EURORDIS-Rare Diseases Europe’s Post

The Institute for Exceptional Care (IEC) National Roadmap for Disability-Inclusive Healthcare (the Roadmap) is a plan created for #clinicians to give the best #healthcare possible to people with intellectual and/or #developmental #disabilities (IDD). Learn more: https://bit.ly/4acqrtI

Today we participated in the latest round of consultation of civil society on the World Health Organization's 14th General Programme of Work (GPW14) - i.e. its strategy for 2025-2028. Thanks to input from International Cerebral Palsy Society and many others, disability is recognised much more prominently in the latest draft of the strategy document than in the previous version. We will study the most recent version in more detail and provide further input if needed. #disability #globalhealth #cerebralpalsy

#GivingNowMagazine April issue -2024 #Parenting #TIPS for whom those have #disabledchildren . #Disability Isn't a disease. Disability mainly caused by genetically. No one should be blame for this. Not parents and not even the affected children also.. That's why good parenting is must. Otherwise they will lag behind than a normal children. And sometimes it can be the reason of many family or #Socialproblems. To avoid those unwanted situation, parents should take some necessary steps ( explained below) :

MS AWARENESS WEEK 2024 Nationally and globally, there is growing awareness about multiple sclerosis, people living with the disease and the MS movement. Together, we are working to cure MS while empowering people affected by MS to live their best lives. #MSawareness #ms #multiplesclerosis #Sanlam #severeillness #disability #disabilityincome https://lnkd.in/eYK2P7y5 https://lnkd.in/dn-Yjscq https://lnkd.in/dGFvGe7Q

𝗠𝗲𝗱𝗶𝗰𝗮𝘁𝗶𝗼𝗻 𝗠𝗼𝗻𝗶𝘁𝗼𝗿𝗶𝗻𝗴 𝗳𝗼𝗿 𝗗𝗶𝘀𝗮𝗯𝗶𝗹𝗶𝘁𝘆 Medication monitoring is an essential part of providing care for people with disabilities because it ensures that drugs are given in a manner that is both secure and effective in treating a variety of medical issues. Medication must be taken as directed. Medication monitoring by our carers may help you manage your care and give you and your family peace of mind. The following are some of the most important factors to take into account while doing successful medication monitoring for a disability: ✅ Individualised Medication Plans ✅ Clear Communication ✅ Accessible Medication Information ✅ Assistance with Medication Administration ✅ Regular Medication Reviews ✅ Regular Health Check-ups 𝗖𝗼𝗻𝘁𝗮𝗰𝘁 𝘂𝘀 ☎️ : 0427 635 860 (Pat) ☎️ : 0426 241 482 (Chenai) 💌 : info@patchcommunityhealth.com.au 🌐 : https://lnkd.in/dJ-Fvcvx #ndis #ndisprovider #ndisregisteredproviders #health #disability #Brisbane #disabilityservices #patchcommunityhealth

Arthritis is the No. 1 cause of disability and is an invisible disease that impacts 1 in 4 members of your team. Join us for a virtual symposium and learn how our free program, Arthritis@Work, can help your team thrive. https://bit.ly/3SFC5HL #HumanResources #Disability #WeLiveYes

NOVEMBER-DECEMBER 2023 NEWSLETTER: Information about elder abuse by Seniors Rights Victoria Our recent newsletter takes you to useful links about newly added resources on this important subject. Check it out HERE 👉 https://bit.ly/3T5okCC Don’t forget to subscribe to the Health Translations newsletter to receive it monthly in your inbox 👉 https://bit.ly/3KKcoBD #health #healthnews #elderabuse #newsletter #disability #hepatitis #healthtranslations

There's major overlap between the rare community and the #disability community. Our joint survey with the Rare Disease Diversity Coalition shows the profound effects of life with a #RareDisease. As we mark today's anniversary of the #AmericansWithDisabilitiesAct (#ADA), think about how we might overcome these barriers to reduce the isolation that people with #disabilities are made to feel. What do YOU need to be included? Take a chance and ask for it. We've got your back. What can YOU do to help others be included? Make a plan and share it. We're all in this together.

What services do you offer the aging adult community? The Option Group is a Positive Aging Community Champion, supporting an engaged community of seniors, families, and caregivers. See the many options available at https://lnkd.in/gPwCZUgF #TheOptionGroup #Aging #CareManagement #EducationalAdvocacy #Disabilities #IEP #SpecialNeeds

Join us tomorrow at 2 PM ET for the next conversation in the #DisabilityHealth webinar series on #LongCOVID. Tune in on the conversation about Long COVID, Disability, and All of Us Research and learn from patient advocates on the importance of #PrecisionMedicine and appropriate health care. Register ➡️ https://lnkd.in/eVbJSCy8 #AllofUsInclusion #JoinAllofUs #Disability