bluebird bio

Congrats to Cooley's Anemia Foundation on 70 years of supporting the beta-thalassemia community. Thank you for everything you do for people living with beta-thalassemia and their families.

Did you know that caregivers of young sickle cell warriors experience significantly greater burdens compared to the general population?    Throughout #SickleCellAwarenessMonth, we're sharing stories from warriors and caregivers of sickle cell warriors that highlight aspects of #sicklecelldisease that are often overlooked.    Meet Andre and Cynthia, parents to a winged warrior and founders of Discovering Moorer2life, as they share their perspective on the emotional and mental health impacts that caregivers face.

Did you know avascular necrosis affects approximately 10% of people living with sickle cell disease, with the actual prevalence likely higher than the numbers reported. Throughout #SickleCellAwarenessMonth, we're sharing stories from warriors and caregivers of sickle cell warriors that highlight aspects of #sicklecelldisease that are often overlooked. Learn more from Kemba, a caregiver to a sickle cell warrior, about her daughter’s experience with avascular necrosis.

Did you know that in a survey of over 2,000 people living with sickle cell disease, 65% of respondents reported experiencing fatigue in the previous month? During #SickleCellAwarenessMonth we're excited to share a series of stories from warriors focused on raising awareness of aspects of #sicklecelldisease that are often overlooked. The first feature shares the story of Andrè Marcel Harris, a sickle cell warrior who shares his daily battle with fatigue while managing sickle cell disease.

Join us in chirping and cheering Sarah Alspach on as she represents bluebird bio on the Timmerman Traverse to the summit of Mt. Kilimanjaro.   Sarah and other life sciences leaders are raising funds and awareness for Sickle Forward, a nonprofit dedicated to bringing newborn screening and basic treatment to children living with sickle cell in Africa. Direct matching funds will go towards SCD in the U.S. Learn more about her trek here: https://lnkd.in/e7ujUm4M

September is Sickle Cell Awareness Month and the flock is flying high looking forward to raising awareness and joining warriors, caregivers, and sickle cell advocates across our communities. Stay tuned to our channels this month as we share perspectives from members of the community on aspects of #sicklecelldisease that are often overlooked and raise awareness on the ways sickle cell has impacted their lives. If you see a bird in your community at a local event, make sure you say hi!

Meet Shanna Gillis, a new member of the bluebird bio flock who works to support our patient advocacy efforts! Shanna is based in North Carolina and when she’s not engaging with our patient communities, she loves the mountains and spending time with her family. Next time you see Shanna at a local event, say hi!

Meet Edsel Bester, the newest bird in our bPACE flock! Learn more about his experience working with the communities that bluebird bio serves and how he defines a perfect bluebird day. If you see Edsel at an upcoming community event, make sure you say hi!

Meet Precious Uwaezuoke! Precious is a bPACE bird from Houston, Texas. Get to know her, as she shares how her past experience and being a sickle cell warrior inspired her to join the flock. If you see Precious at a local event, make sure you say hi!

Fly, Sheri, fly! Meet Sheri Reed, a bPACE bird located in Philly, who shares a few 🏈🎶 fun facts 🏈🎶 about herself and why she joined the flock.