Grüvi’s Post

Some interesting stats for IWD2024 When surveyed, 50% of women thought they would be most likely to die from breast cancer but in reality only 6% will die from breast cancer and 35% will die from cardiovascular disease. And when women present to ED with heart attack it takes them 90minutes longer to get assessed for heart attack than men. Every minute is critical, as time is muscle, so women are more likely to suffer worse outcomes than men following heart attacks.

Finding the words to describe your porphyria can be hard. How do you explain what it's like? Help raise awareness- get your #MyPorphyria template and see other patient's stories at myporphyria.org. #GlobalPorphyriaDay

Thank you for the opportunity to share my journey in entrepreneurship! I had a full table each session and shared my love of LaunchNet Bob Sopko GiveBackHack and Seachange. I also shared with the grad students and postdocs some of the big takeaways I took from my time at CWRU. 1) Get involved with the Postdoc Association and Grad student organizations and get experience in different board settings, including things like Faculty Senate. That helps you prepare for being in those board rooms as you move up in your career. 2) You are learning how to fail and pivot and keep going. Everyday is a new opportunity to try again. 3) Create your own opportunities. I curated an event called Postdocs on the State capitol just so we could go to Columbus and get the experience of talking to our local legislature. Those connections and experiences help me still today. 4) You may not see the end product, but you know you made an impact...however small...along the way. 5) If you stick to your values, you'll know what you need to do and how to stay true to yourself. I love what I am doing and am grateful for all my experiences in grad school, my postdoc, and as an entrepreneur. It also doesn't hurt that I almost died 3 times last year so I don't really have the same level of worry as others on the small stuff.

A little bit about Jean-Arellia Tolentino, Ph.D.- “I am: a psychologist, a researcher, a community organizer, an educator, a Filipina American, a daughter/mother/sis/partner, and the list may go on. I share this, because often therapists don’t, and to note that my work as a therapist has been cultivated from a myriad of paths taken to get through this thing called “life”. As such, I know that one’s life path can change, and depending on your context, can feel like you’re taking the same path yet have a vastly different journey and destination.” Join us at the Bukambibig Symposium (Word of Mouth) for a thought-provoking panel titled “Finding, Creating, and Cultivating Kapwa,” where we explore the power of identity, culture, community, and healing from trauma. This panel will feature influential leaders from diverse sectors, including nonprofit, healthcare, government, and technology, each bringing unique perspectives on what it means to serve and thrive in community. This conversation is more than a panel—it’s a space to reflect on how community can be a source of healing and strength. ❤️ Let’s come together to explore Kapwa and heal through community. USE CODE fylprofam for 30% off: https://lnkd.in/giv54uX4

The above stat means that out of every 100,000 individuals, around 22 are diagnosed with PV.  You, though, are not just a statistic. We see you and want you to join us in our mission.    Our dedication goes beyond research; it's about recognizing and addressing the unique challenges faced by those living with PV. With every project we fund, and every breakthrough we achieve, our goal is to ensure that no one feels invisible.     We're on a relentless quest to uncover new therapeutic solutions, driven by the stories and strength of the PV and greater MPN community.   But to continue this journey, we need your help. Engage with us, share your story, and consider contributing to our cause. Every story shapes our strategy.    Join us in this critical mission to shine a light on PV and show those affected that they are seen, heard, and never alone.

A potential game changer in the field of AI, medicine and diagnostics in the making. It is so crucial that the power of AI is channelised towards creating a positive impact on the society. And this little start up may well be one to contribute to changing lives…

💚 June is Scoliosis Awareness Month! 💚 Starting tomorrow, June 1, join us in kicking off this important month dedicated to raising awareness about scoliosis. At National Scoliosis Center, we are committed to spreading the word about the significance of early detection and proactive treatment. Scoliosis can impact anyone, and early detection is crucial in managing and effectively treating this condition. We need your help! Here’s how you can get involved: 1. Wear Green: Green is the color that represents Scoliosis Awareness Month. Green ribbons, t-shirts, sneakers, shorts, etc. Feel free to send us a picture and share your story with us. 2. Spread the Word: Share our posts, use the hashtag #ScoliosisAwarenessMonth, and talk to your friends and family about the importance of early detection. 3. Stay Informed: Follow us for more information and resources about scoliosis throughout the month. Together, we can make a difference in the lives of those with scoliosis. Let’s raise awareness, support each other, and highlight the importance of early detection! Thank you for being a part of our community. Let’s make Scoliosis Awareness Month impactful! 💚💪 #ScoliosisAwarenessMonth #EarlyDetection #NationalScoliosisCenter #ScoliosisStrong https://loom.ly/XUj1ZrM

One of the reasons why #sicklecell conferences are so great is that they give you a chance to build amazing friendships. The Power of Friendship in the #RareDisease Community: 3 Reasons to Connect https://lnkd.in/gKmfj7vy