Prader-Willi Syndrome Association UK’s Post

Our MediStays Care Navigators are teaming up with Plan Partners to discuss how you as an NDIS professional can best use STA to support your participants. We invite our valued NDIS community to join us for the FREE online webinar. We will be answering your questions and sharing our top tips to utilise Short Term Accommodation for your participants. TOPICS WILL INCLUDE: - How to refer NDIS participants for STA - How STA can support your participant to achieve their plan goals - STA bookings and service agreements - STA funding and other approvals - The importance of STA for participants living at home - Risks to avoid when booking STA WHEN: Wed 13 March (3 - 4pm AEDT) WHERE: Online DURATION: 1 hour FREE REGISTER ON EVENTBRITE: https://lnkd.in/gWXdFxCw    We highly recommend this webinar for Support Coordinators in city, regional and rural locations. If you have any questions beforehand, please feel free to contact our Care Navigator team. #NDISSTA #NDIS #NDISProvider #SupportCoordinator #AccessibleTravel #Accessibility

Sistability is here to help you navigate the new non-face-to-face supports available under the NDIS. Find out how you can make the most of these services in our latest blog post. #NDIS #Sistability #NonFaceToFaceSupport

Since we shared the exciting news that Inclusive Alliance has been recognized as a Community Care Hub by the Center of Excellence at USAging and won a highly competitive, national grant for multi-year funding to support our work, we've received questions asking how CCHs are different from Medicaid 1115 waiver Social Care Networks (SCN). One major difference is that Inclusive Alliance IS a CCH but is NOT in the running to be a SCN. With at least two other strong SCN applicants for Central New York and CBO members in other SCN regions, we will focus on our CCH role while offering to collaborate with and support the SCNs. We are encouraging our CBO network to prepare to engage with the successful SCN applicants in their regions once awards are announced. Check out the infographic below for more key differences. We view the CCH and the SCN as a complimentary initiatives, addressing different populations and services, but both working to elevate the role of CBOs in the local delivery system. They are not either/or concepts, but rather both exciting opportunities to improve the health and wellbeing of our communities. #networks #CBOs #collaboration #community #socialdriversofhealth

Voluntarism and Youth: Nurturing Compassionate Communities for Palliative Care https://ow.ly/4FSo50Qfsc4

As professionally interesting as I find the ins & outs of Medicaid 1115 waiver initiatives, I am looking forward to being a step (or more) removed from this next rapid, massive, and complex systems change initiative (sorry, DSRIP). While ready to support our local SCNs, I am most excited about the work ahead of Inclusive Alliance as we expand our Community Care Hub (CCH). Unlike other initiatives where the impetus to come together is a funding opportunity, Inclusive Alliance's CCH is the product of 8 years of local CBOs coming together to form a network using their own time and dollars, with the goal of improving outcomes for their clients through collective strategies to enhance their service capacity and quality. While we work hard to position our CBO members for 1115 waiver opportunities, it is not our actual purpose. Inclusive Alliance exists to develop and implement collective solutions to the shared need of our member CBOs. My colleague Nicole Hall likens us to a labor union for nonprofit human service agencies. Anticipating the shift to managed care, our founding I/DD members needed a legal structure for collective contracting with payors. Hence, Inclusive Alliance was organized as an independent practice association or IPA and later received 501c3 status. Other shared CBO member needs resulted in group purchasing and CBO data initiatives, CCH activities undertaken before we ever heard the term. Our CCH's first offering is the result of member CBOs need for a shared service to bill plans for covered disease prevention program. We plan to extend this shared service billing capability to other providers, such as doulas, seeking to bill for other nonmedical services. Our vision for the CCH includes CBOs and community providers of all stripes, with a goal of improving outcomes for any underserved group experiencing health disparities in our community. The grant we received will allow our CCH to implement collaborations that benefit older adults and people with disabilities, while improving KPIs for our healthcare and payor partners and developing sustainable revenue streams for member CBOs. In the coming months, we will be seeking new healthcare and payor partners interested in tapping into our CBO networks' collective ability to reach and impact Medicare and Medicare Advantage patients/members. We plan to broaden our population focus as our CCH attracts additional funding, and are always evolving in response to changes in community & member needs. #communitycarehubs #communitybasedorganizations #networks #collaboration

