CareOregon’s Post

I am excited to announce my book, Caring in Context, is coming out from Routledge at the end of this month!  The book is based on my fieldwork in India and provides an in-depth look at how the majority of the world experiences cancer, and specifically explores how nurses bear witness and respond to the suffering of others when they have little means to help. The writing style is personal and accessible and intended to appeal to a wide audience.  If you order before March 31st you can save 20% by using this promotional code: ESA33.

This book is a must read for cancer caregivers. Virginia LeBaron, PhD, APRN, FAAN is a highly experienced UVA Health nurse scholar who spent time in India learning first-hand about how cancer is experienced outside of the U.S. #cancercare #nursingresearch #uvanursing

Great Opportunity in Toronto

On this International #ChildhoodCancerDay 2024, we emphasize the crucial role parents, family doctors, and #pediatricians play in detecting childhood cancers early. As advocates for children's well-being, parents can save lives by recognizing the early signs of cancers like #retinoblastoma—an aggressive eye #cancer affecting infants and young children, claiming 7,000 lives annually and causing blindness. ⭐ The most common early indicator is a white glow in the affected eye's pupil, easily diagnosable and highly curable with early treatment: https://bit.ly/47YCt9E 👈 As we always say: #KnowTheGlow! Unfortunately, suffering and death are highest in developing countries, where access to specialist cancer care is limited. In developed nations, the cure rate exceeds 96%, but vision loss remains a challenge. Our "Alphabet of Hope" theme this year, #RbEarlyDiagnosis, aligns with the 2024 #ChildhoodCancer Day's goal of promoting awareness for early detection. Babies with eye cancer can't communicate changes in their vision, relying on caregivers for prompt eye exams and referrals. This year, our focus is on various aspects of early detection, emphasizing signs, challenges, and global efforts. 🌎This Childhood Cancer Awareness Day, join us in spreading the word! Share this post to contribute to the mission of saving children's sight and lives worldwide. #cancercare #visionloss #childhoodcancerresearch #earlydiagnosis #cancerprevention #oncology #pediatriccare #childhoodcancerawareness Know The Glow Childhood Eye Cancer Trust (CHECT)

🎉 2024's #AlphabetOfHope continues with the letter "B!" As we mentioned with the release of "A" two weeks ago, this year's theme is #RbEarlyDiagnosis. Our theme underscores the crucial need for caregivers to recognize early signs of #retinoblastoma in infants and young children. #EarlyDetection, prompt #eyeexams, and strong family support are key to ensuring swift diagnosis and optimal care. By prioritizing these measures, we aim to maximize the potential for saving children's sight and lives on a global scale. 🌎 That being said, the letter "B" in our Alphabet stands for "Bedrock." Early diagnosis is the foundation to effective cancer care. For young children with eye cancer and survivors with second #cancerrisk, education, prompt exams and swift referral are critical to early detection! Follow along all year as we release all 26 letters of the #AlphabetOfHope, and get resources related to each letter on our page: https://bit.ly/419vh7U ⬅️ #earlydiagnosis #cancercare #childhoodcancer #childhoodcancerawareness #childhoodcancerresearch #cancerprevention #pediatriccare #oncology

This International Childhood Cancer Day, we pay tribute to Dr Nayha Gautam’s quest to improve childhood cancer care in the Eastern Cape In the realm of childhood cancers, Wilms tumour, or Nephroblastoma’s, the global resolution rate is approximately 90%. However, a concerning disparity persists in the Eastern Cape, propelling Dr Nayha Gautam on a mission to uncover the reasons behind lower success rates and catalyse positive change. Dr Gautam’s medical journey began with a passion for paediatric surgery, honed during rotations at Red Cross Hospital in Cape Town. Choosing a simpler life, she returned to her roots in the Eastern Cape, where she joined the paediatric surgery department in East London. Despite the challenges of balancing motherhood and a demanding medical career, her unwavering commitment to making a difference in children’s lives, shines through. The Eastern Cape’s unique challenges: At the core of Dr Gautam’s focus is childhood cancer, especially Wilms tumour. Despite its prevalence among children aged one to three, research on cases in the Eastern Cape is notably scarce. This is alarming, given the substantial population of young children under 15 in the province. Dr Gautam emphasises, “Kids travel 200 kilometres, 300 kilometres, or more just to access specialised services.” Only two facilities offer oncology services for paediatric surgeons. Dr Gautam’s research delves into the experiences of children with Wilms tumour. The Discovery Foundation grant will support her research and establish a comprehensive cancer registry. Dr Gautam hopes the registry data will enhance outcomes for children with tumours and inform crucial policy decisions. #DiscoveryFoundation #PaediatricSurgery #InternationalCancerDay

