Health Coalition Aotearoa’s Post

🌟 Join Us in Raising Awareness for National Fragile X Awareness Day! 🌟 🧬 What is Fragile X Syndrome? A genetic condition causing intellectual disability, behavioral and learning challenges, and various physical features. Many still ask, "Fragile what?" which highlights the need for ongoing education and awareness. 🤝 How You Can Help: ▪️ Educate: Share information about Fragile X with doctors, therapists, educators, and your community. ▪️ Advocate: Encourage research and participate in studies. ▪️ Promote: Use printable awareness cards, virtual backgrounds, and merchandise to spread the word. ▪️ Show Empathy and Compassion: Offer support and understanding to individuals and families affected by Fragile X. Sometimes, a kind word or a listening ear can make a world of difference. Together, we can shine a light on Fragile X syndrome and make a positive impact. Let’s continue to advocate, educate, and support each other today and every day. Learn more about Fragile X here: https://hubs.ly/Q02FVxZN0 #fragilex

🌟 October is Dysautonomia Awareness Month 🌟 Dysautonomia is a group of disorders that impact the autonomic nervous system, which controls many automatic functions in the body like heart rate, blood pressure, digestion, and temperature regulation. While millions of people worldwide live with dysautonomia, it remains a largely misunderstood and often misdiagnosed condition. 🩵 Why Dysautonomia Awareness Matters: • It can affect anyone, regardless of age, gender, or background. • Raising awareness can lead to better understanding, diagnosis, and support for those living with dysautonomia. • Together, we can help spread the word and provide support to those affected by this invisible condition. Learn more and support this cause at https://lnkd.in/eUYRgEBu. [Image Description: A graphic with a light blue frame reads, “October is Dysautonomia Awareness Month,” with a light blue awareness ribbon on the right. The text directs viewers to learn more at https://lnkd.in/eUYRgEBu.]

Feb 12 is World Epilepsy Day. Epilepsy impacts millions but there is an huge awareness & treatment gap. There is also irrational stigma associated with it. What can you do to help ? Watch this video to learn more. www.epilepsymumbai.org.

Did you know in the US there are 5,700 babies born each year with Down Syndrome, making it the most common chromosomal condition? Down Syndrome Awareness Month is our opportunity to raise awareness and support people with Down Syndrome in breaking down barriers. Learn more about how you can get involved from the National Down Syndrome Society's NDSM webpage here: https://lnkd.in/e8Vakqni #DownSyndromeAwarenessMonth

International Vascular Birthmarks Awareness Day represents a global effort to embrace diversity and support one another. By learning more about vascular birthmarks, anomalies and related syndromes (VBARS), you can help spread awareness, reduce misunderstandings and encourage acceptance – making the word a kinder place for all. #VascularBirthmarksAwarenessDay

⏰ New ToxTime Incoming! ⏰ Fetal Alcohol Spectrum Disorders are not rare. In fact, they are more prevalent than either autism or Down Syndrome, but they are rarely diagnosed, denying services to those who need them to address immediate developmental concerns and mitigate lifelong damage caused by prenatal alcohol exposure. Statistics indicate that about 5% of the population has an FASD…that’s more than one child in every classroom…but diagnoses are lagging. On Thursday, August 22 at 1 PM CT, join Guida Brown for a ToxTime presentation all about FASDs. Learn how YOU can be part of the solution for nearly four million children in the US who live with an FASD. Register now: https://zurl.co/bNZq

Did you know that September is FASD Awareness Month? This month is devoted to raising awareness of fetal alcohol spectrum disorder (FASD) to improve prevention of FASD and diagnosis and support for individuals with FASD. Learn more at https://lnkd.in/gyfBkspx

On International Behçet's Awareness Day, we illuminate this rare multisystem inflammatory disorder. Explore common questions patients are asking and the challenging answers within. Learn more today: https://rns.life/4dazyO8

🌟 𝗧𝗼𝗱𝗮𝘆 𝗶𝘀 𝗦𝗽𝗼𝗿𝘁 𝗣𝘂𝗿𝗽𝗹𝗲 𝗳𝗼𝗿 𝗣𝗹𝗮𝘁𝗲𝗹𝗲𝘁𝘀 𝗗𝗮𝘆! 🌟 Join us in raising awareness for Idiopathic Thrombocytopenic Purpura (ITP) and other platelet disorders. 𝗪𝗵𝗮𝘁 𝗶𝘀 𝗜𝗧𝗣? ITP is a bleeding disorder characterized by a low platelet count, leading to easy bruising and bleeding. The exact cause is often unknown, making awareness crucial. Wear your best purple attire, decorate your space, or even dress up your pets! Let’s spread the word about this important cause! 💜 Together, we can educate others about ITP and show our support for those affected. #SportPurpleForPlateletsDay #ITP #PlateletDisorders #Awareness #PurplePower #PDSA #BraveryInPurple #EducateAndEmpower #SupportTheCause #SCABPharmacy

Did you know that HHT is the second most common inherited bleeding disorder, yet it often flies under the radar? This March, join us in shining a light on HHT during Bleeding Disorder Awareness Month. 🩸 HHT is a #blooddisorder rooted in vascular anomalies, characterized by abnormal blood vessel formation, frequent nosebleeds, internal bleeding, and other complications. Living with HHT can be incredibly challenging, with bleeding episodes that can cause anemia, fatigue, and even life-threatening situations. Despite its prevalence, #HHT receives far less attention than rarer bleeding disorders like hemophilia. But together, we can change that! Join the conversation this #BleedingDisorderAwarenessMonth and help raise awareness for HHT.