👏The Bonnell Foundation Nailed it again! Michigan's PDAB is setting up rapidly.
"Healthcare costs are of course something that impacts everyone- but so is disease. Lawmakers need to find an approach that doesn't put the future of so many potential treatments, and the hope of patients, at risk."
-Laura Bonnell
We couldn't agree more with this statement. Our government, while faced with huge challenges in lowering prescription costs, is putting our lives at risk.
In Colorado they didn't deem Trikafta unaffordable, because they saw the risk that was being taken. They admitted to the fact that it was too large to take on without potentially sacrificing CF patient's access in Colorado. Especially due to the fact that we currently have access.
Everytime we asked for some sort of protection while they were in negotiations with the makers of our medication, they couldn't give it. Not for lack of wanting to, but it was literally not on the table. There was no way to guarantee our safety. There are so many more advancements coming down the line for everyone in the CF community. We have to protect all patients.
Laura asked us to share👇👇👇
📢CF Patients, Caregivers, & Supporters:
If you want to help Michigan fight PDAB, contact Chair Brenda Carter and ask them to adopt amendments that allow for the patient's voice.
***If you have news about PDAB in your state, or want support in rallying advocates, please send us a message. We are not up on each state's progress, but we are glad to answer questions about our experiences in Colorado, and connect you with people who can help. We will be happy to share your PDAB public meeting dates as we did in our state. The Bonnell Foundation is also a reliable source of information.***
General Manager at Biomere (Biomedical Research Models, Inc.)
6moCongrats!