The UAB Health System and Infirmary Health have entered a relationship to bring collaborative, comprehensive cancer services to patients in southern Alabama, Southeast Mississippi and the Florida panhandle. The result of a multi-year planning effort on behalf of the leadership of the two organizations, this partnership was born with the goal of decreasing the burden of cancer, improving outcomes, and expanding cancer scientific discovery through an increased footprint and resources of both organizations. “As Infirmary Health developed its cancer program, Infirmary Cancer Care, we wanted to have a meaningful and care altering partnership that would enable us to continue to offer the highest level of care for our patients,” said Mark Nix, President and CEO, Infirmary Health. “Collaboration and affiliation with the UAB O’Neal Comprehensive Cancer Center, one of the few National Cancer Institute designated Comprehensive Cancer Centers in the country, makes this goal possible, and we are confident our collaborative future with UAB will further our organization’s vision of being the first choice for healthcare in our region.” With the UAB O'Neal Comprehensive Cancer Center serving as the only National Cancer Institute (NCI)-designated comprehensive cancer center in Alabama and Infirmary Health as the largest integrated health system in South Alabama and along the central Gulf Coast, the blending of expertise, resources, and services between the two organizations will foster collaboration in clinical care, basic translational care services, prevention, and early cancer detection among existing and new patients. Read the full story --> infirmarycancercare.org #cancercare #cancertreatment #healthcare #healthcarejobs #healthcareinnovation #healthcareadministration #cancerresearch #healthcarenews

Children’s National researchers recently reported new research findings on the use of IVIG in 15 pediatric POTS with small fiber neuropathy. 93% reported improvement in quality of health, improved functionality (89%), lessened paresthesia (87%), improved functionality (89%), improved school attendance (80%), reduced pain (80%), improved exercise tolerance (60%), decreased brain fog (50%), decreased anxiety/ depression (50%), decreased dizziness/syncope/palpitations (50%), decreased joint pain (50%), decreased fatigue (47%). The researchers note further research is needed to identify optimal IVIG dosing and to explore other immune therapies in POTS. This research was presented as a conference abstract, but the journal charges a fee to read the abstract, which is why we are providing a free summary of the key points. Citation: Clin Auton Res (2023)33: Poster 124. Dysautonomia International is funding other studies on IVIG use in POTS, gastrointestinal dysmotility and Long COVID related dysautonomia. You can help support this innovative research by donating at CureDys.org.

Cancer and Children: A Guide for Parents Cancer in children, while rare, can be overwhelming for families. It’s important to understand the facts, seek the best care, and support your child emotionally. Remember, children are resilient and with the right care, many childhood cancers can be cured. Key Points to Consider: Educate Yourself: Knowledge is power. Familiarize yourself with the types of cancer that affect children and their symptoms. Seek Expert Care: Consult with pediatric oncologists and specialized medical teams to ensure your child receives the best treatment available. Emotional Support: Children are incredibly resilient, but they need emotional and psychological support. Maintain open communication and encourage your child to express their feelings. Positive Outlook: With advancements in treatment, many childhood cancers can be effectively treated, and children can lead healthy, fulfilling lives. Support, compassion, and informed decisions can make a significant difference. Let's work together to support our children through these challenging times. Dr. Amit Kumar Jain - Best Leading Oncologist and Hematologist in Bangalore. MBBS, MD - General Medicine DNB - Medical Oncology For Appointment: 📞 +91 91486 90492 #CancerAwareness #PediatricOncology #ParentingTips #ChildHealth #SupportAndCare #DrAmitKumarJain #DrAmitJainOnco

Livers, like hearts, lungs, kidneys, and other organs, are always in short supply. Black Americans, however, are less likely to receive a donated liver than their White counterparts, and women are less likely than men to get a liver, regardless of need. The odds are even worse for Black and Hispanic children, who for various reasons are half as likely as other kids to receive transplanted livers that could save their lives. And even if they get transplanted livers, they have a lower chance of surviving after surgery. These were among the conclusions of a panel of surgeons and transplant experts who spoke at the 2023 American Association for the American Association for the Study of Liver Diseases (AASLD) #LiverMeeting here. Explore the impact of systemic racism on liver transplant rates for minorities and women in the US by reading more here: https://lnkd.in/ejB6CE4X Thank you, Lauren Nephew, MD, Russell Rosenblatt, MD, MS, MD, David Axelrod, MD, and Anji Wall, MD, PhD, for your valuable contributions to this article. #RareDisease #TheLiverMeeting