Chiesi Group’s Post

Today, on Rare Disease Day, we join the global movement to observe and raise awareness about rare diseases. It's a day dedicated to supporting those affected and shedding light on the challenges they face. At Caidya we believe in the power of collaboration and making a difference together, so let's unite to unlock the full potential of scientific breakthroughs in rare diseases. Together we can support rare disease patients and their families in overcoming the unique challenges that these conditions present. Join us in observing Rare Disease Day and raising awareness for those who need it most. #RareDiseaseDay #Caidya #RareDiseaseAwareness https://ow.ly/6rfA50QIZFb

The European Reference Networks (ERN) are an important EU initiative to better diagnose, care for and treat people with rare and complex diseases. The ERNs offer patients access to specialized care and crucial knowledge on their rare diseases. In a recent interview, Holm Graessner, Chair of the ERN Coordinators, highlights the significant impact of the ERNs on patient care. Read more on the achievements of the ERNs ➡ https://lnkd.in/gUR8Exfs #rarediseaseday #rarediseases #patientcare #lightupforrare #ERNeu #Europeanreferencenetworks

Today, we would like to draw your attention to Rare Disease Day. Every year, on the last day of February, we globally recognize the impact of rare diseases that affect the lives of countless individuals. While each of these diseases may be rare individually, together they are not - more than 300 million people worldwide are affected by one or more rare diseases. 🌍 It's crucial to understand that these diseases often present significant challenges for those affected and their families. Many rare diseases are life-threatening, chronic, and have no cure. That's why continued research and development efforts are paramount to improving patient outlooks. Let's work together to create a world where rare diseases are not overlooked. Check out the official Rare Diseases Day video 2024 to hear directly from patients: https://lnkd.in/e3w93qUp #RareDiseaseDay #Awareness #Community

May is Vasculitis Awareness Month! Join us in spreading awareness about this rare autoimmune disease that affects blood vessels in the body. Learn more about vasculitis and share your story to inspire others. #vasculitisawareness #raredisease #vasculitis #VasculitisUK #research

Today, we at Teamit stand with the millions worldwide affected by rare diseases, honouring their strength 💪, resilience, and inspiring stories. At the moment, there are 6000+ identified #rarediseases. To support the cause, we're sharing our latest post that discusses the importance of multi-stakeholder collaboration in rare diseases and key take-aways from the recent 37th EURORDIS-Rare Diseases Europe Round Table of Companies. 👉 https://lnkd.in/eCSJDzbb Together, let's raise awareness, advocate for better treatments, and support one another. #rarediseaseday #rarediseaseawareness

Happy #RareDiseasesDay from Label2Enable! Health apps can help manage #RareDiseases and its symptoms - as well as contribute to research through the data they generate.

Make your voice heard! Take the new #RareBarometer Survey on the impact of rare diseases on daily life! This survey is open to people living with a rare disease and their family members from any country in the world. 👉 The Survey is available in 26 languages here: https://buff.ly/3LTo4lF #NCBRS #NCBRSRare EURORDIS-Rare Diseases Europe RARE DISEASES INTERNATIONAL

TODAY IS RARE DISEASE DAY ⚡️💗💚💙 Rare diseases are serious, complex, usually chronic, often life-limiting, and most have no cure. The irony of rare diseases is that many people have them, and they share common experiences with the difficulties they face. People with rare diseases struggle to get appropriate diagnoses and care. There is usually a lack of research on rare diseases, especially those that are not fatal. Having a rare disease can be isolating for the nearly 300 million people living with one of the more than 6,000 identified rare diseases. Learn more about Rare Disease Day and FPA’s participation: https://lnkd.in/dhUVwPwr If you are ready, we invite you to share your #RareDiseaseDay story on your social media and tag the Facial Pain Association. #RareDiseaseDay #RareDiseaseAwareness #RareDiseaseDay2024 #FacialPain #FacePain #ChronicPain #IAMRARE #ShowYourStripes

Today, we stand in solidarity for Rare Disease Day, highlighting the struggles of millions facing rare conditions worldwide. Though these diseases are uncommon, their effects are significant. 🌍 Why It Matters: About 300 million people worldwide battle rare diseases. Our mission to make affordable medicines available to all is deeply aligned with the movement's purpose of working towards equity in access to treatments for people living with rare diseases. Join us in supporting #RareDiseaseDay 2024 and learn more about the global movement. EURORDIS-Rare Diseases Europe #ShareYourColours #LightUpForRare #AccessibleMedicine https://lnkd.in/gk6hbAF

It’s #RareDiseaseDay. Up to 36 million people in the EU live with a rare disease. To tackle rare diseases, the EU has implemented various initiatives aimed at helping improve the diagnosis, care and treatment of patients suffering from rare diseases. One of such initiatives is the establishment of the European Reference Networks (#ERNs) for rare and complex diseases. HaDEA spoke with Holm Graessner, chair of ERN Coordinators, to learn more about how the network is supporting patients living with rare diseases by providing them better access to diagnosis and treatment. https://lnkd.in/gUR8Exfs