PKD Foundation’s Post

The connection between - ▶️ Cranio-Cervical Instability ▶️ Tethered Cord Syndrome, and ▶️ Ehlers Danlos Syndrome / Connective Tissue Disease Areas in which there’s hardly any expertise at all in #Sweden I have all of the above. As well as ME and #LongCovid. It’s all connected. What’s the issue? Connective Tissue! 🙃 https://lnkd.in/dWs6v4yS

So true! Even today with all the modern medicine it is still not diagnosed timely.

🤔 What is Lichen sclerosus? 💡 Lichen sclerosus (aka LS, or white spot disease) is chronic inflammatory condition that manifests itself as adhesions and scars on the vulva. 🙇♀️ These scars look like white patches. Deep red areas on the skin may cause burning or itching in or around the vulvar tissue. 😓 The vulvar tissue is delicate, and bruising and tearing can happen easily from continuous itching or rubbing. 👄 The physical appearance may also manifest itself in the esophagus and mouth. 👉 There is not currently a long-term cure for LS, although there are topical steroids (prescribed by your doctor) that can provide temporary relief. ❗️ LS can present an increased risk of vulvar cancer. 🗣 So it's especially important to remember your regular vulva self-examines and be aware of the symptoms! 💁🏻♀️ If you are experiencing pelvic floor pain or symptoms, it's time to connect with Dawn Chimento Core and Pelvic Floor PT! Cl1ck the l1nk in the b1o to reach out today. 💜 Be sure to follow @nyptdawn for more pelvic floor information, education, and resources! *As a reminder, this page is for educational purposes and does not replace the recommendations from your doctor or medical care provider.* . . . . #nyptdawn #dawnchimentopelvicfloorpt #lichensclerosus #vulvaawareness #vulvacancerawareness #vulvalcancer #vaginalcancer #precancer #pelvichealth #pelvicpain #pelvicpt #pelvicfloorphysicaltherapy #pelvicfloorphysicaltherapist #pelvicfloorpt

Feb 7-14 is Congenital Heart Disease Awareness Week ❤️🩹 Congenital heart disease (CHD) is the world's leading birth defect. About 1 in 100 Canadian children are born with CHD. Congenital means “present at birth” and it occurs when the blood vessels near the heart don’t develop normally before birth. Children born with a heart defect can have significant needs throughout their lifetime, ranging from multiple invasive procedures such as open-heart surgery to daily therapies for breathing and physical rehabilitation. While medical advancements allow many Canadians with heart defects to have much longer life expectancies and live their daily lives with some level of ease, CHD still requires lifelong specialized ongoing medical care and most adults who had surgery as a child for CHD would work with trained cardiologists to maintain their heart health. Recently The Hospital for Sick Children launched a global study seeking personalized genomics for CHD alongside the Ted Rogers Centre. During this 3 year long international study, researchers will be looking genetic clues to how such congenital heart disease develops which will help further the treatment and disease management protocols. #CHD #HeartHealth

Heartfelt awareness for congenital heart defect this week. Let's share stories, support families, friends and spread love.. Awareness Week is held each year from Feb. 7-14 to recognize children and adults living with congenital heart disease, celebrate their journey and increase public awareness of these heart conditions. Congenital heart diseases, also known as congenital heart defects or CHDs, are birth defects that affect the structure of a baby’s heart and the way it works. It is the most common birth defect, with approximately 1% of newborns born with a CHD each year. Of those born with a CHD, 1 in 4 infants typically need surgery or other Let's get together and spread awareness for the CHD. #congenitalheartdefect #supportcardiovascularhealth #supportcardiophysiotherapy #physioclinics #PhysiotherapyTips #physiotherapytreatment #physiotherapy

Heartfelt awareness for congenital heart defect this week. Let's share stories, support families, friends and spread love.. Awareness Week is held each year from Feb. 7-14 to recognize children and adults living with congenital heart disease, celebrate their journey and increase public awareness of these heart conditions. Congenital heart diseases, also known as congenital heart defects or CHDs, are birth defects that affect the structure of a baby’s heart and the way it works. It is the most common birth defect, with approximately 1% of newborns born with a CHD each year. Of those born with a CHD, 1 in 4 infants typically need surgery or other Let's get together and spread awareness for the CHD. #congenitalheartdefect #supportcardiovascularhealth #supportcardiophysiotherapy #physioclinics #PhysiotherapyTips #physiotherapytreatment #physiotherapy

𝐓𝐡𝐞 𝟐𝟎𝟐𝟒 𝐁𝐫𝐢𝐭𝐢𝐬𝐡 𝐒𝐨𝐜𝐢𝐞𝐭𝐲 𝐟𝐨𝐫 𝐑𝐡𝐞𝐮𝐦𝐚𝐭𝐨𝐥𝐨𝐠𝐲 𝐆𝐮𝐢𝐝𝐞𝐥𝐢𝐧𝐞 𝐟𝐨𝐫 𝐌𝐚𝐧𝐚𝐠𝐞𝐦𝐞𝐧𝐭 𝐨𝐟 𝐒𝐲𝐬𝐭𝐞𝐦𝐢𝐜 𝐒𝐜𝐥𝐞𝐫𝐨𝐬𝐢𝐬 ◦ This guideline considers all aspects of systemic sclerosis including general management, treatment of organ-based complications, including cardiopulmonary, renal and gastrointestinal tract manifestations, as well as broader impact of disease.  ◦ It is focused on adults with systemic sclerosis, but can be relevant to people of all ages due to expert input and review by pediatric rheumatologists and other relevant specialists considered where the guideline was, or may not be, applicable to young people with systemic sclerosis and juvenile-onset disease. 🔗https://lnkd.in/drT-kjMX

💡Dr. Ally: Ask Me Anything 💡 🤨 Dr. Ally describes how PRM treats endometriosis pain and a spastic pelvic floor. 💡 Endometriosis falls into the category of an inflammatory disease process. Endometrial plaques release a form of “inflammatory soup” into the pelvis which contributes to inflammation around the pelvic nerves. 💡Endometriosis is a chronic disease and requires a combination of both treatment and management of the disease. Often, endometriosis patients are told that the only way to treat endometriosis is by surgical excision with histopathological confirmation – this is an excellent first step. However, it is important to treat the nervous system and pelvic floor muscle dysfunction in Endometriosis for full resolution of symptoms 🟣 We offer a proprietary, simple, office-based procedure to treat the symptoms of chronic pelvic pain. The PRM Protocol™ consists of a series of pelvic nerve and muscle treatments to directly target inflammation in the pelvis and nerve pain. 🟣 After the PRM Protocol™ 75% of patients note a Statistically Significant Improvement in Pain and Function. 💜

My new article titled “ Redefining what sickle cell disease warriors look like” challenges general preconceptions and misconceptions about the appearances of sickle cell patients. Excerpts from my column include “Growing up, health professionals and others often told me I didn’t look like a sickle cell patient. Their remarks left me wondering what was so unusual about my appearance and what I was expected to look like as someone living with sickle cell disease……….” To read the full column, click the link below (C) BioNews Inc.

🩺 Did you know that bacterial arthritis is most common cause of pediatric septic arthritis in children with an incidence of 1-37 cases per 100,000 worldwide? 📣 Discover a clinical case from Dr Clara Udaondo Gascón highlighting the instrumental role of syndromic testing in managing native joint septic arthritis in young children. Watch the full case here : https://lnkd.in/emX9_9C3 #jointinfection #syndromictesting #molecular #diagnostic