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Summer has been summering. It always reminds us how helpful a routine is for managing IH symptoms. It also reminds us when we do activities outside of the routine it can have a greater effect on our sleepiness. As Haley (@thesleepy_ot) says — When it comes to trying to do something outside of those routines, which could be absolutely anything from weekly grocery shopping on a weekend, going out to socialize with friends or family- really anything- it can completely wipe me out for the following days on end. It may be fun, it also sometimes is absolutely worth it for me personally because in a situation such as socializing- it’s something extremely meaningful in my life. Will it mean I’ll “go to bed for a couple days”? Most likely. But on those days I will take it easy and give myself grace. As I’ve noted in other videos- bringing a little humor into educating others and advocating for more awareness is NOT intended to be taken that IH is a joke. IH is very real. It’s extremely challenging to navigate. We may not understand what causes this, “but our sleepiness is real”. Every symptom that comes along with IH is REAL!!

Rachel Nesmith

Professional Singer, Patient Advocate, Wife and Mom

3mo

Absolutely

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