Sofia Llahana’s Post

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NIHR Post-doctoral & Tech Innovation Fellow, Senior Lecturer Advanced Clinical Practice, Consultant Nurse in Endocrinology, UX Researcher, Founder/past Chair of European Society of Endocrinology Nurse Committee

Patient-centred care above procedural efficiency! Throughout my career, I've encountered numerous instances where patients shared harrowing experiences of their urgent pleas for a hydrocortisone injection during an adrenal crisis going unheeded by healthcare professionals who failed to grasp the gravity of the situation. My professional journey has been dedicated to championing patient empowerment and enabling individuals to take charge of their health knowledge. Yet, a recent personal ordeal has profoundly underscored that this approach alone is insufficient. My father was recently admitted to hospital for what was anticipated to be a routine day-case elective procedure. He also suffers from other chronic conditions, which I meticulously communicated to the surgical team, pre-assessment nurses, anaesthetists, and all involved, to ensure he received the necessary post-operative care. Regrettably, what was meant to be a simple day admission escalated into a life-threatening event, culminating in an extended hospital stay and leaving him confined to his home for an indefinite period. This deterioration was a direct result of the surgical team perceiving him merely as "the procedure”, thus overlooking the critical information we provided about his other health issues. This incident forces me to question whether the failure lay in my communication of his health issues and the potential post-operative risks or if it reflects a much deeper problem within our healthcare system. This system, increasingly resembling a "production line”, under substantial pressure to expedite patient turnover, often neglects the complex interplay of comorbid conditions. Therefore, while empowering our patients to become informed advocates for their health is vital, it's imperative we bridge the gap between patient empowerment and systemic responsiveness to foster a healthcare environment that prioritises individualised care above procedural efficiency. As healthcare practitioners, our expertise is not exhaustive, but we must adhere to the principle of attentively heeding patients’ requests, as Professors Wass and Arlt rightly argue in this timeless BMJ Editorial.  Addison's Disease Self Help Group The Pituitary Foundation #adrenalcrisis #empowerment #patientcenteredcare

Jennifer Gräfin von Baudissin

Clinical Director & Psychodynamic Psychotherapist, Dubai Healthcare City. English and French speaker. CPJA Race & Culture of UK Council for Psychotherapy (UKCP)

7mo

Excellent initiative! I have been one of those pleading for my life on numerous occasions. I have been dismissed as a drunk , a crazy neurotic or an entitled snob.

Anamaria Manea, MD

Board-Certified Pediatric Endocrinologist | Physician | Advocate for Children's Health | Assistant Professor of Pediatrics

7mo

Such an important message! Injectable hydrocortisone is needed NOW in the instance of an adrenal crisis. This simply saves lives. Countless times parents of children with adrenal insufficiency have been excellent advocates for their children in various medical settings and in schools! Would love to see a pen injector coming out soon!

Johan G. BEUN

Ambassador AdrenalNET (BijnierNET)

7mo

Dear dear Sofia, how terrible for your father, sorry to read this. You are fully correct, this "old" article is still crucial in our health CARE of today. Please wish your father well. Marjo & Johan

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Kate White

Clinical Nurse Specialist * Health and Wellbeing Practitioner * Auricular Acupuncturist * Work Place Mental health Advocate * Work Place Menopause Advocate *

7mo

Oh wow Sofia, I hope everything works out well and I'm sure you will keep advocating for all your patients from the top down. I know many nurses in your corner with this one x

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Cecilia Follin

Associate Professor & Clinical nurse specialist, Skåne University hospital & Lund University. Chair of network of follow up clinics for Childhood cancer

7mo

I agree Sofia! Listen to the patient. It’s simple or should be…

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