Ochsner Connected Health’s Post

Discover the real impact of copay accumulators on patients with bleeding disorders. In a WTAE-TV feature, Bill Robie from NBDF explains how these programs affect people like Maria Shoemaker, who faces high costs to manage von Willebrand disease. Learn more about the challenges and who truly benefits from these policies. https://lnkd.in/gA8FQdXv #Healthcare #BleedingDisorders #CopayAccumulators #PatientAdvocacy #NBDF

Rare disease hits too close to home– for too many. As healthcare marketers, we feel it's crucial to connect with patients on their own terms. Let's aim to empower patients and foster a supportive rare disease community. https://okt.to/q8cRCj #patientengagement #healthcaremarketing #rarediseasesupport #psp #healthcarestrategies

Although many chronic diseases can be cured, the conventional healthcare model is focused primarily on managing symptoms instead of diagnosing and treating underlying causes. And since doctors are reimbursed based on how many patients they see in a day and not how many they cure, there’s little incentive to change. Patients should understand that healthcare is a service, and if they’re not getting the service they want, then perhaps it’s time to seek out another provider and another way of handling their healthcare needs. #nbihealth #drjohnneustadt #smallbusiness #onlineshopping #dietarysupplements

60% of adults in the Us have at least one chronic disease. 90% of healthcare costs go towards patients with chronic disease. These conditions are too prevalent and costly to not be managed effectively, so join Engagement Health Group for their webinar on strategies to effectively manage these conditions. #webinar #ChronicConditionManagement

Medical gaslighting is a term used to describe situations where healthcare providers dismiss or downplay a patient’s symptoms, leading the patient to question their own experiences and feelings. Discussing medical gaslighting is crucial within the rare disease community because it can lead to delays in diagnosis, inadequate treatment, and a profound sense of mistrust in the healthcare system. People living with rare diseases frequently endure long journeys in search of answers, and when their experiences are invalidated, it can compound the challenges they already face. By understanding the signs of gaslighting and learning effective strategies for navigating the healthcare system, individuals can better advocate for themselves and ensure they receive the proper care that they deserve. Learn more at https://lnkd.in/ec29HSKZ #rare360 #rareadvocacy #livingrare #rarediseases #gaslighting #gaslightingawareness #medicalPTSD For rare disease news, visit www.rare360.life

We believe that people living with #rarediseases like chronic inflammatory demyelinating polyneuropathy (CIDP) deserve options when it comes to managing their disease. This #CIDPAwarenessMonth, read more about how Maddy, Mark and Christina work closely with their healthcare teams to develop personalized management plans for their CIDP: https://bit.ly/3IyAj5s

In our MOH Talk, Matt Hazledine shared his journey of living with lymphoedema and how he navigates its management. Recalling a period of uncertainty and desperation six months post-diagnosis, he described his proactive approach of educating himself about the disease, conducting research, and practicing self-management techniques to improve lymphoedema symptoms. Delve deeper into the daily challenges faced by lymphoedema patients: https://lnkd.in/dWgiR2qE #MOH #HealthCare #SigvarisGroup #lymphoedema

The benefits of Remote Patient Monitoring for patients: - Improves accessibility to healthcare - Allows for improved chronic disease management - Decreases number of trips to clinics - Allows for better control over health - Saves money and time - Ensures proper education regarding health conditions Learn more about RPM by visiting https://lnkd.in/g8_GTq4W. #KencorCares #RemotePatientMonitoring #Telehealth #RemotePatientManagement

An estimated 25-30 million Americans suffer from a rare chronic condition! Living with Thyroid Eye Disease & Graves' disease can feel isolating, but sharing your story can spark hope and awareness. If you battle a chronic condition being apart of a support community connects you with others facing similar challenges so it can feel less secluded. As a healthcare professional, my hope is an interdisciplinary approach will promote patient empowerment through education, empathy, and shared decision-making. Together we can help each patient feel valued, heard, and equipped with tools to navigate their unique healthcare journey. Share your story; it can create a ripple effect, giving hope to others! #RareDiseaseAwareness #Empowerment #HealthcareCommunitymaking https://lnkd.in/g_U5hvwA

March is Kidney Health Month, so let’s talk about it: according to the Centers for Disease Control and Prevention (CDC), about 37 million American adults have CKD, and many are not aware of their condition. “Chronic kidney disease is an underappreciated condition, often because patients don’t notice any major symptoms or health issues until it’s advanced. And for patients who don’t see physicians regularly, there’s a risk of them missing easy screening opportunities. SHK is actively working to help combat such a predicament and proactively keep patients healthy” – Saquib Rahim, MD, MBA, Director of Healthcare Innovation at Simple HealthKit. Understand your kidney health and get connected to resources for follow-up care. DM us to learn more about the importance of kidney health. #KidneyHealth #ChronicKidneyDisease #KidneyAwareness