Genesis Research Group’s Post

To enhance the success of PAG-industry collaborations, we highly recommend leveraging PALADIN resources like the Playbook. These tools offer essential guidance on best practices for collaboration, ensuring that efforts are effective and aligned with patient needs. The document highlighted below Industry and PAG Study Considerations for Effective Clinical Trial Execution encompass strategies and guidelines to optimize collaboration between patient advocacy groups (PAGs) and the industry, ensuring clinical trials are effectively communicated. Visit the downloads section of the Playbook to learn more: https://lnkd.in/e27GeH2M

Dont miss “Leveraging Patient Advocacy Functions and Organizations to Provide Better Patient Experience” with B.J. Viau, Director Patient Advocacy, Rare Disease, Amgen, Alicia Barron, LGSW, Executive Director, Infusion Access Foundation, & Chrissie Jenkins, LISW-CP, Patient Advocate, Palmetto Infusion at #NICA2024 June 21-22 at the MGM Grand, Las Vegas. Sign up at bit.ly/NICA2024 Join us for a dialogue on how pharmaceutical companies, sites of care, and nonprofit organizations can work together to ensure that patients are receiving the information and resources available and vital to them to best manage their disease and their care. All of these groups have important pieces of information to share, but a more coordinated effort must be made to disseminate information and engage patients and providers. Patients are often unaware of services that they could access that would improve their quality of life, quality of care, and their financial well-being. In this session, the group will discuss ideas on how to better collaborate and will dialogue with the audience on ideas they may have or efforts already underway in their centers or companies. #infusionprovider #medicalprovider #infusion #infusioncenter #infusionnurse #infusiondeliverychannel #medicalinfusionprovider

Stop settling for less with isolated and less than optimal strategies for patient recruitment! Synergistic patient recruitment strategies can go a long way to deliver the ideal outcomes. Learn how! #ClinicalTrialRecruitment #PatientRecruitment #ResearchSuccess #FutureReadyHealthcare

Most people WANT to join clinical trials! But yours is missing the mark. A whopping 87% of people are willing to participate in clinical trials, according to Centerwatch, but only if the research makes sense to them. Effective patient recruitment starts with understanding what truly matters to your target population. ✅𝐅𝐨𝐜𝐮𝐬 𝐨𝐧 𝐭𝐡𝐞 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐉𝐨𝐮𝐫𝐧𝐞𝐲: 🔹Capture the Patient Experience: What are the challenges or goals your trial addresses? Speak directly to these concerns. 🔹Highlight Resonant Benefits: Focus on the advantages of participation that matter most to patients. 🔹Clear Communication: Present information in a way that's easy to understand and navigate. ✅𝐏𝐥𝐚𝐧 𝐟𝐨𝐫 𝐒𝐮𝐜𝐜𝐞𝐬𝐬: 𝐃𝐨𝐧'𝐭 𝐖𝐚𝐢𝐭 𝐔𝐧𝐭𝐢𝐥 𝐋𝐚𝐮𝐧𝐜𝐡: ▪️ Allocate Resources Upfront: Budgeting for patient recruitment from the beginning ensures you have the tools you need. ▪️Proactive Recruitment Services: Partner with patient recruitment specialists for expertise and a head start. ✅𝐄𝐱𝐩𝐚𝐧𝐝 𝐘𝐨𝐮𝐫 𝐑𝐞𝐚𝐜𝐡: 📍Diverse Strategies: Utilize various outreach methods to connect with a wider range of potential participants. 📍Patient Advocacy Groups: Collaborate with patient advocacy organizations to reach their targeted communities. 📍Digital & Print Advertising: Leverage effective online and offline channels to raise awareness. By prioritizing patient experience, proactive planning, and a multi-faceted approach, you can avoid recruitment roadblocks and reduce overall trial costs. When your trial resonates with patients, enrollment soars! Visit https://lnkd.in/eBHqfcG3 to learn more and get involved. Ina Burgstaller BIONABU #ClinicalTrials #PatientRecruitment #ClinicalResearch #PatientEngagement

