ly/HBmR50QUEUH #HopeandHeroes #ChildhoodCancer #BloodDisorders #Osteosarcoma #PediatricCancerResearch

Cancer survivors are true warriors, having conquered cancer only to face a myriad of other challenges that continue to impact their daily lives. Check out our latest research article in Nature, Scientific Reports: “Mapping the Supportive Care Needs and Quality of Life of Adult Survivors of Childhood Cancer at a Comprehensive Cancer Center in the Middle East.” This study is the second in a series of three, with our first study examining the unmet supportive care needs among adult cancer survivors. Published in Cancers. Our research is dedicated to understanding these challenges and improving the care for cancer survivors in Jordan and the Middle East. A big thank you to the incredible co-authors especially: Rana Damsees Haneen Abaza, MSc, ACRP-CP® Khawlah Ammar Dr. Amal Al Omari and everyone who has contributed & supported this journey! #CancerResearch #ChildhoodCancerSurvivors #Cancer #Survivors #SupportiveCare #QualityOfLife #Nature #ScientificReports

Our top research priority is to find effective and kinder treatments for children with cancer. That is why we’re on a mission to help children like Samuel, who was diagnosed with high-risk medulloblastoma, a childhood brain cancer, in February 2023 when he was five years old. "We know just how important CCLG’s work is, especially for researching effective but kinder treatments that don’t leave survivors with a lifetime of long-term effects." "Life was turned upside down for us and Samuel’s two brothers when we were told he had a brain tumour. The tumour was removed in a long operation, but a few days later, we were given the devastating news that it was cancer. Soon after, we found out that it had spread and that there was another spot of disease elsewhere in his brain, making his condition high-risk of relapse after treatment, rather than the standard risk we were originally told. This meant the treatment would need to be more intensive and would more likely have significant long-term side effects." "Samuel suffered long-term effects from the tumour and operation and continued to vomit many times a day despite anti-sickness medications. At times, things were so bad even tube feeding didn’t work, and he had to be fed intravenously." "Samuel will finish treatment in early 2024. He amazes us every day despite having suffered and had some truly bleak days, he always bounces back and pushes himself to get back to Lego and the other things he loves." Our Children’s Brain Tumour Research Fund supports pioneering new research into childhood brain tumours, improving our understanding of these cancers and finding new, less damaging treatments. Help make a difference at: https://bit.ly/3MiLb9N #BrainTumourAwarenessMonth