Chiesi Group’s Post

Exciting news: new GPER research has been published in Australia! We outline how the current care model impacts disease management and patients' quality of life via a survey of 265 Australian patients and caregivers to capture the experience of managing atopic dermatitis (AD) in Australia. OUR FINDINGS: ➡️ Patients report an unsatisfactory quality of life and a high burden of disease with poor long-term control and low treatment satisfaction. ➡️ They also reported changing spending and saving patterns to fund medical care. https://buff.ly/4bx4Soo

Rare diseases individually affect a small number of people, but collectively they affect more than 300 million people worldwide. They pose significant challenges for patients and medical professionals. The #Medcomms community can play a key role in helping patients with rare diseases by crafting clear, tailored disease information for patients and their families, and by raising the awareness of rare diseases collectively and individually. 📰 Read our interview: To mark #RareDiseaseDay 2024, we spoke with Director of nspm UK, Karen Holmes, to gain insights into how understanding the nuances of communicating about rare diseases can help us address the complex challenges in this significant therapeutic area. https://lnkd.in/gBuem4vu 💪 Rare is Many, Rare is Strong, Rare is Proud! #rarediseases #healthcarecommunications #medicalcommunications #sciencecommunications #rarediseaseawareness #shareyourcolours

1 day to go... Rare Disease Day is an annual observance held on the last day of February (29th of Feb this year) to raise awareness about rare diseases and their impact on patients' lives. It serves as a platform to advocate for the rights and access to treatment for individuals affected by rare diseases, which often lack effective treatments due to their rarity. The day brings together patients, caregivers, healthcare professionals, researchers, policymakers, and the general public to promote understanding, support, and solidarity for those living with rare diseases. Through various events, campaigns, and initiatives worldwide, Rare Disease Day aims to foster collaboration and drive progress in research, diagnosis, and treatment for these often overlooked conditions. #rarediseaseday #patientcentricity #diseaseawareness

Elevate your practice with Functional Medicine! Gain a comprehensive understanding of the various factors contributing to chronic and inflammatory diseases. 🌿🧬 Stay ahead of the curve in patient care and make a real difference in their health outcomes. Join us in the journey towards a more holistic approach to medicine. 👉 https://lnkd.in/gumBkF7J #FunctionalMedicine #ChronicDisease #Inflammation #HolisticHealth #PatientCare.

Today is #WorldLungDay, a reminder of the importance of respiratory health and the ongoing fight against lung diseases. This is particularly crucial for people affected by rare lung diseases, where early diagnosis and treatment can make vital difference. #EUCOPE members are at the forefront of this challenge, driving cutting-edge research and innovation to develop life-changing therapies. Through collaboration with researchers, healthcare professionals, patient organizations, and policymakers, personalized medicines are progressing, ensuring people with rare diseases the care they need. #RareDiseases #PharmaInnovation #HealthcareEurope #LungHealth

Discover the “ISN Global Kidney Trials Insights: A Guide for Everyone,” a new ISN initiative for people living with kidney diseases and others interested in kidney-related clinical trials https://lnkd.in/eRpARQ3E The project intends to foster meaningful communication between patients and kidney care practitioners and increase patient participation in clinical trials. #ThisIsISN - Advancing kidney health worldwide. Together.

On #WorldSightDay, we’re highlighting the importance of vision health. K2 Medical Research is focused on advancing treatments for vision-related diseases. #VisionHealth #K2MedicalResearch #K2med

The European ME Alliance (EMEA) has released the findings of a comprehensive survey shedding light on the distressing state of Myalgic Encephalomyelitis (ME, referred to as ME/CFS in some countries) patients across Europe. The report underscores the urgent need for healthcare systems to recognise ME/CFS as a serious physical illness and provide better medical care, financial support, and social services. Early diagnosis and disease management are critical for a more favorable prognosis. Read more: https://lnkd.in/e_eTj6AE #MyalgicEncephalomyelitis #ME #MECFS #ChronicIllness

🔬🧬 We support Rare Disease Day 🧬🔬   Today, on Rare Disease Day, we at Excerpta Medica stand in solidarity with the millions of individuals and families around the globe affected by rare diseases. This day serves as a vital reminder of the importance of medical research, awareness, and advocacy in uncovering the mysteries of over 6,000 rare diseases impacting lives worldwide.   Rare diseases, by their very nature, present unique challenges. From diagnosis to treatment, patients and healthcare providers often navigate a complex journey marked by uncertainty. Yet, it is through this journey that the strength, resilience, and hope of the rare disease community shine brightest.   Today, let's renew our commitment to those facing rare diseases. By spreading awareness, supporting research, and advocating for patient care, we can contribute to a future where no disease is too rare to matter.   #RareDiseaseDay #Healthcare #MedicalResearch #PatientAdvocacy #ExcerptaMedica #GoodAloneGreatTogether

🔬 CLA Awareness Day: A Call to Medical Professionals 🔬 Today marks CLA Awareness Day, dedicated to increasing understanding and enhancing diagnosis of Complex Lymphatic Anomalies—a group of rare diseases affecting the lymphatic system, encompassing Gorham Stout Disease, Generalized Lymphatic Anomaly, Central Conducting Lymphatic Anomaly, and Kaposiform Lymphangiomatosis. As healthcare providers, your role in early recognition and treatment of these conditions is crucial. These anomalies can be challenging due to their progressive nature and potential to affect both soft tissue and bones. Awareness and continued education can lead to improved outcomes for patients worldwide. 📚 For more in-depth information and to join the conversation on advancing care for CLA patients, visit bit.ly/CLAawareness. Let's harness our collective expertise to foster better patient journeys and push the boundaries of what's possible in lymphatic disease management. #CLAawarenessDay #MedicalResearch #HealthcareInnovation #LymphaticHealth #CLAawarenessDay #LymphaticHealth #RareDiseaseAwareness #ComplexLymphaticAnomalies