Magee-Womens Research Institute & Foundation’s Post

Knowing your risk factors and predicting how you are going to heal will support effective goals of care planning 👇🏿

Celebrating Cindy’s journey in the REAL MS study! We’re excited to share Cindy’s inspiring journey as she recently completed the REAL MS study. Over the past 20 years, Cindy has been a dedicated participant in research for multiple sclerosis, Parkinson’s, cancer detection, health and exercise, genomic sequencing, infectious diseases, mental health, and health research databases, contributing to numerous studies including smart devices and the All of Us Research Program. From smell tests and strength assessments on the Biodex to body composition tests on the BodPod, as well as biopsies, blood draws, data collection via apps and smart devices, fecal test kits, and spit kits, Cindy has done it all! As a seasoned veteran, Cindy offers this advice to others in the MS and Parkinson’s community: “Participate in research! Some studies are fun; some are a way to learn more about your personal health. All are interesting ways to learn about the medical field, advance basic research, diagnoses, and treatments. Help yourself, your loved ones, your community, and mankind. Sign up and don’t be shy!” Learn more about REAL MS and other research opportunities here: https://lnkd.in/gJUxKuVb #research #multiplesclerosis #parkinsonsdisease #healthresearch #patientadvocacy #MSresearch #researchopportunity

Viewpoint discusses highlights from the National Academy of Medicine 2023 Annual Meeting Scientific Symposium that are representative of key gaps, trends, and opportunities in women’s health. https://ja.ma/3JP9Zob

This article is worth the time. Everything about this article sets the tone for what clinical research should aspire to in 2024, as achieved by Genentech and outlined within the article by Quita Beeler Highsmith, MBA. As a clinician, I have always believed our healthcare system does not have to be a monolith when it comes to health disparities and inequities, especially in the presence of science-bending feats that anyone willing (and clinically fit) should have access to and the opportunity to participate in should they choose. The data is very clear on the fact that when we engage diverse populations about clinical trials, enrollment rates are similar to non-diverse candidates. The data is also clear that diverse patients are not engaged at equal measure as their counterparts, often due to implicit, and sadly, in some cases, explicit bias. As such, it is incumbent that those working toward bridging the disparities gap observed in healthcare and trial research continue to keep our foot on the gas. Great strides are being made and will continue to do so with sustained effort and commitment.

Travel time to academic settings can contribute to inequalities due to age, geography, and ethnicity in Alzheimer's disease clinical trial enrollment. We are excited to share that Noor Sachdev M.D. and Perminder Bhatia, M.D., two community physicians in the Adaptive Research network, are investigators in AriBio’s Phase 3, Double-blind, Randomized, Placebo-controlled Trial to Evaluate the Efficacy and Safety of AR1001 in Participants With Early Alzheimer's Disease (POLARIS-AD). #clinicaltrials #clinicalresearch

Meet Michael and Suzanne O'Brien from South Florida. In this series, "The Participant's Perspective on Clinical Research," Mike and Suzanne share their experience with dementia clinical research at JEM Research Institute, a Headlands Research clinical trial site. In the first video, Mike and Suzanne discuss the signs and symptoms of dementia that brought them to JEM Research Institute. #HeadlandsResearch #ClinicalTrials #ALZresearch #ClinicalTrialSites https://lnkd.in/ey94nvrt

🎉 Excited to share my first research publication: "Memory Impairment and its Impact on Post-COVID-19 Patients." 📄 In this study, we explore the significant cognitive challenges faced by individuals recovering from COVID-19, focusing on memory impairment and its broader implications. I'm grateful for the support and collaboration from my team and peers who made this research possible. I hope our findings will contribute to the growing body of knowledge and assist healthcare professionals in better understanding and supporting post-COVID-19 patients. Check out the full publication here: [ https://lnkd.in/e6k2EFVp ] #COVID19 #MemoryImpairment #PostCOVID19 #CognitiveHealth

Publication Alert! In this controversy piece, we propose that "time is spine" in SCI is not a one-fits-all approach, particularly in geriatric cohorts with certain clinical profiles. Watch this space for our institution's retrospective review to follow.

#HighlyCitedPapers   📝 MicroRNAs in Learning and Memory and Their Impact on Alzheimer’s Disease — Wang, et al.   In this paper, the authors aimed to discuss the role of miRNAs in the process of learning and memory and their dysfunction in Alzheimer's disease.   Full text is available 👇 https://lnkd.in/d9FXvNTK   #medicine #health #research #science

Have you signed up to attend our new webinar, 'How Health and fitness affect people with Scleroderma? On Thursday, 20 June, at 11 AM, Dr Alexandros will lead this webinar, bringing much insight into this topic. When we spoke to Dr Alexandros about this webinar, he said: '‘I am honestly so excited that I will be presenting soon in front of people with systemic sclerosis and related stakeholders regarding the benefits of exercise in this condition. The main reason for this excitement is that I’ve been conducting research in this condition for the last 9 years, and it has become my main research focus. My research in systemic sclerosis dates back to 2015 when I first initiated my PhD studies. By the end of my PhD in 2018, I’d had a series of publications that led me to my next rewarding research trial: a FOREUM-funded multi-centre European research clinical trial that aimed to assess the effects of exercise on pain and fatigue in people with systemic sclerosis.'' Register now to attend our webinar! https://bit.ly/4atWc1p