Gene People’s Post

Fundraising Lessons Learned to date as I'm now five days into my fundraiser for the American Heart Association 2024 Wall Street Run & Walk as Team Coach of the team "HEART WARRIOR - LARRY GERBER MEMORIAL TEAM" to commemorate the 1st anniversary of my father's passing and for completion of the #ToastmastersInternational Pathways Learning Experience Program - Presentation Mastery, Level 4 Elective Project "Public Relations Strategies" are as follows: 1. My contacts are GENEROUS and PROMPT TO DONATE. 2. Set high fundraising goals. I surpassed my initial goal to personally raise $1,000 by DAY 3 of this campaign. 3. It is challenging to recruit fellow contacts to commit 2.5 months in advance to join me for an evening commitment at 5 PM on a Thursday night. Therefore, I am focusing my efforts to encourage contacts to Register to participate VIRTUALLY from any location. 4. Targeted and personalized messages have higher percentage of response than online social media posts or group emails. Join My Team via this link to Walk or Run from any location in the 2024 Wall Street Run & Walk or join me in Manhattan on Thursday evening, May 16th. SAVE LIVES by co-fundraising with me for the American Heart Association! https://lnkd.in/ejurCwmC

Did you know that May is NEC Awareness Month? In 2014, the Canvasser family founded the NEC Society after their son Micah tragically died from complications of the disease just before his 1st birthday. They chose May as #NECAwarenessMonth because of the importance of partnering with and elevating mothers to build a world without this devastating disease. Mothers are accelerating NEC research, education and advocacy while providing the most protective therapy against #NEC - their milk. The NEC Society's motto, "from pain to power", recognizes the profound heartache and trauma following a NEC diagnosis. While we cannot lessen or erase this pain, together we can harness the power of our heartache and channel our anguish to help other families while supporting The NEC Society's mission. Learn more below as we work to build a world without this devastating disease: #preventNEC #NECawareness #healthcareprofessionals

𝗧𝗼𝗱𝗮𝘆, 𝗝𝘂𝗻𝗲 𝟮𝟯𝗿𝗱, 𝗶𝘀 𝗜𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗗𝗿𝗮𝘃𝗲𝘁 𝗦𝘆𝗻𝗱𝗿𝗼𝗺𝗲 𝗔𝘄𝗮𝗿𝗲𝗻𝗲𝘀𝘀 𝗗𝗮𝘆! Dravet syndrome is a rare and lifelong form of epilepsy that begins in infancy. 𝗔𝘁 𝗢𝘆𝘀𝘁𝗲𝗿 𝗖𝗮𝗿𝗲, 𝘄𝗲 𝘀𝘁𝗮𝗻𝗱 𝘄𝗶𝘁𝗵 𝘁𝗵𝗲 𝗗𝗿𝗮𝘃𝗲𝘁 𝗦𝘆𝗻𝗱𝗿𝗼𝗺𝗲 𝗰𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆. 𝗪𝗲 𝗯𝗲𝗹𝗶𝗲𝘃𝗲 𝗶𝗻 𝘀𝘂𝗽𝗽𝗼𝗿𝘁𝗶𝗻𝗴 𝗶𝗻𝗱𝗶𝘃𝗶𝗱𝘂𝗮𝗹𝘀 𝗮𝗻𝗱 𝗳𝗮𝗺𝗶𝗹𝗶𝗲𝘀 𝗳𝗮𝗰𝗶𝗻𝗴 𝘁𝗵𝗶𝘀 𝗰𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗶𝗻𝗴 𝗰𝗼𝗻𝗱𝗶𝘁𝗶𝗼𝗻. Here's how you can help raise awareness: 🩷 𝗦𝗵𝗮𝗿𝗲 𝘁𝗵𝗶𝘀 𝗽𝗼𝘀𝘁! Use the hashtag #InternationalDravetSyndromeAwarenessDay to spread the word. 🩷 𝗦𝗵𝗼𝘄 𝘆𝗼𝘂𝗿 𝘀𝘂𝗽𝗽𝗼𝗿𝘁: Wear purple today, the color for Dravet Syndrome awareness. 🩷 𝗗𝗼𝗻𝗮𝘁𝗲 𝘁𝗼 𝗮 𝗗𝗿𝗮𝘃𝗲𝘁 𝗦𝘆𝗻𝗱𝗿𝗼𝗺𝗲 𝗼𝗿𝗴𝗮𝗻𝗶𝘇𝗮𝘁𝗶𝗼𝗻: Help fund research and support families. 𝗧𝗼𝗴𝗲𝘁𝗵𝗲𝗿, 𝘄𝗲 𝗰𝗮𝗻 𝗺𝗮𝗸𝗲 𝗮 𝗱𝗶𝗳𝗳𝗲𝗿𝗲𝗻𝗰𝗲! #DravetSyndrome #NDISSupport #OysterCareCommunity

Too many men are dying too young from largely preventable reasons. In addition, the rates of prostate and testicular cancer diagnosis are increasing globally. Early detection and treatment is key to survival. Men should feel comfortable to talk about their health and mental health with no judgement or stigma. So this Movember, I'm growing a Mo to support men's health! If you can spare a few dollars, I'd really appreciate your support! #menshealth #suicideprevention #movember #growamosaveabro https://lnkd.in/gYZFmWjt

