SICKLE CELL CONSORTIUM’s Post

Together we are celebrating World Retinoblastoma Awareness Week (May 12-18) & World Myopia Awareness Week (May 13-19) to make treatment services more accessible and spread awareness among the general public. #TilgangaInstituteofOphthalmology #Myopia #Retinoblastoma

On Day 9 of Sarcoidosis Awareness Month, let's highlight the importance of ongoing research. Promising advancements in treatments and therapies offer hope for a brighter future for those living with sarcoidosis. #SarcoidosisAwareness #Day9 #SaySarcoidosis #StopSarcoidosis #PostinPurple

Join us on June 19th at 12PM for our X space series, Beyond Awareness: Taking Action For the Sickle Cell Community. Hear from inspiring speakers, Ms. @Damilola Ajibade and Aliyu Bakama (@AleeyouBakama), Executive Director of A5 Sickle Cell Support Initiative. Click this link to join the conversation and be part of the change: https://lnkd.in/e5-E5raW #PrimeProgress #SickleCellWarriors #TakeAction #PrimeProgress"

As #WorldCancerDay approaches, let's stand together to make a meaningful impact. Join our #CloseTheCareGap campaign by signing the call to action here: https://lnkd.in/e3HiP2jy Every voice matters, and together, we can ensure that where you live doesn't determine if you live. 💙🤝 #WorldCancerDay #CloseTheCareGap

We will continue to spread the word until it is on the lips and hearts of all. Please check out Scleroderma Research Foundation and the wonderful work they are doing. #sayscleroderma #knowscleroderma #scleroderma #nosamadevfdn #teameunice #sclerodermawarrior

Not only is Dr Stephen McNally an amazing surgeon, who I'm lucky enough to have taking great care of me, he's also a great advocate for Brain Tumour Ireland. This week is Brain Tumour Awareness Week and you can learn more about this by visiting Brain Tumour Ireland's website  at the link below. You can also listen back to Stephen's chat with Pat Kenny on Newstalk. #braintumourawarenessweek#braintumourireland#braintumourresearch

More good news and more work ahead! 🎉 My abstract has been accepted for the World Orphan Drug Congress Europe! I'll be presenting a poster on "Breaking Barriers: Advancements in Sickle Cell Disease Therapies and the Role of Advocacy in Promoting Health Equity." I’m always excited to have the opportunity to share and speak in spaces where Sickle Cell isn’t a common topic of conversation. This is an amazing chance to elevate the conversation and bring awareness to communities that need to hear these stories and perspectives. 🌍 Advocacy doesn’t stop at borders or in familiar spaces. It’s about pushing the dialogue forward, reaching those who aren’t typically engaged, and creating new connections to drive real change. Every time we speak up and share, we make room for others to be heard. 💪🏾 Keep pushing boundaries, keep sharing your story, and keep advocating for change, no matter the audience! ✨ #SickleCellAwareness #HealthEquity #AdvocacyMatters #BreakingBarriers #WorldOrphanDrugCongress

This Black History Month, 5D Media is proud to announce our collaboration with the Sickle Cell Association of New Jersey to spearhead innovative educational initiatives on Sickle Cell Disease. Our mission is to harness the power of interactive media to transform how we educate, engage, and empower communities and individuals about this important health issue. Our Collaborative Efforts Include: • The development of an interactive virtual educational platform designed to engage and inform. • Creation of insightful hospital presentations and displays to enhance patient and provider education. • Launch of vibrant community awareness campaigns leveraging both audio and visual media to increase public understanding and support. • Provision of comprehensive patient support resources to assist those affected by Sickle Cell Disease in their journey. Through our partnership, we aim to create meaningful spaces for empathy, understanding, and action in the fight against Sickle Cell Disease, employing innovative technology to drive change. Our commitment goes beyond raising awareness; it’s about building a foundation for lasting impact and support for those affected by this condition. Stay tuned for updates on our progress and learn how you can be a part of this transformative journey. If your organization is interested in leveraging innovative media solutions for educational or awareness campaigns, we invite you to reach out to us at support@5dmedia.org or connect directly via LinkedIn. Let’s make a difference together, one story at a time. #SickleCellAwareness #BlackHistoryMonth #5DMediaSupport #HealthEducation #InnovativeTechnology #CommunityEmpowerment

Blood-based CRC screening is easy and less invasive than other traditional methods. Getting screened is so important and anyone age 45+ should get screened and have a baseline for future screenings. Let's get tested and increase survival rates!