Crystal Creamery’s Post

For the 2nd year, I am supporting individuals and families affected by CACNA1A by participating in the 3rd Annual CACNA1A 5K Run, Walk, and Roll. This cause is near and dear to me, as our daughter Barri, has been diagnosed with this rare disorder at 13 months old. We are asking for your support by making a donation to assist with research for Barri and others affected. The CACNA1A Foundation is dedicated to improving the lives of those affected by CACNA1A-related diseases and accelerating research to find a cure. 100%of the funds go directly to the foundation! Last year we crushed our goal, and this year we hope to exceed our $7k goal! Sign-up here: https://lnkd.in/e-MXYe9p If you plan to walk with us on Sunday, May 19th at Anacostia Park- please register for the walk and order the swag bag, which contains the Tshirt we will be wearing. You can register now through may, however in order to receive the Tshirt, you must order by March 7. If you are not in the area, but still want to donate, please support by giving to my personal fundraising page: https://lnkd.in/ebQDtQxv What is CACNA1A? CACNA1A is a gene that plays a vital role in the communication between neurons in the brain. CACNA1A-related disorders are rare and lifelong conditions that affect the brain. People who have brain differences due to CACNA1A can have a wide range of symptoms or features, but they are united by the fact that their symptoms all are due to differences within the CACNA1A gene. These symptoms significantly impact the lives of the people who live with this disorder and their families. Current options for treating CACNA1A-related disorders are limited to managing and/or treating symptoms. There is no known cure for CACNA1A Why Participate? Individuals and families are affected by challenging symptoms related to CACNA1A every day, including uncontrolled seizures, hemiplegic migraines, cerebellar atrophy and more. There are very limited treatments and no cure. The clock is ticking.

Side effects from cancer treatment are usually generalized as the typical fatigue, neuropathy, hair loss, etc. But as a cancer survivor who later received a kidney disease diagnosis let’s do our part and spread the awareness of National Kidney Month. #candidconversations #kidneyhealth #kidneydiseaseawareness #survivorstories

Superbowl Squares for the kids! In an effort to raise money for the Miles for Miracles Team from Boston Children's Hospital for the 2024 Boston Marathon I am lucky to run in, I am doing a Superbowl squares fundraiser to support these brave kids! $20 per square, 50% of the proceeds supports his fundraising goal, and 50% goes to the winners following each quarter ($250 for 1st, 2nd, 3rd quarters and final score). How it works: Once all the squares have been selected, we will randomly pick numbers from 0-9 for each team in the Super Bowl, and assign that number to a particular row or column. These numbers represent the last number in the score of each team. In other words, if the score is AFC 17 - NFC 14, then the winning square is the one with an AFC number of 7, and an NFC number of 4. Since this is a Fund Raiser, 50% of the proceeds will go to the Charity Organization, and the other 50% will be distributed among the Users with a Winning Square. GET STARTED Use the following links to either enter your picks or show the current picks. Enter Your Picks ($20.00 per square) FIRST Click on the link to choose your squares. https://lnkd.in/e8kB2gty Username: Marathon Password: Chuck Show All Picks https://lnkd.in/eP-xbVq3 THEN Venmo your payment to @chuckblanchette please add comment: Squares for The Kids! Your support means the world. With your help, we can directly impact the lives of these courageous children and their families by: - Providing critical medical care to kids, including those from your community - Offering specialized care for complex diseases, unmatched anywhere else - Backing over 3,000 researchers developing groundbreaking treatments and cures - Funding patient programs like music and art therapy, bringing joy during hospital stays - Assisting patient families in crisis with urgent needs like food, clothing, and housing - Delivering compassionate, leading-edge care to every child in need We're already 64% to our $10,000 goal, and with under 100 days left until the 2024 Boston Marathon, every step counts. Your donation matters—thank you for considering and for being part of this incredible cause! Join us in making miracles happen. Donate today: https://lnkd.in/ezBNJVKe Together, let's support these incredible kids and their families! 🌟 #MilesforMiracles #BostonChildrensHospital #BostonMarathon2024 #DonateForACause #BCH #childcare #pediatrics #pediatriccare #pediatriccardiology #bostonmarathon