I came across this conversation in an unlikely place (a podcast by a mental health expert) with Mercy Corps' MENA Regional Director Arnaud Quemin on the humanitarian response in Gaza. He talks about different interesting aspects of MC's approach such as centering local staff's experiences in MC's global communication and his understanding of how important it is for organizations to make sure local staff feel seen: not forgotten but acknowledged in their experiences. Arnaud shares of course how hard it is for MC to provide meaningful support and he mentions one of the key elements in this man-made crisis is the lack of trust towards humanitarian organizations by "the parties to the conflict". Lack of trust that complicates access and aid delivery, and leads to ineffective, harmful "alternative" systems. He states e.g.: "For us, the humanitarian pier was just an expensive distraction from making the right decisions, which is the creation and recreation of the humanitarian space that is needed at this moment. " But he also points to the limited role of humanitarian actors, when asked about his views on calling this a genocide he explains: "Of course, we are engaging in advocacy at international levels. But we do not have the capacity to engage in legal debates. Our main role lies in highlighting the very dire humanitarian situation in Gaza, documenting this carefully and clearly, so we can contribute with this knowledge to the global discussion in a manner that we are professionally capable of - anything beyond that would be a personal thing.” In a series of panel discussions, a group of aid and development professionals have been critically reflecting on exactly these topics; the good practices but also the limits and the harm being done by the aid sector to populations in need. This is done under the label of Aid Washing, a practice we unfortunately notice when aid actors are hiding their ineffective, contradictory actions by PR or symbolic support. Next week we are organizing a reflection and integration session for those we want to take this further. Send us a message if you are interested or sign up on the link. Prep materials are available if you are new to the series. https://lnkd.in/dddk4hAu

Navigating the NDIS can be complex, but you don't have to do it alone. Our dedicated support coordination team at Jovial Healthcare is here to guide you every step of the way, ensuring your NDIS plan aligns with your goals and needs. Here's how we can help: 🔹 Personalized Guidance: We take the time to get to know you, your aspirations, and the support you need to achieve them. Your journey is our priority, and we're here to tailor your plan to fit your life. 🔹 Navigating Funding: Understanding NDIS funding can feel like deciphering a secret code, but don't worry – we've got you covered! We'll break down the complexities and make sure you're getting the support you're entitled to. 🔹 Connecting with Services: Whether it's finding the perfect support worker or accessing specialized services, we'll help you navigate the vast network of NDIS providers and connect you with the right resources. 🌐 www.thejovials.com 📞 1300 542 634

🚑 The healthcare challenges in Ireland, particularly within emergency services, are becoming increasingly urgent. Overcrowded A&E departments, limited resources, and extended waiting times are pushing both patients and healthcare professionals to their limits. In rural areas, the situation is even more critical, with long distances to the nearest hospitals exacerbating emergency response times. According to the Irish Nurses and Midwives Organisation (INMO), 2022 saw nearly 121,000 patients left on trolleys waiting for treatment. 🚨 These staggering figures highlight the pressing need for greater joined up thinking about Health care delivery. At Gewardz Health we are actively collaborating with communities, businesses, sports clubs, NGOs, and charities to support them with health care initiatives to reduce the burden on existing services. 🏥 While our frontline workers demonstrate incredible resilience, they need all the support we can muster. By working together, we can drive change and guarantee that every individual receives the immediate care they deserve. 💚 Reach out today to see how we can collaborate and strengthen our healthcare system together. #IrelandHealthcare #EmergencyServices #HealthcareChallenges

I'm paraphrasing Toby Porter speaking to the health and social care committee last week however, the clip below shares the Hospice UK chiefs acknowledgement of the views shared in parliament the day before. ICB's have a very difficult job and there is no god given right to funding for Hospices but strategic planning and financing is required and we see no evidence of strategic planning or funding taking place. Statutory guidance indicates that ICB's should specify clearly what needs to be in place to deliver high quality end of life care for their populations (NHSE, 2022). However, a very quick review of the web for #PEOLC strategies reinforces Toby's view as nearly 65% of ICS's do not appear to have an easily available or accessible palliative or end of life care strategy for their region. https://lnkd.in/e-VP2fSv

FIRST RESPONDERS🚑🚨🚒: My friends, Thank you for your support of capracare 's Community Health Workers Training program, you directly support local Haitians to take care of their community! WHY IS THIS IMPORTANT✨️✨️🫶🏿🫶🏿🚨: Community Health Workers (CHW) are valuable members within the communities they serve and increase access to healthcare by garnering the trust of their fellow neighbors, providing an array of services including facilitate access to care, and improving the quality and cultural competence of service delivery. In Southern Haiti, there is a healthcare provider shortage with one doctor or nurse per 3,000 persons. CHWs are critical to help close the gap of the lack of access to care and facilitate the provision of basic healthcare. See in the comment section how you can lean in to amplify capracare to sustain this work! 🫶🏿