Dementias Platform UK’s Post

📝 In our recent survey about #Alzheimers #clinicaltrials, what do you think we heard most?  When we asked respondents, “What is the biggest barrier towards preventing me from seeking a trial?” some of the biggest commonalities respondents shared were: ❌ barriers to access, 🤝  inability to find trials to join, and  🤔 confusion about how clinical trials work and whether a trial is right for them. “I have an Alzheimer’s genetic variant and want to join a clinical trial, but I haven't found one I qualify for — and I live in a remote area, not close to a major metropolitan area. Is there anything out there for me?” - Anonymous Being Patient survey respondent 🧠 That’s why we launched the Being Patient Trials Update — a  free, subscription-only newsletter that better informs individuals on #clinical #research, participant experiences, and the benefits and risks of #dementia #trials. 🔗 Sign up for free and discover the latest in Alzheimer’s #research: https://lnkd.in/gKD7WGiP

Consider applying to this incredible program, learn from the top experts in the field of AD clinical trials. 

🧠 In our recent reader survey about #Alzheimers #clinicaltrials, what do you think we heard most? When we asked respondents, “What is the biggest barrier towards preventing me from seeking a trial?” we gathered so much feedback, and some of the biggest commonalities respondents shared were: ❌ barriers to access, ❌ inability to find trials to join, and ❌ confusion about how clinical trials work and whether a trial is right for them. “I have an Alzheimer’s genetic variant and want to join a clinical trial, but I haven't found one I qualify for — and I live in a remote area, not close to a major metropolitan area. Is there anything out there for me?” - Anonymous Being Patient survey respondent That’s why we launched the Being Patient Trials Update — a free, subscription-only newsletter that better informs individuals on clinical research, participant experiences, and the benefits and risks of #dementia trials. 🔗 Sign up for free and discover the latest in Alzheimer’s research: https://buff.ly/3QlbDBP

Some more #sundayscience, reclassifying #parkinsonsdisease via University Health Network #research. #researchmatters #sciencematters #newmedsmatter #parkinsons #parkinsonsawareness https://lnkd.in/eaSRj-_4

Social media is a powerful tool for understanding #patientexperience. This study identifies barriers in #Alzheimer's and turns narratives into valuable data https://lnkd.in/d6i799ih

New ways for early diagnosis

🧠 Today is World Alzheimer's Day 🧠 At Superior Clinical Research, we are committed to advancing the fight against Alzheimer’s disease. Alzheimer's impacts millions of individuals and families worldwide, and today, we stand united in raising awareness about this devastating condition. Our team is dedicated to contributing to groundbreaking clinical trials that seek to understand, prevent, and treat Alzheimer’s disease. Through our research, we aim to bring new hope and solutions to those affected. Let’s come together to support the Alzheimer's community by educating, advocating, and continuing the search for a cure. 💡 Did you know? Clinical research plays a crucial role in discovering new treatments that can improve the lives of Alzheimer’s patients. Your participation in clinical trials could make all the difference! If you or a loved one is interested in learning more about clinical trials for Alzheimer’s, reach out to our team today. Together, we can change the future of Alzheimer’s disease. #WorldAlzheimersDay #AlzheimersAwareness #ClinicalResearch #SuperiorClinicalResearch #FightAlzheimers

Interested in collaborating in an exciting research project aiming at improving #IBD patient care, with strong focus on #healthequity? Read below Let myself or my colleague Laura Martinez Prat know if you want to know more. #IBDresearch #Autoimmunity #HealthEquity #PowerPatientCare #HealthcareInnovation #SpecializedDiagnostics

📣 New Publication Alert! Our team is proud to share our latest book chapter, "Group Model Building to Promote Public Health Research and Action," in the textbook "Population Science Methods and Approaches to Aging and Alzheimer's Disease and Related Dementias Research." This chapter explores the use of Group Model Building (GMB) to enhance our approach to Alzheimer’s disease and related dementias (AD/ADRD) research. GMB offers a collaborative way to understand and address the complexities of AD/ADRD by involving diverse stakeholders in research and intervention design. Our findings highlight the potential for systems science to inform effective strategies against dementia, aiming for real-world impact. 🔍 Discover how GMB can be applied to tackle AD/ADRD challenges. Read our chapter here: https://lnkd.in/g8pKV58D #PublicHealth #AlzheimersResearch #SystemsScience #ADRD #systemdynamics Nasim Sabounchi, David Lounsbury, Mirnova Ceide, Terry Huang PhD MPH MBA, Chau Trinh-Shevrin, System Dynamics Society

We have the funding, the idea, the patient community...now all we need is YOU to take on the research!!! Are you up for the challenge? Unique opportunity: call for grant applications to study the natural history of r(20) epilepsy syndrome. Ring chromosomes are under-diagnosed and under-reported. Help us unlock the rare reality and advance knowledge in one of the ultra-rare epilepsies. Let's bring r(20) syndrome out of the shadows... Families from around the world have worked incredibly hard to achieve a funding pot to make this happen. OK, so it's a drop in the ocean compared to many research studies but we have to start somewhere. Could you help us with match-funding to ensure this study reaches its true potential? If so, drop us a line, we'd love to hear from you: ring20@ring20researchsupport.co.uk Deadline extended: 14 June 2024 Check website for info/apply: https://lnkd.in/eA3bRciB Please help us by sharing as widely as possible. #raredisease #research #epilepsy #NationalEpilepsyWeek