Thank you Samit for sharing this important initiative! It's inspiring to see Bristol Myers Squibb taking concrete steps to integrate patient voices into clinical trial development through the PEER program. This approach is crucial for truly patient-centric research. 🎯 Involving patient advocacy organizations globally not only enhances the relevance and effectiveness of clinical studies but also helps alleviate patient burden. 😰 By understanding patients' lived experiences and needs 💡 we can design better trials that are more accessible, less disruptive to daily life, and ultimately more successful. Grace Cordovano, PhD, BCPA - keep up the great work, I hope to see this trend continue to grow across the industry. 🚀 Empowering patients to actively shape the research that impacts their lives is key to advancing medical science in a way that truly serves those who need it most. 💪 Looking forward to seeing how the PEER program evolves and the positive impacts it creates for patients worldwide. #PatientCentricResearch #ClinicalTrials #Innovation #PatientsIncluded #askpatients

I recently had the honor of speaking at the National Hispanic Medical Association (NHMA) and the National Hispanic Health Foundation's (NHHF) 30th Anniversary Leadership Summit, where I delved into the crucial issue of minority underrepresentation in clinical trials.   Hispanic and Latinos represent 19% of the national population. Despite this fact, participation in clinical trials is relatively small. This results in many patients missing potential treatment opportunities and hinders the assessment and understanding of potential differences in immune response and tolerability among diverse populations in vaccine studies. It is evident that historical barriers such as language obstacles, mistrust, and cultural differences have contributed to this disparity.    However, Pfizer’s commitment remains unwavering. We’re dedicated to fostering trust, breaking down barriers, and ensuring equitable access to healthcare for all communities. We recognize that to better understand individuals’ health needs and the impact of our medicines across all people, it is imperative that our clinical trials and investigators include populations that represent the communities of the countries where trials are conducted or the diseases we aim to address.    Meaningful and sustainable changes require an accurate and comprehensive assessment of current practices using standardized methodologies and data analytics, and better transparency surrounding clinical trials.   We must work collaboratively to expand access to clinical trials by lowering barriers that may have stood in the way of more inclusive participation and I look forward to driving progress together. #NHMA30 #NHHF30 #PfizerProud

When is the right time to initiate strategic communications looking ahead to commercialize a new therapy or product? Amanda Sellers shares her perspective and the best approaches to navigate the journey to commercialization through communications, including clinical trial branding and recruitment, data communications, advocacy relations, and priming the market through disease awareness campaigns. If you have a therapy in Phase 2 or 3 clinical trials, are attending #BIO2024 and interested in learning more about communications and pre-commercial planning, Lissette Steele and Amanda Herman Johnson will be there – reach out to connect. #LifeScience #ClinicalDevelopment #PharmaMarketing #ClinicalTrials

Engage early and collaborate for stakeholder engagement to achieve Market Access. CapSys has developed 6 key levers of success for an effective stakeholder engagement strategy within their Market Access Excellence Framework. Don’t miss out on this opportunity to fine-tune your strategies and enhance your relationships with current and potential stakeholders. Get started by accessing our full Re-thinking Market Access series to learn more about how you can create meaningful interactions. https://lnkd.in/ew73bz2k #MarketAccess #MarketAccessExcellence #Pharma #LifeScience

It's important to start with a broad outreach when raising awareness about a clinical trial among a targeted group of patients. 📣 Some studies have shown that 85% of patients were either unaware or unsure that participation in a clinical trial was an option at the time of diagnosis. The lack of awareness among some patients about the possibility of participating in clinical trials is one of the reasons why we at James Lind Care use multiple channels to raise awareness about a clinical trial. When being made aware and informed about the possibility of participating in a clinical trial, most patients want to engage and participate👍 #clinicalresearch #clinicaltrials #patientengagement

It was a great honor to speak on 5th Patient Centricity & Collaboration Conference on our collaboration with patient advocacy groups to raise awareness and improve lived experience with a rare conditions to make more people smile. Learned a lot from other speakers about the importance of collaboration with people affected by conditions and there should be no excuses to start this work earlier and wider.   Patient Centricity & Collaboration World Congress Europe (patientcentricityworld.com) #patientcentricity #patientengagement