International SCN8A Alliance’s Post

Today kicks off World Mitochondrial Disease Week. Over the coming week, many monuments around the country and the world will be lit up green in support of Mito along with several other events. To learn more and how you can participate, check out https://lnkd.in/gHSFTYZ4

Empowering Change: Join Prevail InfoWorks in Amplifying Awareness for Rare Diseases Day   Today is #RareDiseaseDay, the rarest day of the year! Prevail InfoWorks is proudly supporting Rare Diseases Day on February 29th, amplifying awareness for the millions affected by rare conditions worldwide. Discover more today and how you can get involved by visiting their website: https://lnkd.in/e2nh5pd Join us in making a difference by spreading awareness and supporting Rare Diseases Day. Together, let's ignite change. “Approximately 39 million Americans live with a rare disease. That is 1 in 10 of us” - National Organization for Rare Disorders #rarediseaseday #rarediseaseawareness #raiseawareness #showyourstripes #togetherstronger #rarediseaseday2024

🌍 March 18th: World Young Rheumatic Disease Day 🌍 Today, we stand together to raise awareness and knowledge about young rheumatic diseases. Early diagnosis is crucial in providing the support and care needed for those affected. Let's spread awareness to ensure that young people with rheumatic diseases receive the timely attention and treatment they deserve. Together, we can make a difference in their lives. 💙 #YoungRheumaticDisease #AwarenessMatters #EarlyDiagnosis #ViswabharathiHospitals #ViswabharathiHospitalskurnool #kurnool

🌍 March 18th: World Young Rheumatic Disease Day 🌍 Today, we stand together to raise awareness and knowledge about young rheumatic diseases. Early diagnosis is crucial in providing the support and care needed for those affected. Let's spread awareness to ensure that young people with rheumatic diseases receive the timely attention and treatment they deserve. Together, we can make a difference in their lives. 💙 #YoungRheumaticDisease #AwarenessMatters #EarlyDiagnosis #ViswabharathiHospitals #ViswabharathiHospitalskurnool #kurnool

Join Us for Rare Disease Day! Today, February 29th, is Rare Disease Day, a time to spotlight the millions affected worldwide. Did you know that there are over 6,000 rare diseases identified, impacting around 400 million people globally? Let's unite to raise awareness, support research, and advocate for change. In the face of challenges like misdiagnosis and limited treatment options, our solidarity is more important than ever. By spreading awareness, educating ourselves, and showing our support, we can make a real difference. Looking forward, there's hope on the horizon. Advances in research hold promise for better treatments and improved quality of life for those living with rare diseases. By coming together, we can amplify our voices and push for progress. Together, we can make a difference. #RareDiseaseDay #ShowYourRare #UnitedForRareDiseases #RealStaffing #RealLifeSciences

Did you know that there are over 300 million people living with a rare disease? Today is Rare Disease Day — and we are proud to join this global effort to raise awareness and support those affected by these uncommon, but significant conditions. Rare diseases are defined as those affecting fewer than 1 in 2000 people. This presents a global challenge, as the relatively small number of people affected makes it difficult to secure resources for treatment, research, and support. Raising awareness for these conditions helps empower those affected, reminding them that they are not alone. To learn more about rare diseases and how you can get involved, visit rarediseaseday.org! #rarediseaseday #clinicaltrials

March 6 is World Lymphoedema Day, an annual celebratory event to educate the world about lymphatic diseases. 2024 marks the 9th year of World Lymphoedema Day, which aims to highlight lymphatic diseases, including primary and secondary lymphoedema, lipoedema, and conditions the lymphatic system impacts. By engaging, educating and assisting people around the globe, we can better treat these conditions and elevate the lives of those living with lymphoedema. Video created by Lymphatic Education & Research Network #WorldLymphoedemaDay #LymphoedemaAwarenessWeek #LymphoedemaAwarenessMonth #LymphoedemaSupport #LymphaticHealth #EdemaSupport #ManagingLymphoedema #LymphoedemaEducation #LymphoedemaTreatment #LymphoedemaLife #LymphoedemaCommunity #LymphoedemaTherapy #LymphaticSystem #CompressionTherapy #LymphoedemaManagement #medi #WorldLymphedemaDay

Happy Rare Disease Day! Check out this video from PatientWing to learn more about Rare Disease Day and how PatientWing supports individuals with rare diseases.

Did you know rare diseases were so common, collectively? With more than 7,000 rare conditions, everyone likely knows someone impacted by a rare disease. This #RareDiseaseDay, learn about the vast yet diverse rare community: bit.ly/RDD2024 National Organization for Rare Disorders

Did you know tomorrow February 29th, the rarest day of the year, is Rare Disease Day? Many of our SLPs and audiologists play a part in treating the side effects of rare diseases. For more information on what SLPs and audiologists do visit our website at www.NJSHA.org. #NJSHA #wearenjsha #rarediseaseday2024 #rarediseaseday #slp #speechlanguagepathology #speechlanguagepathologist #audiologist #slplife