Prognos Health’s Post

Let's celebrate the kidney! Did you know that if one kidney is removed the body only loses 25% of kidney function? How about that if a child is born with only one kidney, the lone kidney can grow until it has the combined weight of two?   Kidneys are truly amazing organs but don't always get the same attention as others in the body. Subsequently some chronic kidney conditions are diagnosed relatively late due to patients being unaware of kidney-related symptoms which can pose challenges for treatment. At Elma Research International we frequently delve into the intricacies of patient & disease journeys to uncover opportunities for healthcare providers to find a better route to diagnosis and subsequent treatment pathways. If you'd like to hear more about what we can do in this space, get in touch with Rachel Bagwell   #WorldKidneyDay #elmaresearch #leadingwithideas #marketresearch #insight 

💻Measuring Quality of Life Webinar What will you learn? ✅The ways to measure quality of life in rare diseases for the purpose of health technology assessment ✅How patient organisations can get involved in the process Watch now: 👇 https://ow.ly/cmg050Qp5jR

Success in launching treatments hinges on understanding complex disease landscapes. Imagine not having clarity on: 👩⚕️ Who are the most affected patients and their needs? ⏳ Average treatment waiting times post-diagnosis? 🚫 Diagnosis process hurdles? 👨⚕️ Key healthcare professionals involved? Disease Landscape Analysis fills this information gap by providing a comprehensive picture of the disease, the patients, and the treatment environment. Moreover, it shapes targeted marketing strategies to enhance patient care and outcomes. #RWE #DiseaseLandscape #PatientCare

Success in launching treatments hinges on understanding complex disease landscapes. Imagine not having clarity on: 👩⚕️ Who are the most affected patients and their needs? ⏳ Average treatment waiting times post-diagnosis? 🚫 Diagnosis process hurdles? 👨⚕️ Key healthcare professionals involved? Disease Landscape Analysis fills this information gap by providing a comprehensive picture of the disease, the patients, and the treatment environment. Moreover, it shapes targeted marketing strategies to enhance patient care and outcomes. #RWE #DiseaseLandscape #PatientCare

Today is Rare Disease Day!  A disease is rare when it affects fewer than 1 in 2,000 people. Rare Disease Day is a movement working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Those living with a rare disease face challenges, such as: 🧪 The lack of scientific knowledge and quality information on diseases often results in a delayed diagnosis 🩺 The need for appropriate quality health care engenders inequalities and difficulties in access to treatment and care - often results in heavy social and financial burdens on patients 🔬 Research needs to be international to ensure that experts, researchers and clinicians are connected Watch their official video to learn more: https://lnkd.in/e76yAESx #RareDiseaseDay #RareDiseaseDay2024 #RareDisease

Did you know that it can take an average of 4.5 to 7 years for a rare disease to be diagnosed? During this time, patients often face a puzzling journey with healthcare practitioners, trying to find answers while managing their symptoms. This diagnostic journey not only induces emotional distress for patients and their families but also imposes a considerable financial strain. Furthermore, 95% of rare diseases lack an approved treatment, thereby limiting patients' options for managing their conditions. Nikhil Reddy M. Bharat Reddy Arun Prasad M S Jayapala Reddy A V, PhD Giridhar rao Pulla venkata Kannan I #raredisease #researchforbettermedicine #research #msn #msngroup

Today is Rare Disease Day! A disease is rare when it affects fewer than 1 in 2,000 people. Rare Disease Day is a movement working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Those living with a rare disease face challenges, such as: 🧪 The lack of scientific knowledge and quality information on diseases often results in a delayed diagnosis 🩺 The need for appropriate quality health care engenders inequalities and difficulties in access to treatment and care - often results in heavy social and financial burdens on patients 🔬 Research needs to be international to ensure that experts, researchers and clinicians are connected Watch their official video to learn more: https://lnkd.in/ebKtw4T6 #RareDiseaseDay #RareDiseaseDay2024 #RareDisease

Today is Rare Disease Day! A disease is rare when it affects fewer than 1 in 2,000 people. Rare Disease Day is a movement working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. Those living with a rare disease face challenges, such as: 🧪 The lack of scientific knowledge and quality information on diseases often results in a delayed diagnosis 🩺 The need for appropriate quality health care engenders inequalities and difficulties in access to treatment and care - often results in heavy social and financial burdens on patients 🔬 Research needs to be international to ensure that experts, researchers and clinicians are connected Watch their official video to learn more: https://lnkd.in/eaiPUcpa #RareDiseaseDay #RareDiseaseDay2024 #RareDisease

𝗧𝗿𝗮𝗻𝘀𝗳𝗼𝗿𝗺𝗶𝗻𝗴 𝗥𝗮𝗿𝗲 𝗗𝗶𝘀𝗲𝗮𝘀𝗲 𝗖𝗮𝗿𝗲 𝗧𝗵𝗿𝗼𝘂𝗴𝗵 𝗦𝗼𝗰𝗶𝗮𝗹 𝗟𝗶𝘀𝘁𝗲𝗻𝗶𝗻𝗴 🩺 Rare Diseases affect 300 million people worldwide, yet understanding patient experiences remains challenging.  At Convosphere, we're actively reshaping rare disease care through social listening and audience insights: • Mapping complex patient journeys • Guiding targeted therapy development • Informing effective drug launches • Closing knowledge gaps for healthcare providers Curious how social listening drives breakthroughs in Rare Disease care? 🔗Read our latest blog post to learn more: https://lnkd.in/drdamVT9 #RareDiseaseCare #SocialListening #HealthcareInnovation #RareDiseases

Today, on #RareDiseaseDay, we stand together to illuminate the lives of the 300 million people worldwide living with rare diseases. These conditions, often overlooked, impact not only the people living with the condition, but also their families and caregivers. 🔍 A few reasons why rare diseases matter so much: 👉 Rare diseases may be individually uncommon, but collectively, they affect a significant portion of our global population 👉 These conditions often come with unique challenges, including delayed diagnoses, limited treatment options, and insufficient research funding 👉 Advocacy and awareness play a crucial role in bridging gaps and ensuring that those affected receive the support they need As a technology provider in medicines information, we have a commitment to help create better patient outcomes throughout the world. Innovation is an initiator, and real change can happen by collaborating as an industry. To learn more about rare diseases, or hear real stories from people living with a rare disease, visit: 👉 https://bit.ly/3T0l6yZ Rare Disease Day #healthcare #patientoutcomes #diseaseawareness