Here's a thought experiment - What defines an MS expert?
One response is that it's an individual with many years of research and clinical expertise. Indeed this is one way to consider MS expertise.
There is another way to look at MS expertise - through the lived experience of people with MS. Viewing expertise through this lens means that there are nearly 3 million MS experts worldwide.
People with MS must be engaged to bring their unique perspectives and expertise to inform our drive to cure MS. During last year's ECTRIMS MSMilan 2023 Congress we saw a great example of what this engagement can look like.
The ECTRIMS Patient Community Day brought together people with MS, NMOSD, and other demyelinating diseases, researchers, and patient organization leaders for conversations about progress, challenges, and opportunities for impact.
In this ECTRIMS podcast, National MS Society leadership volunteer Bonnie L. Higgins and I joined Brett Drummond on the ECTRIMS podcast for a conversation about the ECTRIMS Patient Community Day. We shared our thoughts as a person living with MS (Bonnie) and a patient organization leader (Tim) on the importance of creating these opportunities for collaboration between patients, researchers, and organizations.
Thanks to ECTRIMS and Brett Drummond for inviting us to share our thoughts on this important initiative.
Together we are stronger.
#ms #multiplesclerosis
VP, Corporate Communications and Investor Relations at Tenaya Therapeutics
2moGood to see some familiar faces at Team Alumis and thrilled for patients that autoimmune conditions such as lupus are at last getting renewed attention and hope!