bluebird bio’s Post

Today June 19, we join the rest of the world in commemorating World Sickle Cell Awareness Day. Sickle Cell disease is an inherited blood disorder that affects millions of people. It disrupts the body's production of healthy red blood cells, leading to various complications. Sickle cell disease has a lot of misconceptions surrounding it because of lack of knowledge about the disease. We are adding our voice to the many voices raising awareness today, let’s take a moment to celebrate, appreciate and show kindness to people living with sickle cell. #sicklecellawarenessday #worldsickkecellday #scdawareness #voice #awareness

#OnlineFirst: Intellectual function and memory in children with moyamoya disease: relationship between Wechsler Intelligence Scale and Benton Visual Retention Test scores and regional cerebral blood flow. https://lnkd.in/edPeTiW8

Did you know that ALS, also known as amyotrophic lateral sclerosis, affects nearly 30,000 people in the US alone? Let's unite to raise awareness for this disease and support those bravely fighting it. #ALS #ALSAwareness #ALSAwarenessMonth

#PulmonaryArterialHypertension (#PAH) is recognized as high blood pressure in the lungs and can result in right heart failure. The disease can affect women and men, at any age, regardless of ethnicity. We’re following the science this #WorldPHDay and every day to further research and learn more about this rare disease. #inventingforlife 

Shades for Migraines Day is an impactful awareness campaign dedicated to highlighting the struggles of those living with migraines. On this day, participants are encouraged to wear sunglasses, symbolizing solidarity with migraine sufferers who often find relief from their symptoms through reduced light exposure. By sharing photos of themselves wearing shades on social media with the hashtag #ShadesForMigraine, people around the world can unite to raise awareness about this debilitating neurological condition. Migraines affect over 1 billion individuals globally, with women being three times more likely to experience them than men. This condition significantly impacts quality of life, leading to severe headaches, nausea, and heightened sensitivity to light and sound. Despite their prevalence, migraines are often misunderstood, misdiagnosed, and under-treated. Many sufferers do not receive the appropriate medical care, leading to chronic pain and associated conditions like anxiety and depression. By participating in Shades for Migraines Day, we can foster greater understanding and support for those affected, emphasizing the need for more research, better treatment options, and comprehensive care strategies. 💜

🚨 The latest report of International Longevity Centre - UK reveals that gender, ethnicity, and deprivation are pivotal factors limiting access to heart valve treatment for structural heart disease in the UK. 📖 Dive into the full report for a detailed exploration of the disparities and the urgent need for targeted interventions. 👉 Find the full report here: https://lnkd.in/dEtugEHv #EUSHDcoalition #earlydetection #awareness #healthcare

Are you ready to share your story on #RareDiseaseDay? Make sure to mark your calendar to be a part of this global movement! Your voice matters in raising awareness and advocating for equity for those with rare diseases, including sickle cell. #ShowYourStripes 

World Multiple Sclerosis Day 🧠🌍 Today, we stand together to raise awareness about Multiple Sclerosis (MS), a chronic autoimmune disease affecting millions worldwide. Let’s amplify the voices of those living with MS and support ongoing research to find better treatments and, ultimately, a cure. Remember, every step we take brings us closer to understanding and conquering this condition. #multiplesclerosis #autoimmunedisease #chronicdisease

My Art of Living with Cystic Fibrosis ¦ How to live with a hereditary disease as an author or artist Living with cystic fibrosis has shaped every aspect of my life, from my daily routines to the way I create. It’s a constant companion, one that demands attention, care, and resilience. Yet, through this journey, I’ve discovered that the challenges of a hereditary disease can also become the source of profound inspiration. #cysticfibrosis #motivation #inspiration #artvideo #artwork #howto #livingwithart https://lnkd.in/dWcfnAFa

Reflecting on life's journey, I'm struck by the unpredictability of sickle cell disease. One moment, everything seems fine, and the next, a simple change in weather can trigger a painful crisis. Living in a country where rain and cold are constant companions adds another layer of challenge. This reality highlights the need for greater awareness and support for those living with sickle cell. It's not just about managing the physical symptoms but also navigating the emotional rollercoaster that comes with it. To all my fellow warriors, I see your strength and resilience every day. Let's use our voices to raise awareness about sickle cell disease and advocate for better understanding and resources. Together, we can create a more inclusive and supportive environment for everyone affected by this condition. #SickleCellAwareness #SickleCellAnaemia"