Diabetes Ireland’s Post

Wondering about #patientassistance after OIG’s recent opinion? My Law360 article analyzes this curious opinion, which has special importance for #raredisease. The good news is OIG OKed an independent charity’s 12 patient copay assistance funds. But it took the agency two years to answer. And then OIG gave the opinion a two-year sunset over concerns that next year IRA’s spend caps will upend patient assistance dynamics. The biggest news is the funds were single donor/single product. But OIG emphasized that awards related to donors’ products were no more than 35% of the charity's overall spending. And OIG said a larger allocation would alter its analysis. This seems like a significant departure from settled cases, where almost all of the funding was spent on the donors’ products. Come and explore with me in the article. What do you think? #marketaccess #copayassistance #compliance #lifescience Law360

People living with Type 1 Diabetes can’t pause their healthcare needs during times of crisis. Increasing access to quality care for those in #humanitariansettings is critical.   Managing #T1D requires consistent access to medication, monitoring equipment, and healthcare services — all of which can be severely disrupted during emergencies, forcing many to forgo critical care. This must change.   This week, The Helmsley Charitable Trust is in Athens with International Alliance for Diabetes Action for the 4th Symposium on Diabetes in #HumanitarianCrises. We're discussing accessible care, sustainable financing, and the vital role of community-based organizations in supporting displaced populations and those with difficulty connecting to the health system. Learn more on Helmsley’s work with IADA here: https://bit.ly/4a3kaA4

Did you know that along with PQMD's Guidelines for Quality Medical Donations, we also have helpful resources to assist you with your work? Our portfolio of resources includes: ▫ PQMD's Online Interactive Guidelines Module: https://lnkd.in/e-Xw4NUe ▫ Guidelines at a Glance- a two-page summary document: https://lnkd.in/eKbikXMA ▫ PQMD Guidance for Valuation of Donated Product: https://lnkd.in/eeEbDdEG Check out the video from PQMD member Lily Jones-Herbst, Corporate Partnerships Manager at International Health Partners who explains how PQMD's guidelines support her organization's priority of patient safety! #PQMDguidelines #qualityhealthcare #patientsafety

Congenital Heart Disease(CHD) Awareness Week starts today. CHD is more than a medical term; it’s a journey of courage and resilience, that affects entire families. Here’s how you can observe CHD week with us: ✅Share informative posts about CHD ✅Tag #WomenHeart and #CHDAwareness ✅Provide support by donating to WomenHeart: https://lnkd.in/gATSFbKr

Today is Rare Disease Day, a time to raise awareness and show support for those living with uncommon medical conditions. Let's come together to spread understanding, empathy, and hope. #RareDiseaseDay #enddomesticviolence #endsexualviolence #reintegration #hivaidsawareness #housingfirst #communityresource #nonprofit #newjersey #njac_helps

It’s $5 Friday! Can you spare a minimum of $5 to join us in making a difference with our #SupportStartsHere initiative? Together, we're raising awareness and crucial funds to support Myositis patients worldwide. Here's how you can get involved: GIVE $5 TODAY: Your support matters! Every contribution, no matter the amount, makes a meaningful impact in the lives of Myositis patients. Visit our fundraising page at https://lnkd.in/eP6XRqhd and help us make a difference today! Like & Share: Spread the word about our campaign by liking and sharing our posts on social media. Together, we can amplify our message and reach even more people. Purchase a T-shirt: Show your support in style by purchasing a campaign-themed t-shirt. Not only will you raise awareness wherever you go, but you'll also directly contribute to our cause. https://lnkd.in/enfw9_Ur This campaign is all about coming together as a community to ensure that no Myositis patient ever feels alone or left behind. Your support truly makes a difference. #SupportStartsHere #MyositisAwareness #CommunitySupport

Awareness is essential….

People affected by persistent symptoms and conditions are told that their healthcare is adequate. How come these chronically ill patients need to organise crowdfundings to be able to receive what they consider as adequate care? If you search #longcovid #mecfs #postvac on crowdfunding platforms you get hundreds of results. That’s the fraction of people who have no other option but to beg for money. Money to pay for therapies allowing them to get back a fraction of their lives. It will in most cases not cure them. Because after receiving a diagnosis (at best) the large majority are told nothing can be done. They receive zero treatment, zero support, are sent home to care for themselves. Their lived reality with such postinfectious conditions clashes with the logics, the incentives and rules of our healthcare and social security systems. We dismiss their real needs, ignore and play down their suffering. We don’t prescribe and reimburse their treatments despite laws and rules that off-label therapies must be tried and reimbursed if there is no established option. The funds raised are primarily used to pay for treatments including apheresis and immune adsorption as well as wheelchairs. What world are we living in? Why are journalists not reporting this? Why are authorities looking the other way? Why do politicians not care? We have several examples of children, adolescents and adults who benefit from apheresis, immune adsorption, monoclonal antibody or immune therapy. Why are those treatments not prescribed and reimbursed? https://lnkd.in/e_7JNABw

Listen up Australia! It’s National Pain week, Australia’s annual event dedicated to raising awareness about chronic pain. 📅 Let’s shine a spotlight on the experiences of those living with chronic pain, and break down the barriers they face. 💡 Education webinars are being held to enhance the awareness of chronic pain management across Australia, and you can be involved! Click the link below to donate, register for more information, or to join daily webinars and support this cause! ✨ https://vist.ly/3fbhi Join us in raising awareness and changing the conversation around chronic pain. Together, we can make a difference. 💪💬 #NationalPainWeek #ChronicPain #PainChanger #Awareness #Support #TheLucyRoseClinic #Australia #Thyroid #Naturopathy #ThyroidNaturopath #HormoneNaturopath #HormoneSpecalist #ThyroidSpecialist #HolisticHealth #FunctionalMedicine

Show your support for the 3rd Annual Stepping Up with Sickle Cell Challenge to help raise money and awareness! SCD is a rare disease that happens in 1 out of 365 black births. Together we can build a community and improve the outcomes. Visit the link in my bio to learn more about how you can get involved! #SickleCellAwareness #RareDisease #AdvocateHealth #KaysKorner #BloodHealth