As we continue to raise awareness for Cystic Fibrosis Trust, we wanted to give a little more insight into what it's like for parents when their child is first diagnosed and how the Trust helps them. "In this short film, a mother of a baby who has just been diagnosed with cystic fibrosis gets some reassurance from other parents who have first hand experience. If you would like to talk to someone, call our helpline on 0300 373 1000 or send an email and talk to our trained staff, whatever your question or concern." Please take a couple of minutes to watch this video - https://lnkd.in/eAVy-6FW #cysticfibrosis #fundraising #cysticfibrosisawareness

Today is World Neurofibromatosis (NF) Awareness Day. In support of the @ctfaustralia and everyone impacted by all types of NF in Australia, I am wearing this ribbon to help shine a light on this devastating condition. As a board member, it is a cause I care about deeply and want to encourage my network to share, donate or even connect to learn more. Reach our to me for more information or how you can assist us moving forward. Every 3 days a child is born with NF, and they will face a lifetime of uncertainty. Complex, unpredictable and progressive genetic condition causing tumours to form on nerves, NF can affect anyone regardless of gender, ethnicity, or family history. There is no cure for NF, but with every ribbon worn, hope spreads. NF tumours should never be a child’s normal. Knowing it is a condition they carry for life, makes it even more important that we stop accepting the unacceptable. All donations made to www.ctf.org.au will be matched from today to the value of $30,000 thanks to Morgan’s Foundation! Please give what you can and help move us improve health outcomes for the 13,000 people in Australia living with NF. REGISTER FOR STEPS TOWARDS A CURE AND JOIN #TEAMCTF https://lnkd.in/gBbFmaUw #conquernf

alright everyone, it's our time to shine! ✨ if you've been wondering how to get involved, be a part of our community and support our work, here's how — you can help us fund the future of Cerebral Palsy Strong in three ways: - make a donation (every dollar counts!) - start a fundraiser (ask us how!) - spread the word by reposting this to your feed ➡ https://lnkd.in/gu_ZUtyB it's our goal to raise $100,000 within our first year so that we can expand what we're able to offer our community, continue to share stories, curate more opportunities to come together online & IRL and begin to build spaces for belonging for people with cerebral palsy and our families, friends, and allies in the disability community. what we raise right now will immediately support our next CP Social — a live event in NYC happening this november — so that we can commit to free registration for everyone who attends. the CP Social creates space for adults with CP to find support, make connections, and feel a sense of belonging among peers. it's pretty special, lots of fun, and we know the need for social support in our community is so great. we're building something that doesn't exist and we're going to need everyone's help to bring this vision to life! to learn more about our story, our impact, what makes the CP Social so special, and why we need your support, visit our campaign page at https://lnkd.in/gTXaFc5S or check out this featured video. #CerebralPalsyStrong #CPstrong #community #disability

Part 2 of our #ShareAStoryMonth series highlights the experiences of Epilepsy and how it can impact someone's life everyday. Did you know that in the UK there are 633,000 people living with Epilepsy and a further 600 will be diagnosed everyday? Don't forget to visit our website for the full post here: https://loom.ly/yeeAHuw #Access ID: Light Blue background. At the top in a darker cyan coloured text is "#ShareAStory" the font makes it look like it has been handwritten. Just below that towards the left hand side of the page is a cartoon looking notepad with a quote on it from the blog. It states: "I was told by an Epilepsy Consultant at 15 that I “would never have a normal life” and “would never drive a car”. To the right even with the top of the notebook is a stack of post it notes (Green on the top and the same cyan blue colour used for the text underneath) It says: "Read the full blog on our website!" Underneath the post it note stack, in the bottom right corner, is a stack of 6 books all facing different directions. From the bottom the colours are: Pink, yellow, blue, pink and 2 greens on top.

There's no instruction manual for living with Multiple Sclerosis... No week-by-week guide for what you can expect going forward. It's a figure it out as you go along diagnosis... and it's different for everyone. Don't ask me how, but the day I got the official diagnosis from the neurologist, I did a coffee chat on Product Management with Patty Aluskewicz. Why? Was that still the most important thing to do? No, but I had made a commitment (or in denial), there were 30+ people signed up to attend, and I wasn't going to let people down. I don't remember much about the talk. I couldn't tell you how good it was. Yes, it's online, you can watch it and decide for yourself, but as of yet, I haven't wanted to review it. It is what it is. What I can tell you, being diagnosed with MS has changed my life. Mostly additional doctor appointments and way too many MRIs. I've learned how resilient (or maybe stubborn, what's the difference) I am. I still go to work every day, even on days when I'm spending 6 hours in the infusion chair, I'm there with my laptop, getting work done. I still run. Slower, yes, the best form, no, bruised toes, yes, but I'm still out there doing it. Honestly, my biggest challenge is my DLM (not going to explain here). Why am I sharing this? March 30, 2024, is World Multiple Sclerosis Day, and as someone living with MS, I want to get the word out there. If you read this far, I'd really appreciate it if you supported me in Walk MS. https://lnkd.in/eQ6peVaZ I'm also journaling my life with MS (link in the comments) if you'd like to follow along and learn more. #MSAwareness #MSWarrior