Carrie Robinette has #StiffPersonSyndrome, though getting a diagnosis wasn’t quick. Few doctors have seen Stiff-Person Syndrome, let alone know how to treat it. Kyverna’s business unit head of rare diseases, Sham Dholakia, recently spoke with Carrie for Business Insider about the challenges doctors face in diagnosing SPS. https://lnkd.in/giXaW9QB
Fantastic and powerful article!!
Executive Clinical Development & Medical Affairs Leader Specialized in Rare Disease, CNS Disorder, & Oncology Expertise | Key Opinion Leader Collaboration
2moIs there a treatment approach for Carrie that goes beyond conventional pain management?