Hello Fellow LinkedIns! I would like to invite you to join me to participate in a great cause. On March 24th I will be joining the Leukemia & Lymphoma Society to climb to bring cancer down! This is The Big Climb! I would love all of my contacts in the greater Seattle area to join my team and climb the Columbia Tower with me. Registration is free until January 26th. To join my team, click on this link: https://lnkd.in/gx6P9xXy Once you are on the home page, click on the Register button, then click register. Click on the “Join as a new participant” box. Type in "Cascade Climbers" in the Team Name field, then click on search for a team. Scroll down and click on the Join button next to Cascade Climbers. The team password is 1BigClimb. Enter the Password and follow the instructions. When you get to the Participation Options page, make sure you click on “Climber – FREE thru 1/26 – No fee”. There is no discount code. When you choose a time, choose 10:00 – 11:30 as your first choice, 11:30 – 1:00 as your 2nd choice, and 1:00 – 2:30 as your 3rd choice. You will need to raise $150.00 in order to participate on the day of the event. I will do everything I can to help you towards that goal. If you just can’t join the team, could I ask you to help the team by donating to the team for this important cause? Go to the above link and click on donate, then click on “donate to a team”. Type in Cascade Climbers and hit the search button. Click on the team name then the donate now button. If you have any questions about this great cause and event please PM me. I look forward to climbing with you on March 24!

#SUDEPActionDay2024 1 out of every 150 people with poorly controlled seizures or epilepsy die from SUDEP. Before April 7, 2024, I was unaware of SUDEP (Sudden Unexpected Death from Epilepsy). It wasn't until my brother passed away in his sleep that we learned seizures can lead to this risk. If you know anyone with seizures or epilepsy, please inform them about SUDEP and discuss it with their neurologist. Taking proactive steps can reduce risks and potentially save lives. There are resources out there, it’s a matter of having a conversation first. While it's too late for Jaaden, we can all help others avoid a similar fate. In honor of Jaaden Steward and others who have passed from SUDEP, the Steward family will be hosting a kickball fundraising event on Nov. 16th. We invite all who can to participate. All proceeds will be donated to the Epilepsy Foundation. Information can be found on the website listed below. https://lnkd.in/ewh-Sfua

coming up this weekend is the Race Against Kids Cancer at High Plains Raceway near Byers, CO. Ever want to exercise your inner smite button? Ever want to have the feeling of a Race Steward and set the grid for a race? NOW YOU CAN! NOW OPEN FOR “BUMPING”… Go ahead….you know you want to! Have some fun with your favorite drivers by bumping them up or down the starting grid for Saturday afternoon’s “Fun’d Race”. How do you “bump” folks? Simply go to gridbidsforkids.org, select the driver that you want to bump and the bumping action you want (bump them to the pole position, bump to the back of the grid, or bump them up or down the grid), then add your bump to your shopping cart. Repeat the process for additional driver bumps. You can even include a note to your “bumpee”, just for fun! Then simply check out like you would for any online purchase. Bumping action is NOT limited to RMVR drivers or even just RMVR members--anyone and everyone can have some fun bumping folks! Encourage family and friends to get in on the fun! Bumping has already started….and won’t stop until 30 minutes before the start of each run group’s Fun’d Race on Saturday afternoon. Go ahead….have some fun! GridBidsforKids.org

Have you ever grappled with finding meaning in your professional path? When this former NFL learned that his four-year-old daughter had been diagnosed with stage-four cancer, it profoundly impacted him. However, it also sparked a newfound sense of purpose that altered the trajectory of his life. He made the decision to step away from football and pursue a different career path, transforming his pain into a driving force for change. How have you leveraged challenging or difficult experiences to propel your professional journey forward? Share your thoughts below.

Imagine a world where every child gets the chance to dribble, shoot, and grow both on and off the court. That’s the future we’re building—one where basketball becomes a gateway to brighter futures for young athletes. But here’s the thing: We can’t do it alone, and that’s where you come in! Every donation is a game-changer. It means more than just basketball; it’s the key to: 🏀 Providing FREE basketball training and gear, giving every kid the opportunity to play and improve their skills. 🍎 Offering nutritious meals that keep our players energized and ready to take on challenges. 💪 Building a supportive and inclusive environment where kids can thrive, learn, and grow together. Each dollar gets us closer to creating life-changing moments for these young athletes. Picture this: your support not only helps them excel in the game but also boosts their confidence, teaches them discipline, and sets them up for success in life. It’s about transforming lives and sparking hope, one dribble at a time. Are you ready to make an impact? Hit the link below to join us on this incredible journey. https://lnkd.in/gaCk-p84 Your support means everything—not just to us, but to the kids whose futures we’re shaping together.

April marks Testicular Cancer Awareness Month, a crucial time to shed light on this often overlooked form of cancer. Testicular cancer doesn't discriminate – it can affect anyone with testicles, including men, transgender (trans) women, and people assigned male at birth. With around 2,300 individuals diagnosed each year, awareness is key. Whether you're personally impacted by testicular cancer or simply want to learn more, we're here to provide valuable information and support. Let's join forces to raise awareness and encourage early detection. Together, we can make a difference. https://lnkd.in/eWqiC5nc 💙 #TesticularCancerAwareness #EarlyDetection #HealthAwareness 🎗️